I found a doctor that might be able to help. He is located in Boston, and if you do a search for palatal myoclonus Boston doctor his name will come up. I transferred my records but it has taken a while for them to get back to me. Also not sure how feasible it is for me to have surgery and follow ups since I am on the opposite coast. Good luck and please share any leads.View Thread
Thanks for your swift reply, Dr. Moser. The first doctor was a neurotologist, but as I stated above, the Botox treatment was unsuccessful on many levels. He indeed said it was myoclonus. However, he said that surgery is not used anymore for this, and only Botox treatments. Do you find this to be true? Would it be best for me to call a lot of neurotologists until I find one that does the surgery?View Thread
I have been having ear clicks for at least two years in both years. It occurs only when I am speaking. I have tried Sudafed, anti inflammatory and even anti-anxiety medication to no avail. Previously I went to an ear clinic, where the doctor shot Botox in my soft palate. It helped for 2 weeks in 1 ear, and not at all in the other. The side effects of having a full/plugged ear for those 2 weeks followed by my eustachian tube remaining open and hearing an echo as I spoke were unbearable.
I have just seen a highly respected maxillofacial doctor in Los Angeles. The new doctor ruled out sounds from my jaw, and agreed that the clicks were caused by the tensor and eustachian tube. He also took a CT scan and saw nothing conclusive. He said he couldn't help me, and that he is not aware of any treatment or doctors who would know about this, and agrees that though the Botox may offer little relief, it is not an acceptable solution to my problem.
I am looking for referrals or information about my condition.View Thread