Hi. My husband and I would like to join the circle of those who are battling what seems to be residual effects or chronic side-effects of RMSF. My husband was exposed in 2008 though we never found the tick. He did present with a rash but it was summer and it looked like a heat rash and we dismissed it. However after about a month, he became very ill with high fever, headache, muscle spasms and severe back and joint pain and secondary infection in the lungs that presented as pneumonia. I remember the hospitalist remarking that he had a "hurricane" in his lungs, as Hurricane Ike was just hitting our home town as he was being hospitalized. He was treated for double pneumonia by hospitalist, but my father (a physician and very good diagnostician) correctly diagnosed him sight unseen as having RMSF. We had to beg the hospitalist to test for RMSF. Was he ever shocked when the test results were diffusely positive for IgG and IgM. He was treated with Doxicycline and he recuperated.
However, like so many of you, he has residual effects that are longstanding and progressive. I was horrified to recognize so many of the symptoms listed in these posts: loss of balance, cognitive dysfunction, weakness, back pain, joint pain, chronic fatigue, hearing loss, loss of mobility, numbness in feet, failed EMG, Vit. D deficiency, b-12 deficiency, stressed adrenals, weight gain, etc.
Under the care of neurologist who has diagnosed HSP, Vit. D deficiency. Also under care of pain management clinic and orthopedic surgeon. One thing none of you have mentioned so it might not be related is inability to get restorative sleep even when sleeping for long periods of time. Does anyone share that symptom?
Also, leg function has, up till recently, been impaired only on the right side but left side is progressively worsening. Currently working but is disabled and will be unable to work soon if something does not change.
We will be re-testing for a new occurrence of tick fever and testing for the first time for LD tomorrow. It appears from what I have read that chronic or residual RMSF does not usually test positive for IgG or IgM antibodies. Please let me know if I have misunderstood.
Thank you to all of you who have gone to the effort to post and please keep us "posted." We will be praying for all of us in our circle that a breakthrough will occur.View Thread