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Cluster Headache Exchange

This exchange has been created for people suffering with cluster headaches.

What's Happening Now

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100% Relief for me

I've been free of these terrible headaches for years now. Ever since taking an SSRI (serotonin...

Posted by carlwilliams254

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0 of 0 found this Tip helpful

0 Replies | ReplyReport This| Share this:100% Relief for me I've been free of these terrible headaches for years now. Ever since taking an SSRI (serotonin...

Reply: Please help me

Yes it is like a red-hot poker sticking into your eye. Heavy duty breathing excersices can actually...

Posted by carlwilliams254

2 Replies | Reply | Watch This Discussion Report This | Share this:Please help me Yes it is like a red-hot poker sticking into your eye. Heavy duty breathing excersices can actually...

Reply: They're Baaaaaack!

OMG. I can't go near alcohol when I'm in a cluster cycle. I'm surprised anyone can, as it's a telltale sign...

Posted by Maldacht

Take the Poll

What can I do as far as the "Natural way" without pills/drugs to prevent these from occuring?

4 Replies | Reply | Watch This Discussion Report This | Share this:They're Baaaaaack! OMG. I can't go near alcohol when I'm in a cluster cycle. I'm surprised anyone can, as it's a telltale sign...

Reply: Managing Pain of Cluster Headaches

There's a tight connection between serotonin and melatonin levels and these monsters. No surprise that taking...

Posted by Maldacht

7 Replies | Reply | Watch This Discussion Report This | Share this:Managing Pain of Cluster Headaches There's a tight connection between serotonin and melatonin levels and these monsters. No surprise that taking...

clusters have stopped. Quit smoking now!!!

I suffered for 4 years straight with cluster headaches sometimes up to 6 attacks a day. My remissions would...

Posted by spargueman

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0 Replies | ReplyReport This| Share this:clusters have stopped. Quit smoking now!!! I suffered for 4 years straight with cluster headaches sometimes up to 6 attacks a day. My remissions would...

cluster migraines

I am currently getting botox injections every 3 months and when they last for more then 2 days in between that...

Posted by lynnie25

0 Replies | Reply | Watch This Discussion Report This | Share this:cluster migraines I am currently getting botox injections every 3 months and when they last for more then 2 days in between that...

Reply: Sphenopalatine neuralgia

I had the RF, or microwave block. It's not permanent, but it helped. It was really hard to find a doc here...

Posted by ctschiebel

1 Reply | Reply | Watch This Discussion Report This | Share this:Sphenopalatine neuralgia I had the RF, or microwave block. It's not permanent, but it helped. It was really hard to find a doc here...

Deseril (methysergide)

Hello! I would like to talk with users of Deseril. How long are you using this medication? How are you feeling?...

Posted by CrixBR

0 Replies | Reply | Watch This Discussion Report This | Share this:Deseril (methysergide) Hello! I would like to talk with users of Deseril. How long are you using this medication? How are you feeling?...

Reply: Cluster Headache in Brasil

Ola, gostaria de conversar com voce a respeito da enxaqueca, mais especificamente da Deserila. Por favor entre...

Posted by CrixBR

1 Reply | Reply | Watch This Discussion Report This | Share this:Cluster Headache in Brasil Ola, gostaria de conversar com voce a respeito da enxaqueca, mais especificamente da Deserila. Por favor entre...

I think I may have cluster headaches.

I am a 38 year old male. I started having daily headaches when I was 27. It lasted about a year and went...

Posted by athenspanic

0 Replies | Reply | Watch This Discussion Report This | Share this:I think I may have cluster headaches. I am a 38 year old male. I started having daily headaches when I was 27. It lasted about a year and went...

Goodbye Cluster headaches

I began my painful journey when I was 12. I had painful migraines on the right side of my head, behind my eye,...

Posted by MizzMo2

I began my painful journey when I was 12. I had painful migraines on the right side of my head, behind my eye, and all those nerves. One upper tooth would also be affected by that cluster of nerves at the jaw joint. I've taken every drug for migraines, and even went to the dentist to see if there was a problem. It seemed to hit me in the spring, and I would get up to 2 migraines a day, for up to a 3 month period. In the last 10 years it also came in the fall. I've done everything, diet, exercise pain meds, but there was no way out.
It wasn't until 4 years ago when my dentist wanted me to go see another dentist to drill into my tooth to see if the root was cracked. It was the same tooth that would explode in pain during a migraine. I decided to have the tooth pulled. I have not had a bad migraine since. I still get the aura, and the minor things that let me know that my cycle has begun, but there is no more pain. I am now 52 years old, I suffered for over 35 years with these horrid cluster headaches. If dentists would truly listen, and do some kind of better xray to show the tooth root way clearer, I would not have suffered to the extent I have.
My advice, is to find someone who can zoom in on the root system of your upper jaw to see if maybe you do in fact have a cracked root, I bet half of the people if not more, would not have to suffer with this anymore. There are several reasons it could have cracked, and I'm not sure why mine was. It could be from a hit to the face, you could clench your jaw. These are my two possibilities to why I suffered.
I did go to the dentist a couple times when my cycle of migraines did come, xrays were taken, and they found nothing. So even normal xrays do not zoom in on these cracks, and the tooth that affected my migraines was the top 6th on my right side. Right next to a cluster of nerves that fed my whole right side of my face. When our bodies have pain, there is a reason. You have to be diligent and look at other issues before you live a life of being given drug after drug for over half your life.
I hope I can help some of you, I believe I can if you can find a dentist to zoom in on your roots. Get that tooth pulled, and live a normal life.View Thread

Posted by MizzMo2

0 Replies | Reply | Watch This Discussion Report This | Share this:Goodbye Cluster headaches I began my painful journey when I was 12. I had painful migraines on the right side of my head, behind my eye,...

Clusters forever

Good Grief! Your husband is one tough old bird! I've had cluster headaches almost every day for many years. I...

Posted by nvcordman

0 Replies | Reply | Watch This Discussion Report This | Share this:Clusters forever Good Grief! Your husband is one tough old bird! I've had cluster headaches almost every day for many years. I...

Reply: often

in the fall or spring, about a 3-week cycle with 1-2 a day. Thank god for imitrex injections.

Posted by CaptScott

3 Replies | Reply | Watch This Discussion Report This | Share this:often in the fall or spring, about a 3-week cycle with 1-2 a day. Thank god for imitrex injections.

Reply: Cluster Headaches and heat

Extreme temp changes can trigger mine. Either a very hot day or a very cold day can do it. I usually have a...

Posted by CaptScott

1 Reply | Reply | Watch This Discussion Report This | Share this:Cluster Headaches and heat Extreme temp changes can trigger mine. Either a very hot day or a very cold day can do it. I usually have a...

Warm Food. Who'd have thought?

I've noticed that any time I've eaten something with a hot temperature, the cluster headache is either...

Posted by kimorimia

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2 of 3 found this Tip helpful

0 Replies | ReplyReport This| Share this:Warm Food. Who'd have thought? I've noticed that any time I've eaten something with a hot temperature, the cluster headache is either...

Reply: Help from Sufferers?

Nerve decompression, could you tell me more about the procedure?

Posted by gotarheels

2 Replies | Reply | Watch This Discussion Report This | Share this:Help from Sufferers? Nerve decompression, could you tell me more about the procedure?

You've suffered too long

My husband suffered with headaches for 31 years. He had to give up his job and has been told forever that...

Posted by stopheadaches

My husband suffered with headaches for 31 years. He had to give up his job and has been told forever that the headaches are all in his head and he should seek therapy. You can't find them with x-rays or cat scans or any other tests so therefore they don't exist. We went everywhere and tried everything. He had 40 nerve blocks, botox, fusion, wire implants in his forehead. hypnotherapy and pain management endless times. All they did was prescribe pain meds which we all know affects your body. Purely by coincidence, we heard about a doctor in Houston, Texas who was a headache specialist. Her name is Pamela Blake. She agreed that my husband indeed had headaches and he should not have suffered for this long. She referred us to Dr. Ivica Ducic at Georgetown University who is doing a new procedure. He has done over 1200 of these. My husband had the procedure and had 6 nerves removed from the occipital area. In the recovery room he had miraculous results which will just get better. He is scheduled for March to do the sides or forehead. Dr. Ducic said he may not have 100% recovery but should see a measured improvement. Go on line at check nerve decompression surgery out. Maybe this might be for you. If we could just let other headaches sufferers know that you do have a headache- you aren't crzy- and you have an option, it would pay forward for the help we got. Suffering is no fun. It affects you and also your family. It takes away your life. My husband is finally looking forward to the future rather than dreadly the next day. I hope this will help the many others who have suffered. Dr. Ducic is a professor and is teaching this procedure for future doctors. He said if he did the procedure 24 hours a day for the rest of his life, he couldn't help everyone that needs it. Please don't waste another day being depressed that noone understands your pain.View Thread

Posted by stopheadaches

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3 of 4 found this Tip helpful

0 Replies | ReplyReport This| Share this:You've suffered too long My husband suffered with headaches for 31 years. He had to give up his job and has been told forever that...

Boiling Tiger Balm to open nasal passage

I have been suffering from cluster headaches for about 12 years and they have almost always attacked around...

Posted by keneas2002

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3 of 5 found this Tip helpful

0 Replies | ReplyReport This| Share this:Boiling Tiger Balm to open nasal passage I have been suffering from cluster headaches for about 12 years and they have almost always attacked around...

Air travel and clearance for oxygen

Something I learned and liked to share. You can't travel on a commercial flights with oxygen tanks. You need...

Posted by Msspolly

0 Replies | Reply | Watch This Discussion Report This | Share this:Air travel and clearance for oxygen Something I learned and liked to share. You can't travel on a commercial flights with oxygen tanks. You need...

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This exchange has been created to aid myself and all users in finding ways to manage the pain of cluster headaches. It is my hope that by sharing my e...More

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Warm Food. Who'd have thought?

I've noticed that any time I've eaten something with a hot temperature, the cluster headache is either delayed or not as severe. For ... More

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Cluster Headache Exchange

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