I suffered for 4 years straight with cluster headaches sometimes up to 6 attacks a day. My remissions would only last 2-3 days at a time. It was a nightmare for me and my family. The pain was worse than anyone could describe. I called them my Freddy Krueger visits.
Then they stopped! Finally! I had the burst Appendix that saved me from insanity.Back in early April 2013 my appendix burst and I had an emergency trip to the hospital to have removed. That was a close call but like my father use to tell me "good things grow out of dung" and he was right.
I spent a few days in the hospital recovering and had gone through some nicotine withdraws and frankly I was tired of being a slave to tobacco. I gave them up and haven't smoke since.
I haven't gone this long without CH in 4 years and I feel confident that they are over. Quiting Smoking or getting rid of the appendix has given me a new lease on life. I sleep normally and no more pills etc. I am drug free and headache free.View Thread
I've noticed that any time I've eaten something with a hot temperature, the cluster headache is either delayed or not as severe. For example, I was starting to feel the shadow of the headache coming on so I ordered a hot chocolate at lunch. By the time it was brought to me, I was at the pacing stage. After drinking half of the cup, I was feeling a lot more sane. Also, yesterday morning I woke up out of my sleep feeling like I wanted to scream, so I made my way to the kitchen and made a bowl of warm oatmeal. It felt like the water was taking forever to boil, but I was thankful once the pain melted away a bit after eating something so hot.View Thread
My husband suffered with headaches for 31 years. He had to give up his job and has been told forever that the headaches are all in his head and he should seek therapy. You can't find them with x-rays or cat scans or any other tests so therefore they don't exist. We went everywhere and tried everything. He had 40 nerve blocks, botox, fusion, wire implants in his forehead. hypnotherapy and pain management endless times. All they did was prescribe pain meds which we all know affects your body. Purely by coincidence, we heard about a doctor in Houston, Texas who was a headache specialist. Her name is Pamela Blake. She agreed that my husband indeed had headaches and he should not have suffered for this long. She referred us to Dr. Ivica Ducic at Georgetown University who is doing a new procedure. He has done over 1200 of these. My husband had the procedure and had 6 nerves removed from the occipital area. In the recovery room he had miraculous results which will just get better. He is scheduled for March to do the sides or forehead. Dr. Ducic said he may not have 100% recovery but should see a measured improvement. Go on line at check nerve decompression surgery out. Maybe this might be for you. If we could just let other headaches sufferers know that you do have a headache- you aren't crzy- and you have an option, it would pay forward for the help we got. Suffering is no fun. It affects you and also your family. It takes away your life. My husband is finally looking forward to the future rather than dreadly the next day. I hope this will help the many others who have suffered. Dr. Ducic is a professor and is teaching this procedure for future doctors. He said if he did the procedure 24 hours a day for the rest of his life, he couldn't help everyone that needs it. Please don't waste another day being depressed that noone understands your pain.View Thread
I have been suffering from cluster headaches for about 12 years and they have almost always attacked around Oct. or Nov. and usually last for a couple of weeks to a couple of months. I have been to so many doctors over the years and lost so many jobs that I had began to lose hope of ever managing the condition. Due to loss in health insurance, i have been forced to try alternative methods and when I boiled tiger balm (similiar to vapor rub), breath in and out deeply on the affected side in order to open up the nasal passage and coupled that with claritin and tylenol allergy it REALLY HELPED. I think that my headaches have been triggered by some sort of allergy, and strangely enough they only really affect me on one side of my face and usually attack when i am at home sleeping, or when I am relatively inactive. Anyway, I hope that this can help someone, it is a really pleasant Thanksgiving present.
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