Dr. M: Sure hope you see this!! I posted on the regular forum and I guess you aren't allowed to answer there anymore. Sure miss your encouragement. Did want to share this with you as it may help others too. After contacting a Dr. in Mass., by email, who believe's Meniere's has a viral etiology, and treats his patients with a high success rate, with anti-viral meds. I got an email back from him explaining his dosage, etc. His name is Dr. Gacek. I sent that with my own letter to my primary, who--reluctantly--prescribed the generic for me to try for a 2 week period and then I have one refill. The doctor from Mass. said I will see an improvement in dizziness, nausea, and should see an improvement in hearing also, within 3 weeks of the high dose of anti-virals, and then will 'taper down' to only 1/2 to one tablet a day--1000 mg. for as long as needed. I'm on Right now I'm on 2 a day for 3 weeks. Total of 2000 mg. daily.
Many on the Meniere's forum have gone to him and have been helped so much, that I decided to contact him. My ent didn't object, just does not support the anti-viral treatment, and my primary agrees with him but said he'd let me give it a try. I really appreciated that. It cannot hurt me, except give me side affects--and I have those (dizziness, nausea) already. This is day 2 and yes I am more dizzy but nausea isn't worse, so far. So--your thoughts on this would be appreciated. I'll let you know if I can tolerate the anti-virals and also , most important, if they help I've been on it now 5 days, more dizzy and louder tinnitus--which isn't unusual, I understand. So, in 3 weeks I'm supposed to know if this will help. Sure hoping and praying it will! Anyway, will let you know--watch for my post --please! View Thread
After contacting a Dr. in Mass., by email, who believe's Meniere's has a viral etiology, and treats his patients with a high success rate, with anti-viral meds. I got an email back from him explaining his dosage, etc. I sent that with my own letter to my primary, who--reluctantly--prescribed the generic for me to try for a 2 week period and then I have one refill. The doctor from Mass. said I will see an improvement in dizziness, nausea, and should see an improvement in hearing also, within 3 weeks of the high dose of anti-virals, and then will 'taper down' to only 1/2 to one tablet a day--1000 mg. for as long as needed. I'm on Right now I'm on 2 a day for 3 weeks. Total of 2000 mg. daily.
Many on the Meniere's forum have gone to him and have been helped so much, that I decided to contact him. My ent didn't object, just does not support the anti-viral treatment, and my primary agrees with him but said he'd let me give it a try. I really appreciated that. It cannot hurt me, except give me side affects--and I have those (dizziness, nausea) already. This is day 2 and yes I am more dizzy but nausea isn't worse, so far. So--your thoughts on this would be appreciated. I'll let you know if I can tolerate the anti-virals and also , most important, if they help! View Thread
Still dealing with inner ear issues and etc. Has caused such anxiety of late and depression--as any long term health issue does. Miss your encouraging words for sure. No more vertigo--that's a blessing, but still the dizziness and lately extreme nausea--not sure it it's medication caused or ??? Anyway, got medication changed yesterday, so we'll see if I improve because it has been 'intense' to say the least. I want to feel better for all the 'festivities' for the holidays. Hope you are doing well and your shoulder is better. Have a wonderful Christmas and enjoy the holidays! View Thread
Dr. M: Just saw your reply this morning--10/12! Had looked and looked to see if you had posted to me. Thank you so much for your encouraging words. You're so right--I do focus on the good things--I keep on going but have to tell you 'depression' is taking it's toll! I've tried 'yet more antidepressants x 2' and can't tolerate them. Keep taking Xanax off and on--when the anxiety gets bad due mostly to depression because there is no day without bad nausea and dizziness lately. Considering a new TMS procedure but will discuss it with my Primary and also do alot of research on it--Transcranial Magnetic Stimulation--non invasive but proving to help with depression. Just want to feel 'normal' again. Not like when I was 40! I can accept that. But daily bad nausea and dizziness and not being able to truly enjoy anything--but doing it anyway--well that's where I am. Again--thanks for the encouraging words. I'll let you know how things go--hopefully with better news next time. And that your shoulder gets 'much better' too. Thanks dear friend and doctor!! View Thread
Sure was discouraging to hear no more to do for the daily dizziness and nausea going on with my Meniere's. To say I'm depressed and etc. is putting it mildly. Even wrote to a doctor in another state asking if he could recommend a doctor in this area who would prescribe anti-virals, just to try and see if they help. I don't have vertigo anymore since surgery, but do have the really awful dizziness and nausea that has seriously altered quality of life. Many folks have been helped by anti-viral treatment but my doctor, who is excellent, just doesn't agree with it's success. Anyway, a long journey and just praying for this to ease or a good treatment for me and others who suffer from it. yanksgirlView Thread
12 sessions and about 2 weeks of herbs and 'no' the acupuncture didn't work. Neither could I take the anti-depressant, but gave it a week and was more dizzy and nauseated. So now just going thru depression and anxiety almost daily, but taking 1 to 2 Xanax daily helps some. Will see my Ent in Sept. so hoping there is more to help, but truly don't have alot of confidence that there will be. I keep on going and doing--and as I've said before--the 'joy' is not there, thus the depression. Miss talking to you--and getting 'cheered up' but understand your cutting back. Did post awhile back--but didn't get a response so figured you either hadn't seen it or felt there wasn't much more to say. Do hope you get that troubled shoulder taken care of--you are still needed here and with your family and again 'thank you' for all your encouraging words in the past--just read this one from 5 mos. ago--so thought I'd reply. View Thread
Well, couldn't take the new one I tried--only for one week and dizziness and nausea got really bad. Called Dr. and he said go off of it--even thought I said I'd 'tough it out' another week if he thought symptoms would finally ease. He said, 'no those are pretty significant'. So back to just the Valium and on occasion, the Xanax due to the anxiety of the Meniere's symptoms. See the Ent in Sept. Hoping for something good to come of it. Yanksgirl View Thread
Dr. Moser: Have tried everything to relieve symptoms of Meniere's. 12 acupuncture treatments, tried herbs--not for long as they didn't help. Dizziness and really bad nausea is daily--and the worst is the nausea! I've learned to live with the dizziness but this nausea is awful.
I've chewed ginger--helps short-term, drank ginger drink (that worked pretty well for awhile--I made with real ginger, taken meclizine, worn the wrist bracelets (nothing working).
I waken daily with it already or it begins shortly after I'm up! The dizzy feeling begins then too. Recent colonoscopy for another problem ruled out any problem there as did and endoscopy--back a couple of years ago.
I wasn't having nausea though like this, anytime.
My stomach cramps but not bad--just more of an ache--and I'm in the bathroom with very loose stool about 3 times a day--then nothing on another day! But pretty often daily. I know I'm depressed--this has just gone on so long and I read that depression causes nausea. The strange thing is that about 4 or 5 in the afternoon it seems to ease and I feel almost 'normal'. Also, it will come and go on some days. When it's bad I get really more depressed. As you may remember I don't do anti-depressants well, but may go back on one I didn't give much of a chance
May start that one tonight. The doctor told me if I did, to cut it in half since I'm so sensitive to these drugs. Xanax helps with the anxiety this causes (I take low dose and only 1 to 2 in a day sometimes), but doesn't ease the nausea. No vertigo has come back just daily dizziness and lately this awful nausea. Have called my ent and he just upped the Valium to 4 a day and it didn't help at all, so I've cut back to one a day now. Haven't seen him since last December either. I don't throw up, but try to and can't. Right now, after a bad day it's easing some, but decided to run it by you and see if you have any suggestions at all. Thanks. Hope you are enjoying not working so hard and your shoulder is better. Is surgery near again? hope not yanksgirlView Thread
Glad you had a 'nice vacation'! Tomorrow I'll begin trying an herbal compound--the acupuncture doctor is making himself--and if that and the acupuncture doesn't help within the next 3 weeks--I'm done! He is being very careful to not give me anything that would go badly with my meds---said he would not do that 'at all'! So, I'll give it a try. He told me he doesn't like to 'lose a patient' as no doctor does, but will know after about 3 weeks if he can help me. He seems very kind--very educated in the various types of acupuncture--and so I trust him. We'll see. In the meantime, the dizziness has been 'awful' and daily--with only small segments of relief. The nausea comes and goes--and the ginger helps but not as good as it did at first. Strange. My ent has me on 3 (2 mg) of the Valium now--and I'm to call him in 2 weeks. So--guess we go from there. Just keep praying for a 'respite' along the way. I did stop the 2 a day of Diovan as my b/p was in good control and I think it just spikes on occasion when this is really bad--like when I'm at the acupuncture office, etc. I just take one a day now. As to 'who should get this'--I wouldn't even wish it on my worst enemy! Though I don't think I have one--LOL Thanks again--take care, so good to hear from you!View Thread
I do think this doctor is a caring, very educated doctor in acupuncture.
He is trying to help me--and recommended the 'ginger root' drink morning and evening and it's helping the nausea so much.
The nausea is nearly non existent these last few days that I've been drinking it. Such a relief!!
The treatments have been 'different' to say the least. They have helped a few times for brief periods--and he said would, in time, last longer and I'd only need 'maintenance visits'. We'll see.
My b/p spiked last time (not sure if it was due to the acupuncture itself or just me--because I was truly feeling awful when I got there--bad head pressure and sooooo very dizzy! He took my b/p and he insisted I call my doctor--cardiologist--and I did and he had me increase (double) my b/p meds.
Instead of one a day, I now take 2--and it has lowered it considerably. In fact a bit 'low' in my opinion. So, I'm monitoring it to tell him and he may have me to cut back on it some. We'll see.
I am hoping and praying this horrible daily dizziness and pressure will ease with these acupuncture treatments. If not---it's like nothing else can be done. So---I'll let you know after a few more visits how I'm doing. Hope you're enjoying less time having to be here on the board. We miss you--I do for sure! Just waited until I had something more to report. Have a good summer--yanksgirl View Thread