My grandson was a healthy 16 year old two months ago. He was bitten by a tick shortly before going to camp. The place the tick bit him became infected while at camp. It looked like a spider bite. They treated him with bactrum. After he returned home, he broke out in a fever. They took him to the doctor, who examined his bite and sent him home. Four days later, they took him back to the doctor because he broke out in a rash. At this point, the doctor's office took a blood sample and sent it off to test it for RMSF and other tick borne diseases. They did not put him on Doxcicyclene at that time. Six days later, his test came back positive. They started the Doxcicyclene. He went through two treatments of the medicine, but his symptoms became worse. He is lethargic, has severe muscle and head aches, and has bad tremors (upper body) At one point, he couldn't even walk without falling down. Movement and noise seem to activate the headaches. The headaches make him have the twitches or tremors.
So far, he has had a cat scan and a MRI. Both of these were clear. He has been to see an infectious disease specialist who told him that he had RMSF at one time, but it is not in his body now.
He went from a student who was able to memorize easily to one that has to constantly battle to focus on anything. Classroom noise, hall noise, and school bells all increase headaches which make him twitch. The twitches are severe and make his back and shoulder muscles hurt.
It is so frustrating because they cannot seem to find any answers or anyone to help him. He is now able to walk but he is very slow.
If you can suggest something that you feel will help, we would love to hear about it.