Thanks again for your help. You have been more help than the ENTs(which seem like a strange beast of doctors from the ones we have encountered). I hope everything can get under control because her ear bothers her so much she is unable to eat and has been drinking Ensure, eating soups, and other soft foods(a cucumber. Dentist(after an ENT office sent her there instead of taking her in) said she was a-okay but the dentist did point to the infection in the ear.View Thread
We got my partner to a new ENT. He prescribed Ciprodex which is a drug that she has been constantly prescribed over the last 3 years with no avail. New ENT really didn't address the swollen lymph nodes behind her ear that are the size of a walnut(it really looks chipmunkish) I really think over 20 plus years of antibiotics prescribed about 4 to 6 times a year, she may have developed a tolerance to them if that make sense. Onto my question about the granulated tissue-- is it okay or even right to ask the doctor for a culture or more test to be taken from the tissue maybe to find out why the granulated tissue, the swollen lymph nodes, fever, infection, drainage, and blood continue to reoccur.View Thread
Thanks. What scares me is this granulated tissue and the dismissive nature of some docs like you said. One was like come back in a year and didn't offer any other suggestion for any sooner follow up. I agree that you cant sit at home wallowing, but I do know it could be exhaustion too from going to over 25 specialists from eye doctors, Neurologist, ENTs, and dentists to find her some pain relief and tumor help. I am reaching out to her mother because I think that is the only person she will listen to and can talk sense into her like only a mother could.View Thread
My partner has had countless issues with ear infections. I think this is her 10th infection over the last year. There is a drainage if I could call that coming out her ear that is black and brownish accompanied by bright red blood. Her mood normally cheery has been very snappy. This evening she told me the pain got so bad that she just threw up. I think she doesn't have a cold over a flu. Is it possible that pain in the ears could get so bad a person would throw up? She is also saying her neck is sore. SHe is unable to eat solids because her jaw is swollen and it is difficult for her to bite, So the vomiting worries me.
You might remember me from a few months back. If not that is quite all right. My partner is very leery to go to the doctor and is quite fed up especially after trekking 50 miles after Hurricane Sandy only to get lectured by one of her surgeons who had removed her Paraganglioma that it was only a infection that disrupted the granulated tissue she has in her ear post surgery. It took a lot to grt her to the ENT only for her to leave disappointrd and angry(bribe ring, promising her favorite cupcake, everything short of kidnapping). My partner is two years post op, should this granulated tissue that I had been hearing about from these doctors for two years gone away? Could there be something that the doctors are missing about this granulated tissue. Despite having ear infections most of her adult life, the ones post surgery have been extremely painful and quite nasty. Oh BTW, she abruptly left another ENTs office because he said she had bad hygiene and that was the cause of her ear problems. I was offended too because she has meticulous hygiene and has followed doctors instructions on cleaning her ears and using her ear drops. At nearly 50 bucks a pop for two years, it seems that this Ciprodex and Neomycin has been a waste of money.View Thread
Kicking and screaming we went to a go between ENT because of the wait was so long to see others. I guess bleeding from the ear is not as serious as it seems? I have first hand knowledge how frustrating it is to deal with some doctors now(wasn't at all like this when I had a nodule removed from my breast). The bleeding and pain increased over the weekend and all my partner could do is stare at the walls with tears streaming her face. The go between ENT told her she had a nasty infection and a pre-Cholesteatoma. The ENT who was one of the ones who saw her recently(6-8 weeks ago) said the ear filled up way too quickly but didn't give a more detailed explanation when asked. The eardrum which was created for her during one of the surgeries for the tumor has now according to the ENT " discinerated because of the infection and the new eardrum did not take." The ENT didn't seem too concerned that the ear drum is gone. Does she really need an eardrum especially for an ear that is always giving her trouble? Or can she do without it? What precautions would she need to take without the eardrum?View Thread
Thanks Dr Moser. I will tie her up and go. The recurring tumor was something called paraganglioma(spelling questionable). I am really surprised the ENTs who saw her almost a month ago didn't pick up on it and we are talking about some big hospitals that she went to. She did allow me to use a warm cloth around her ear and there is some debris behind the ear(the space between the head and ear) as well. I will keep you posted once we are able to see an good ENT who doesn't have any office politics like the one we called earlier today(earliest the office said was 4-5 weeks).View Thread