I've been there. I was sick about 6 years ago and had all the troubles you explained and more. Doctors couldn't find anything wrong with me. They weren't doing the right tests. I'll spare the details and just get to the solution. If you are on the east coast, contact Dr. Ritchie Shoemaker in Pocomoke City, MD. If you are in the Southwest, contact Dr. Michael Gray in Benson, AZ (outside Tucson, AZ) These are two of the most highly qualified doctors who know what to look for, how to diagnose and treat people with chronic fatigue. I have seen both of these doctors and am happy to say that I am on my way to full recovery.
I could be wrong, but I suspect that perhaps you have long thin limbs, are or were pretty flexible and either you or people in your family have a history of soft tissue damage such as cartilage. These are genetic characteristics of a group of the population that are susceptible to environmental toxins that the immune system is not able to properly deal with and clear from the body. About 25% of the population is like this.
If you are unable to see either of these doctors, ask your own doctors about levels of VEGF, TGF beta 1, MSH, C4A.