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They occur when I lay down in bed, and when I turn on my side to get up, etc. And, on occasion--just while sitting up and really doing nothing (that's usually in a busy area, like a restaurant, etc.)
The feeling is like 'motion' inside my head' and it immediately makes me feel almost 'faint' and dizzy--and nausea comes on.
I get shaky and yesterday it happened as we were ordering take out dinner and I had 'looked up' at the menu. Suddenly I felt that movement in my head and my stomach 'turned over' and I was shaky--had to get to a table and sit.
We got our order right away and my husband pulled the car to the door and the restaurant young man--saw to it I got to the car ok.
Now, I'm 'anxious' that will occur again of course.
At the grocery store today I felt so lightheaded and nausea was going on (which has been daily for weeks now--sometimes mild and sometimes really bad), so was glad to get home and sit back.
It does help when I do that--as always.
Since my Ent doctor told me I'd have 'no more vertigo' after the shunt surgery, I've felt confident of that, but what could be causing these episodes of 'movement' in my head that feels like a 'spin' is coming on?
It will be a year in March since the ear surgery. Could it be that the shunt is 'clogged' or that the vertigo is going to recur--or is it something else--and if so, any idea as to what? The doctor said the shunt would 'not clog' because if it did, I'd have 'vertigo', then he followed that with 'you will not have vertigo anymore'!!
I even stopped in at the Urgent care to get b/p checked and it had 'spiked to 170/66--not really bad, and heart rate was ok too. They do that 'free to walk in patients' and I go there once in awhile to get mine checked.
Anyway, this extreme nausea and off and on 'near vertigo' feeling has me more anxious again. Have kept on keeping on, but still dealing with this. Very discouraged right now.
Thought of you this week--as a friend had her shoulder done. She's elderly- in her 80's and so far is doing ok--will start therapy tomorrow.
I wondered if you have decided on yet another surgery--if so, I wish you the 'best' of results this time. Yanksgirl
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They occur when I lay down in bed, and when I turn on my side to get up, etc. And, on occasion--just while sitting up and really doing nothing (that's usually in a busy area, like a restaurant, etc.)
The feeling is like 'motion' inside my head' and it immediately makes me feel almost 'faint' and dizzy--and nausea comes on.
I get shaky and yesterday it happened as we were ordering take out dinner and I had 'looked up' at the menu. Suddenly I felt that movement in my head and my stomach 'turned over' and I was shaky--had to get to a table and sit.
We got our order right away and my husband pulled the car to the door and the restaurant young man--saw to it I got to the car ok.
Now, I'm 'anxious' that will occur again of course.
At the grocery store today I felt so lightheaded and nausea was going on (which has been daily for weeks now--sometimes mild and sometimes really bad), so was glad to get home and sit back.
It does help when I do that--as always.
Since my Ent doctor told me I'd have 'no more vertigo' after the shunt surgery, I've felt confident of that, but what could be causing these episodes of 'movement' in my head that feels like a 'spin' is coming on?
It will be a year in March since the ear surgery. Could it be that the shunt is 'clogged' or that the vertigo is going to recur--or is it something else--and if so, any idea as to what? The doctor said the shunt would 'not clog' because if it did, I'd have 'vertigo', then he followed that with 'you will not have vertigo anymore'!!
I even stopped in at the Urgent care to get b/p checked and it had 'spiked to 170/66--not really bad, and heart rate was ok too. They do that 'free to walk in patients' and I go there once in awhile to get mine checked.
Anyway, this extreme nausea and off and on 'near vertigo' feeling has me more anxious again. Have kept on keeping on, but still dealing with this. Very discouraged right now.
Thought of you this week--as a friend had her shoulder done. She's elderly- in her 80's and so far is doing ok--will start therapy tomorrow.
I wondered if you have decided on yet another surgery--if so, I wish you the 'best' of results this time. Yanksgirl
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I'll look forward to reading your 'Falling apart' Blog! Is that what's happening to us? I truly feel like it most days. I think I could deal with most anything if this 'anxiety and depression' would ease.
Many folks have worse things than I do and it doesn't affect them in this way---and I have 'so much' to be thankful for. So, it's good to have a 'listening ear' here who truly 'cares'.
I know you said another surgery was 'out of the question' for you at one time--but we all 'change our minds' when things get so bad we just 'have to do something'. I do understand.
Take care
YanksgirlView Thread
My primary has me on Celebrex and sent a pain killer when it was bad about 3 weeks ago. That helped and I thought it was ok.
Now I have one finger (pointer finger) numb, like it's asleep that is driving me crazy! Don't laugh

Really, it can get very 'uncomfortable' at times.
It's only numb underneath and up the sides and occasionally the base of the thumb and the lower part of the middle finger follows, but this one finger is 'bad'!
I have Raynaud's so thought that was 'it' but all the fingers respond to an attack with it, and this is just the one!!
. I've thought it might be 'carpal tunnel', I've done exercises for that--wore a brace a few times too.
The thing is, when my neck hurts, the pain radiates down the outside of my arm too and I'm wondering if this is all connected in some way.
If this were you, would you see a Neurologist, a Neurosurgeon, or just call your Primary? I just know the primary will say to call one of the others, maybe not.
At times the finger feels like it's 'waking up' with needles and pins throbbing, then it gets soooo cold and is 'asleep again'!
I always get these 'weird things'.
Also, I'm now on Prozac (or trying it) to help deal with the anxiety of the Meniere's symptoms--and just have taken it about 5 days now. Nausea is bad! Hope I can take it, for as I've told you, I don't do meds well.
So,--just needed medical advise and I have to tell you, with some other issues I"ve posted on WebMD, about my husband and myself--on other communities--they 'do not' answer promptly---if at all!
You're a 'gem' to do this and as promptly as you do. It means alot to get an answer, even if it's not what we want to hear. Hope that shoulder is doing better for you---I think of you often and have missed our chats--but the ear thing is as my Ent doctor told me--my 'new normal'! No fun! Yanksgirl
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To you--thank you for your time, energy and 'common sense, linked with good medical training' for your endless hours giving us 'free advise' and encouragement!
I want to wish you and yours the best of everything during these days and that your shoulder ailment will get 'better and better'!
Thank you again for all you do for all of us! God Bless!
yanksgirl
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Yes, it was good of him to be direct with me--he could have said, 'let's try this or that' and not be really sure it would work. He did encourage me but said nothing more medically--that he knew of, right now was available. So glad he's a good-caring doctor--like you are too.
I actually drove today--first time in months. I told my husband, if I'm not going to have vertigo, my head isn't going to be better so I need to learn to 'drive' in spite of it. I love driving and he even says I'm a good driver. So, I did some today--short distances but 2 times today! yea!
Talk to you soon. Take care --View Thread
He was kind--pretty straight forward, and said he wishes he could offer something more--to which my husband said, 'we don't know anymore now than when we came in here'--and that is his way of showing his concern for me--and I understand that. The doctor's reaction showed that he probably had a different take on it.
He replied that he certainly would offer something if he could, and I said, 'He knows that--but just sees me dealing with this and is concerned'! He really is a good doctor and a caring one too.
He said if anything new is learned that will help, he'd certainly let us know. He did 'assure me' that I'd have 'no more vertigo'!!
He was very adamant about that!
That is good--but I told him my symptoms are daily and I feel like I'm 'this close' (holding up my fingers about an inch apart to demonstrate), to having vertigo when my head pressure is really bad.
He agreed with the Neuro doctor I saw recently that some of my symptoms could be migraine related--all the symptoms without the pain--but mostly he leans toward it being the inner ear stuff--Meniere's!
Anyway--he said he didn't need to see me until one year from now.
So--I have to figure out (and I'm trying so hard) how to live my life with in the 'new normal' mode!
Guess it's something we all have to do--like you too, with your shoulder problem. Anyway---just updating you and wanting to wish you a 'Merry Christmas' and a 'Happy New Year'.
Hoping your MRI has shown your doc's something that can help you. It's never good to hear--there's nothing more to do but 'accept it'! But 'it is what it is'! Take care---yanksgirl
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Have a wonderful Thanksgiving--with your family.
Also, I hope your MRI shows that something 'other than surgery' is an option for you.
I agree, When you have a medical problem and no solution, it's very discouraging--but we keep on keeping on, trusting that one day we'll be 'all better'! If not, that we deal with it better anyway.
Thanks for your thoughts once again.
yanksgirl
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First--hoping you are doing some better with that shoulder pain! Pain is difficult to live with on any part of the body!!
As for me--long story short (same old--same old).
Got a 2nd opinion yesterday with a different Neuro doctor, to see if anything neurologically could be going on with my head pressure. He did lots of neuro tests--I'm sure you're familiar with--and said he agreed with the Neuro doc I had seen 2 years ago, except he doesn't call my head pressure 'silent migraine' because there is 'nothing silent' about it.
It's pain--in the form of pressure. I questioned why I have it all day everyday and it's caused --along with the Meniere's and the family stresses, a great deal of anxiety and depression.
He said if I could take it, he would have prescribed Nortryptyline as the other Neuro had done 2 years ago, to treat both head pressure and depression.
Since I couldn't take it then and so many meds. that I can't take, , that wasn't an option.
I told him about a med my other doctor mentioned and I had not tried yet, Remeron. He said that was a good one for the same symptoms and he would encourage me to give it a try. So, I plan to do that.
He wanted to know on a scale of 1-10 my discomfort level and what eased it. I told him most days are 8-10 and only sitting back in my chair or lying down helps. The nausea has gotten to be daily too.
He said the dizzyness is the inner ear but the head pressure is 'migraine'. So, I'm going to give the medication a try. I really hope this one 'works' and I can tolerate it.
'One day at a time" is seems. Have a 'wonderful Thanksgiving'--talk to you soon. yanksgirl
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