I was diagnosed about a year ago. I was given a diet to follow and a diuretic. I stuck to it faithfully and took my pills as directed. Six months later nothing seemed to changed so I just gave up. That worked much better. Now after a period of normal it just starts back up. Some things that I think triggers it are: Buildings with positive air pressure systems. Certain motors like street sweepers. Seems to be a frequency thing. Loud noise and some appliances. Restaurants are bothersome. Peanut butter. My ears are stuffed up and my throat feels constricted. I can't find any info about the throat constriction but the stuffinuss and throat are always together. Almost like a sore throat. Ringing in my left ear and diminished hearing more so in the left ear. I spent this summer in the mountains of Colorado. A small cabin at 7,500 feet altitude and very remote where most of the noise came from birds. I had 2 1/2 months of wonderful relief. I only had problems when I had to go shopping or out to eat. Suddenly it started up again. Phoey!
I have reflux from time to time and there seems to be a relationship. I do not seem to have reflux without hydrops. It always goes away at night. Sometimes before I go to bed. Ironicly after all food is out of my system. I wake up feeling fine until about lunch time and it will start up and gradually worsten until about 10pm.
I was diagnosed about one year ago and followed the recommended diet and diuretic prescription. I tried as hard as one can to comply but after six months I gave up.
Seems like giving up was more successful than the treatment. Now it comes and goes seemingly at will. I have noticed some things that bring it on and they are: Buildings with positive air pressure systems. Certain engines like a street cleaner. Clothes washer and dryer and some refrigerators. Other various noises. Peanut butter.
I just spent the summer in Colorado in a cabin at 7,500 ft elevation. It was a remote location with almost no noise other than nature. I went 2 1/2 month with almost no symptoms. When I had to go to a store or building I might set it off but not for long or very severe. It was wonderful. It did suddenly return a couple of weeks ago and is pretty bad. When I have the stuffiness in my ears there is always a sore throat that happens at the same time. I do have reflux and there seems to be some relationship. I did not have any reflux symptoms during the period of no Hydrops symptoms.
My symptoms go away at night. Sometimes before I go to bed but always with an empty stomach. Usually my symptoms stay away until after lunch. Dr says no but I surely think that there is some relationship with food.
I would like to know if any one else has similar experiences.View Thread