Complicated? I'm taking that as a compliment--LOL Yes, I'm certainly keeping alot of folks working---and finding out with my E.R. trips, alot of other people are doing the same thing. It is bizarre for sure---how one person's misfortune helps another's fortune--but it is what it is!
This next week has to be less 'dramatic'--I kid everyone who asks by telling them" I wonder what 'drama' I can create next week?" They laugh with me, encourage me and pray for me and that's what friends do.
Thank you Dr. M. for the kind comment--back at you! View Thread
Yes--I knew that! Today my nose is better but still burns and a stinging pain every so often and I sneeze and sneeze--but it's better so hopefully in a few days it will be 'alot better'. By the way the polyp biopsy in the colon was benign--so that was good news. I start back on the blood thinner next week. Also see the doctor who has me on it--the Cardiologist, so we'll discuss if I need to stay on it since my heart is in sinus rhythm. However, with A-fib, it can go into A-fib without you knowing it, so there's the chance of clots, so I wonder if I'll have to stay on it? We'll see. Have a good weekend. yanksgirlView Thread
I always have 'something' peculiar--LOL! However, finding others when I asked the question online, describing the exact after effects during the same type of procedure and anesthesia, and using the nasal tubing w/oxygen makes me feel I'm not the only one--not that it helps the symptoms, but does add a bit of comfort knowing this isn't just 'me again'! I think Propofol (? spelling), is the name of the anesthesia not propanol--and I don't think it was that at all. I remember when they put the Oxygen tubes in my nose--they seemed 'very tight'--and I reached up and sort of moved them a bit as they were 'pressing in hard' on my nose. Then they really pulled the chin portion up tight--so it wouldn't move, I'm sure. The procedure went well--I felt nothing. Still having some bleeding today--more than I would normally, but certainly not like it was when I went to the E.R. Probably due to the procedure itself. I'm off the blood thinner until next Monday--my Cardio doctor's office returned my call and told me to not resume it until then. I did use a 'netti-pot' with a 'dash' of salt in warm water, last night and this morning, and my nose is better--it still stings and I sneezed alot this morning and nose ran like a sieve awhile, but I got a saline spray at the store today and will used it a moment ago and will another time today--but so far, it's not nearly as bad as yesterday. I always 'fear' anesthesia somewhat, but other than nausea (and I had none yesterday), I've done fine with it as a rule. Unless they don't give enough prior to or after a particular procedure--like colonoscopy and endoscopy. I told them---'give me the meds 'before the scope' and don't stop them until the scope is out'! ha And the CRNA--did a good job of that---as I felt nothing! Thanks for your input---I just wanted to be sure others know this can happen to them--and for anesthesia to know it and be prepared for the questions. So I did talk to someone in that dept. yesterday afternoon--they said it could have been the tubes that irritated the nose and it should be ok in a few days. So--now we have another thing to think about when 'going under'. You may be right about 'biting on a big stick! LOL yanksgirlView Thread
Hi--on and on it goes. Had 'alot' of bleeding (internal hemorrhoids), got really scary-- that sent me to the E.R. and an overnight stay at a nearby hospital last night and had colonoscopy today.
During the procedure I had oxygen tubes in my nose and they used Propanol of course. I woke in the recovery room and a strange reaction occurred. The one side of my nose--not the side I laid on--but the other side--was completely stopped up. I attributed it to the O-2 tubes. Began to sneeze soon after I woke and when I got to my room the sort of 'stinging' would occur in that side only, my nose ran and I'd blow and blow---and this has gone on 'all day' off and on--especially while trying to eat dinner. It's a miserable feeling. I keep sneezing and blowing!! I did a web search and found out the exact description happening to several people--following procedures using the Propanol and also using nasal oxygen tubes--most folks say the symptoms made them miserable--as it is me now--and went away in a few days.
Can I use a saline spray? I'm afraid to try any others due to my meds and how they interact with others. Or should I just give it time to 'go away'? I called the floor nurse again to ask her if she remembered me telling her about it, said that she did and it was 'new to her' too. I also left a message with anesthesia dept. on their answering machine for someone to call me as I want to find out for sure.
Many folks on this site that I found had a similar experience reported--almost word for word, like mine---said they were told it could be the tubes or the Propanol--but didn't mean they couldn't have either, just meant they were having a reaction but not an allergic one---ever heard of this happening?
I'm home, resting and fine--I have -internal hemmorhoids and blood thinner I take is causing the excessive bleeding and a polyp was biopsied but nothing suspicious there. I have to lay off the blood thinner for a few days but have to be on it due to A-fib. Just thought you might have heard of this, working with so many ent patients. Thanks. yanksgirlView Thread
Thanks Dr. Moser--I too have a problem with the answer of 'it's the weather'. Was it the weather that made me feel extra pressure when coming up the stairs a few mins. ago--and that has been off and on worse the last few months? I know Meniere's has serious side effects from reading other's complaints (which I'm not doing as the therapist told me to refrain from that for awhile)--but she didn't say I couldn't talk to you--but of course I didn't tell her I did. LOL Anyway, the Ent didn't feel he needed to see me until Dec. so guess I have to 'cope' the best way I can. I know depression can cause head pressure (at least I've read that) and other symptoms so maybe it's 'all in my head'. We'll see. You' need a good relaxing weekend-- yanksgirlView Thread
Beautiful morning here in the Midwest! Finally some rain the last few days and some sun and more rain tonight. Hope you are feeling better. I did get tests done this week--checking out my heart--w/EKG and also electrolytes including sugar, and magnesium and kidney function and potassium levels---all normal. Since my head has been 'so bad' with pressure and light headedness I was concerned enough to check in with the cardio doctor's office and he ordered the tests. All ok--that's good. Still, I keep saying 'why is this head thing not getting any better'? So I decided to call the Ent office and tell him how badly I've been feeling. His nurse called--said 'it's the weather'! I said, 'Really'?? It's only been stormy and rainy about 2 weeks off and on but this bad head of mine has been bad all summer--she said, 'he said it's the weather'!! Evidently other patients are having the same problems--I think she said alot of calls were coming in so I guess Meniere's will continue to make me feel this way---from now on. That's discouraging. The weather is always fluctuating. I'm reading the 'Feel Good' book, trying to learn how to 'cope' better with something I'm evidently going to have to live with. Anyway, does the differing weather patterns make your shoulder worse? I know many folks say their 'bones' ache more with those changes. So, I just have to 'deal with it'. Still have to sit back and let my head calm down---often during the day. Just having a hard time accepting the fact that there is nothing can be done. But---guess I have to. Talk to you soon. yanksgirlView Thread
Well--I certainly do 'hope' you get better and I can understand your not wanting to have surgery yet again. Hopefully, time will be a 'healer' for you this time. Until then, you are optimistic and keep busy with this board and your work at the clinic so I see you being very 'positive' in your approach.
Thanks for the encouragement and I'll keep you posted and get an update on your progress too. Who knows---we may both be 'well' or at least be 'better' in a few weeks/months ??? yanksgirlView Thread
Hope today is better for you and your shoulder is getting a bit stronger. Don't get discouraged, it very well could take a few more months. Are you going to therapy still? My hubby is for his back--just started, reluctantly--LOL As for me, my head pressure that no one has answers for has been especially bad--just goes from mild to really making me feel like I need to 'sit back' or I'll fall back! I did see a therapist for the first time and do like her. She's suggested two books to help with anxiety and depression that she thinks will help me with all I'm dealing with--and the Meniere's symptoms too. Though she certainly couldn't say it would make the head pressure 'go away', just help me 'cope better'. Sure hope the books help. They have Cognitive therapy techniques in them she said for me to do. So, we'll see. She also said for me to 'for awhile' not to look at 'forums' or do medical research 'online'! I agreed but did explain to her that I have a layman's education on medical things and that I research and read with an 'inquiring' mind, not a gullible one--not those words, but did say I get encouragement and help at times and other times it's depressing and I stay off the forum--the Meniere's one-- awhile. Still, only those who have this truly understand. I'll follow her advise since I'm asking her help though---and see if it helps. She said I may never be 'rid' of this head pressure thing. But hopefully, we can get me to a point of dealing with it better. Either with or without meds. Preferable without. I surely hope so. I'm keeping busy and she said that's important. Some days though--you just can't as I'm not working, and you can't 'go' all the time and reading is something I do off and on and watch TV--keep up with the house and etc. Only so much 'busy-ness' one can do! Then you just 'deal' with it. Take care and I'll talk to you soon. yanksgirl :_View Thread
How very frustrating for you to have gone thru 2 surgeries and still not have the full use of your arm. Your doctor sounds like mine--when he said, give it 12 to 18 mos.! I thought--what???? So sorry this has happened will pray that this time, even before a year, you get better and/or full use of your bad arm.
Yes, you're so right --patients have to be their own advocates and so many just say 'if my doctor prescribes' it's ok---and doctors are well meaning but cannot know all the side effects and contra-indications of different meds--BUT--they should check them out before prescribing---because most patients don't and they 'pay' for it many times. Thanks for your reply. Take care of yourself---you 'will' improve---I just know it!!! yanksgirlView Thread
Well, I did get a hearing aid for my 'good ear' about 3 weeks ago. Wasn't happy with it so went back today for an adjustment in the 'programs' and will know more in a few days as to how it's working. I couldn't get it in my doctor's office with the audiologist there--due to insurance coverage--so had to do an 'online' one, but did see a person, a licensed hearing specialist' and she had the audio tests from my Ent's office that I had sent to her and she took it from there. The digital behind the ear kind like I have on the other side. Not sure it's as good a quality but we'll see. Also have an appt. with a 'therapist' next week--due to the ongoing anxiety/depression that comes and goes with all this meniere's thing and other things and the Psychiatrist thought it was a good idea--as he is hesitant to give me meds since I don't do them well. He did offer to try one (and I've only seen him 2 times now) but when I went to get it filled, found out I couldn't take it with my heart meds for A-fib. I checked and double checked and then called my cardio doctor and he said 'no' to it. Makes you go 'hmmmm'!
If I hadn't done the checking--I'd have taken it because the pharmacist at first said it was ok--then I read about it and called them and they advised me calling my cardio doctor. You do have to be your own advocate for sure. The Xanax I'm tapering off of--slowly, as I'm not always having anxiety, and the doctor said I could do that. But I want to have it available when needed, so now I'll see the therapist and hopefully in time--soon I hope, things emotionally will improve. It's been a journey, as you well know for sure. I'm getting out and doing things, just still not truly enjoying them due to this 'ongoing pressure' in my head. Still a mystery but may all be stress related--no one seems to know.
How is that shoulder of yours doing? I can only imagine you have to get discouraged too--so hang in there--we all care about you here--you've helped all of us so much and have been a 'true friend' and medical advisor a long time to me and most of all 'encourager'. Thanks so much. Yanksgirl View Thread