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'A Patient Voice' Community

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This board is a place to discuss living with chronic illness and patient advocacy topics. If you have a medical question, please check the Health Experts tab to find a community that's right for you.

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Lyme Update

Dr. Murakami is going to be speaking in Edmonton January 23/2013 He is a huge voice for the...

Posted by lookingforsunshine

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0 Replies | ReplyReport This| Share this:Lyme Update Dr. Murakami is going to be speaking in Edmonton January 23/2013 He is a huge voice for the...

Medication savings

Hi there- About a year ago I was introduced to the website Medicationcoupons.com. The name pretty much says it...

Posted by Ginas55

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0 Replies | ReplyReport This| Share this:Medication savings Hi there- About a year ago I was introduced to the website Medicationcoupons.com. The name pretty much says it...

What If We Had No Pain After Having Pain So Long? ...

Hi everyone. I believe I'm on your street.Thanks to all who can share those awful painful...

Posted by If_They_Only_Knew

Hi everyone. I believe I'm on your street.Thanks to all who can share those awful painful (emotionally & physically so freely. I share those demons with you all, as well. No Pain No Gain... in Many ways....

Only can say, we are blessed, to still have life, and being able to share our addictive painful never-ending feelings, with the entire world. So remember something which should make you feel better & better each day - You Are NOT Alone! Ever!!! Pray & Pray some more....You are heard!

It is Unbelievable what the non-stop aggravating, spooky pain that goes thru our bodies each day feels like, continuously, sometimes from head to toe, unless we pop a Legit 'Med' pill to get some relief, for short periods, usually. We're some Pain Fighting Addicts. My my my..Rough

I've gone as far as to ask a buddy next door who is struggling with Cancer - 'what helps his pain? He replies, Nothing, however, Mary-j-Uans, for short, helps me to eat. (gives me an appetite). The body is so Sensitive when 'Anything attacks it. So we should Pray & Pray some more... better than the pill.

.
At times we may wonder, how many people feel this Kind of pain? Now you know. Many... they are here, right in your community!

Plus we must realize & accepts what God allows, because He is the Boss. We may never understand why things happen the way that they do. Just think about this - those individuals who are paralyzed, wishing they could feel something, Anything, even a small piece of Your (my) Pain, ya know? Here we are complaining about what we do feel.

It's 'ruff n tuff' , but we are feeling. Strange isn't it? Be grateful.

So to all who are reading these posts, Know that you are Truly Blessed - 'cause, We Are Still Alive... Breathing... Pain & All - We Shall Live!!

Be Blessed...and... Remember, Pray & Pray some more...

'If_They_Only_Knew'View Thread

Posted by If_They_Only_Knew

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0 Replies | ReplyReport This| Share this:What If We Had No Pain After Having Pain So Long? What Would We Do Or Gain? Hi everyone. I believe I'm on your street.Thanks to all who can share those awful painful...

Medical Controls on imrs/mrs2000 and any (PEMF) de...

We see medical apparatus's, like the mrs/imrs2000 (PEMF units) being used in the private sector and sold...

Posted by kbarr52

We see medical apparatus's, like the mrs/imrs2000 (PEMF units) being used in the private sector and sold online. These apparatus' have no 'medical controls'. The use of magnets or any electrical waves should be governed by a doctor. They should not be governed by a distributor. A distributor 'sells them', and a 10 minute clip online, you are now an expert? Our laws have to protect the 'patient' and now spas and the internet are using medical procedures that should not put peoples lives in danger. These are not medical personnel, they are laymen. These types of units have caused seizures in healthy individuals and should be controlled. We just market from foreign countries and sell them here in the United States. Here are some excerpts from their information and you be the judge:
"Look for a Device with an Organ Clock or at least a machine that adjusts the frequencies to different times of the day. Circadian rhythm or biorhythm studies have proven that our brains, bodies and even the planetary frequencies change at different times of the day. There are both internal (thalamus) and external (environment) biological"t is critical to use only machines with low intensities between 0 and 70 uT (Micro tesla). This is what the Earth provides us and it is what is natural (Earth is Approximately 30-70 uT). So, you know the old saying, sometimes "Less is More". In Fact, when it comes to PEMF Therapy less can sometimes be essential and more can be harmful. And there is plenty of research to suggest that the lesser field strengths (in the earth's natural range) actually work better in clinical studies. IMPORTANT: If you are chemically sensitive, you will want to find a mat with a picotesla setting (very weak magnetic field).[br>"PEMF therapy is 100% safe, but it can trigger a herxheimer or healing crisis in sensitive individuals if not used properly.So please listen to this tip above all else: Find a company, distributor or product that offers EXPERT training and support by someone who has at least a couple years experience working with a wide range of body types and disease conditions. THIS IS CRITICAL and it's the most important tip I can offer!"View Thread

Posted by kbarr52

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0 Replies | ReplyReport This| Share this:Medical Controls on imrs/mrs2000 and any (PEMF) device used in the private sector We see medical apparatus's, like the mrs/imrs2000 (PEMF units) being used in the private sector and sold...

medication time

I would like to discuss medcations and how important it is to take medications on time i am a RN here in...

Posted by itspilltime

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1 Reply | ReplyReport This| Share this:medication time I would like to discuss medcations and how important it is to take medications on time i am a RN here in...

blood pressure cuffs

there are so many bp devices - digital readings on the wrist/arm, and the standard cuff. Which gives the...

Posted by ncanderson

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3 Replies | ReplyReport This| Share this:blood pressure cuffs there are so many bp devices - digital readings on the wrist/arm, and the standard cuff. Which gives the...

help

I am a 36 year old female with three boys. I have fibro and a unknow muscle disorder That causes may...

Posted by fasttimeport

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1 Reply | ReplyReport This| Share this:help I am a 36 year old female with three boys. I have fibro and a unknow muscle disorder That causes may...

Some HELP

I have been getting a treatment, for siatic nerve pain called Rizotomaty bymy pain dr.. Its not a cure, and...

Posted by kippersun

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1 Reply | ReplyReport This| Share this:Some HELP I have been getting a treatment, for siatic nerve pain called Rizotomaty bymy pain dr.. Its not a cure, and...

Dry Nasal Pasage/Dry Mouth/Chapped Lips

Hello... i have been feeling my nasal pasage has been extreamly dry. and long with that my mouth has been...

Posted by Yessir0912

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1 Reply | ReplyReport This| Share this:Dry Nasal Pasage/Dry Mouth/Chapped Lips Hello... i have been feeling my nasal pasage has been extreamly dry. and long with that my mouth has been...

Track your health and know yourself well.

I will give you the short version of my story and the valuable lesson I learned. My condition,...

Posted by KnowYourselfWell

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0 Replies | ReplyReport This| Share this:Track your health and know yourself well. I will give you the short version of my story and the valuable lesson I learned. My condition,...

scared/worried

Hello, I have a question.I had oral sex with an individual, Well i seem too be fine. Nothing about me has...

Posted by An_188011

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2 Replies | ReplyReport This| Share this:scared/worried Hello, I have a question.I had oral sex with an individual, Well i seem too be fine. Nothing about me has...

THE NATIONAL HEALTH COUNCIL

Winter Skin Care

While it is not quite winter, the cold will be upon us soon. The low humidity common in many parts of the...

Posted by Julie Block

While it is not quite winter, the cold will be upon us soon. The low humidity common in many parts of the United States during winter can cause dry, irritated skin. When skin becomes dry and irritated, eczema can flare. Here are some tips to help skin feel more comfortable during winter or anytime the air is dry:

1. Use a humidifier.
With the heat on and the windows closed, the air inside can become very dry in the winter, making the dryness and itching of eczema even worse. Use a humidifier to place moisture in the air. If you don't want to invest in an expensive humidifying system, smaller, relatively inexpensive humidifiers can be obtained at a local drug store. Placing two or three of these around your home will help to humidify the dry air. This can keep skin from drying and becoming cracked and itchy.

2. Switch to an oil-based moisturizer and moisturize frequently.
The more oil a moisturizer contains the more effectively it protects against moisture loss. Moisturizers that come in ointment form contain the most oil because an ointment, by definition, consists of 80% oil and 20% water. This water-in-oil emulsion forms a protective layer on the skin and makes it more "moisturizing" than creams and lotions. Ointments are especially beneficial when humidity is low. Ointments should not be used on areas of the body that tend to get hot and sweaty.

3. Before Going Outside in Winter:
• Apply a heavy layer of moisturizing broad-spectrum sunscreen with an SPF of 15 or higher to the face, hands, and any other skin that may be exposed. This will act as a barrier to help protect against the harsh elements and is especially important if you will be outside for any length of time. Sunscreen is important in winter as the sun's reflective powers are great year round - 17% on the sand and 80% on the snow. Today, several products are available that combine oily, moisturizing cream with sunscreen. If you are unsure of which product to use, ask a dermatologist.

• Grab those gloves. Protecting hands from the cold air and low humidity plays an important role in preventing flare-ups. Make sure the gloves are made from material that does not irritate your skin. Some patients find that wearing a cotton mitten next to the skin and a woolen mitten over the cotton one, keeps hands warm and dry.

4. Dress in layers.
The most common triggers of the scratch/itch cycle are sweating and overheating. Wearing layers allows you to remove clothing as needed to prevent overheating. Be sure to wear loose-fitting cotton fabrics next to your skin.

5. Shed wet clothes and shoes immediately.
These can irritate the skin and cause a flare-up.

For more information on eczema, please visit The National Eczema Association website.View Thread

Posted by Julie Block

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1 Reply | ReplyReport This| Share this:Winter Skin Care While it is not quite winter, the cold will be upon us soon. The low humidity common in many parts of the...

THE NATIONAL HEALTH COUNCIL

Tips for Dry Skin

• Take at least one bath or shower per day. Use warm, not hot, water for at least 5 to 10 minutes. Avoid...

Posted by Julie Block

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1 Reply | ReplyReport This| Share this:Tips for Dry Skin • Take at least one bath or shower per day. Use warm, not hot, water for at least 5 to 10 minutes. Avoid...

Promoting my Blog About Being Chronically Sick or ...

Being chronically ill, injured or disabled is a full time job and there's no training for it. Like any job,...

Posted by Shawn_rs5

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0 Replies | ReplyReport This| Share this:Promoting my Blog About Being Chronically Sick or Injured Being chronically ill, injured or disabled is a full time job and there's no training for it. Like any job,...

Laughter is good medicine!!

Laugh along with this lady who is living life to the fullest despite her disability and chronic illness-I...

Posted by poetrygal1

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0 Replies | ReplyReport This| Share this:Laughter is good medicine!! Laugh along with this lady who is living life to the fullest despite her disability and chronic illness-I...

good tip

the BEST thing you will ever do in managing your fibromyalgia, is to find the right doctor, it took me over...

Posted by babyjo211

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2 Replies | ReplyReport This| Share this:good tip the BEST thing you will ever do in managing your fibromyalgia, is to find the right doctor, it took me over...

Vitamin D and Chronic Pain *****so important

MiMi in NC....and I would encourage anyone who has chronic pain and even those who don't.....ask your doctor to...

Posted by Dollbug

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3 Replies | ReplyReport This| Share this:Vitamin D and Chronic Pain *****so important MiMi in NC....and I would encourage anyone who has chronic pain and even those who don't.....ask your doctor to...

CHRONIC PAIN

I have been living with both chronic and acute bouts of pain for over 12 years. I have come up with the...

Posted by An_188010

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0 Replies | ReplyReport This| Share this:CHRONIC PAIN I have been living with both chronic and acute bouts of pain for over 12 years. I have come up with the...

Having a disability doesn't mean you can't enjoy l...

Although having a disability (especially when you are suffering constant pain) you can enjoy life. I can...

Posted by Ruthanne100

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12 Replies | ReplyReport This| Share this:Having a disability doesn't mean you can't enjoy life Although having a disability (especially when you are suffering constant pain) you can enjoy life. I can...

Coping with the pain

I have had fibroymalgia for over 13+ years . I too have felt like I was not being a good Mom or Partner or...

Posted by An_188020

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0 Replies | ReplyReport This| Share this:Coping with the pain I have had fibroymalgia for over 13+ years . I too have felt like I was not being a good Mom or Partner or...

Twothebeach

I have Multiple Sclerosis, Restless Leg, Sleep Apnea and Pain from any and all of the above and my family...

Posted by Twothebeach

I have Multiple Sclerosis, Restless Leg, Sleep Apnea and Pain from any and all of the above and my family tells me they know plenty of people that still work with MS. Isn't that reassuring. I'm 57-58 but they don't take that into account that the people they know only have MS and are only 20-30 and they have a bad case of YDU because they have much more education than I do and therefore think they know that all my "pain" is in my head. I worked most of my life doing physical work and have had several accidents over the years to add to the problems with my back. My Mother and Ex-husband also thouht that beating me was the way to get my attention instead of calling my name so my head, neck and body were pretty fouled up by the time I left the Ex at 36. They have never had any form of mistreatment from anyone anytime during their lives but they are authorities on what I should or should not be able to do no matter what the doctors say. My sister said it would take two years for me to get my disability from Social Security and I quit work in June and received my first check in January for December of the same year I quit work. The doctor told me I should of quit five years earlier.

Now I have trouble walking, sleeping, staying awake, riding in a vehicle, shopping, and have both bowel and uriinary incontinance, plus memory lose and cognitive difficulties. I get facet shots every three months, take $42,000 worth of medicine a year but my sister tells me I should be working not sitting at home. Go figure. She's a pharmacist and she knows more than the doctors, all six of them, that I see. I try and do the best I can every day so therefore I am branded for the days I can't do anything as a put on.

Hang with the ones that love and understand you. Be it friends or family. If the family comes around eventually good but in the meantime don't make yourself miserable waiting on them. Create your own "family of friends" that understand your situation and will help you to live confortable with it as much as possible and find a support group or create your own from people you know love you. If need be see a mental health counselor to help you cope. It has been my salvation.

And last but not least get a handful of the pamplets "But You Look So Good" and share them. They are very enlightening. May ALL of you find the support you need.View Thread

Posted by Twothebeach

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1 Reply | ReplyReport This| Share this:Twothebeach I have Multiple Sclerosis, Restless Leg, Sleep Apnea and Pain from any and all of the above and my family...

Affording Your Prescriptions

Everyone is concerned about cutting costs on everything these days, including prescriptions. So I...

Posted by Byroney_WebMD_Staff

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19 Replies | ReplyReport This| Share this:Affording Your Prescriptions Everyone is concerned about cutting costs on everything these days, including prescriptions. So I...

Fibromyalgia is managed by MOTORBIKE RIDES!!!

quick post from a long time sufferer. for 2 yrs now I have been free of the major symptoms of Fibro .....

Posted by AuPlatypus

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1 Reply | ReplyReport This| Share this:Fibromyalgia is managed by MOTORBIKE RIDES!!! quick post from a long time sufferer. for 2 yrs now I have been free of the major symptoms of Fibro .....

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