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Chronic Fatigue Syndrome Community

Getting a CFS diagnosis probably felt exhausting. Get support from others ... more

Reply: Can't live this way anymore

Hello nibor_b, Welcome to the community and thank you very much for your story and...

Posted by Sergiokay

15 Replies | Reply | Watch This DiscussionReport This| Share this:Can't live this way anymore Hello nibor_b, Welcome to the community and thank you very much for your story and...

Reply: Looking for Others with CFS CFIDS ME

Hello 1Butterfly82, Welcome to the community. 1Butterfly82, I too have had low...

Posted by Sergiokay

5 Replies | Reply | Watch This DiscussionReport This| Share this:Looking for Others with CFS CFIDS ME Hello 1Butterfly82, Welcome to the community. 1Butterfly82, I too have had low...

Reply: How many people have developed CFS symptoms after ...

Hello sleepybeauty, I hope that when you read this you are feeling much better. Not...

Posted by Sergiokay

Hello sleepybeauty,

I hope that when you read this you are feeling much better.

Not much information is out there regarding the link between the Epstein-Barr Virus and Chronic Fatigue Syndrome, however I have read on many occasions posts by sufferers of Mononucleosis who contacted the EBV, that they have experienced symptoms associated with CFS.

I too at fifteen contracted a viral infection and have since been suffering with CFS. I will be forty one in May.

I suggest that you try and contact a doctor who specializes in CFS. Please refer to the following post kindly provided by knyb007.

"knyb007 responded:
I've been there. I was sick about 6 years ago and had all the troubles you explained and more. Doctors couldn't find anything wrong with me. They weren't doing the right tests. I'll spare the details and just get to the solution. If you are on the east coast, contact Dr. Ritchie Shoemaker in Pocomoke City, MD. If you are in the Southwest, contact Dr. Michael Gray in Benson, AZ (outside Tucson, AZ) These are two of the most highly qualified doctors who know what to look for, how to diagnose and treat people with chronic fatigue. I have seen both of these doctors and am happy to say that I am on my way to full recovery.

I could be wrong, but I suspect that perhaps you have long thin limbs, are or were pretty flexible and either you or people in your family have a history of soft tissue damage such as cartilage. These are genetic characteristics of a group of the population that are susceptible to environmental toxins that the immune system is not able to properly deal with and clear from the body. About 25% of the population is like this.

If you are unable to see either of these doctors, ask your own doctors about levels of VEGF, TGF beta 1, MSH, C4A.

Good luck."

I hope this information was useful to you.

Good luck and I hope you recover very very soon.

Take care and keep in touch.

Kind regards,

Sergio

View Thread

Posted bySergiokay

4 Replies | Reply | Watch This DiscussionReport This| Share this:How many people have developed CFS symptoms after EBV infection? Hello sleepybeauty, I hope that when you read this you are feeling much better. Not...

Reply: Newbie here!

Hello emmasimi, Welcome to the community! The symptoms are definitely there,...

Posted by Sergiokay

1 Reply | Reply | Watch This DiscussionReport This| Share this:Newbie here! Hello emmasimi, Welcome to the community! The symptoms are definitely there,...

Reply: Pregnancy and CFS

Hello 8soda, I hope that when you read this reply you are doing well. I...

Posted by Sergiokay

1 Reply | Reply | Watch This DiscussionReport This| Share this:Pregnancy and CFS Hello 8soda, I hope that when you read this reply you are doing well. I...

Reply: How long til I feel normal again?

Hello Ling001, I hope your day is going well. Please find below a post that might be...

Posted by Sergiokay

1 Reply | Reply | Watch This DiscussionReport This| Share this:How long til I feel normal again? Hello Ling001, I hope your day is going well. Please find below a post that might be...

Reply: Husband understanding

Hello cmlee76, I hope you are doing well. Thank you very much for taking the time in...

Posted by Sergiokay

3 Replies | Reply | Watch This DiscussionReport This| Share this:Husband understanding Hello cmlee76, I hope you are doing well. Thank you very much for taking the time in...

Reply: Husband understanding

Hello Sadiejoe, I am a 40 year old British citizen born in London England of Spanish...

Posted by Sergiokay

3 Replies | Reply | Watch This DiscussionReport This| Share this:Husband understanding Hello Sadiejoe, I am a 40 year old British citizen born in London England of Spanish...

Reply: It's been a long time

Hi Kat, You did it, They appear once you click Submit. Computer literate I'd...

Posted by Sergiokay

6 Replies | Reply | Watch This DiscussionReport This| Share this:It's been a long time Hi Kat, You did it, They appear once you click Submit. Computer literate I'd...

Please, lets keep this community alive.

Apologies for the caps (I am not shouting ) I Just would like to bring this more to...

Posted by Sergiokay

0 Replies | Reply | Watch This DiscussionReport This| Share this:Please, lets keep this community alive. Apologies for the caps (I am not shouting ) I Just would like to bring this more to...

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