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I did get tests done this week--checking out my heart--w/EKG and also electrolytes including sugar, and magnesium and kidney function and potassium levels---all normal. Since my head has been 'so bad' with pressure and light headedness I was concerned enough to check in with the cardio doctor's office and he ordered the tests. All ok--that's good.
Still, I keep saying 'why is this head thing not getting any better'? So I decided to call the Ent office and tell him how badly I've been feeling. His nurse called--said 'it's the weather'! I said, 'Really'?? It's only been stormy and rainy about 2 weeks off and on but this bad head of mine has been bad all summer--she said, 'he said it's the weather'!! Evidently other patients are having the same problems--I think she said alot of calls were coming in so I guess Meniere's will continue to make me feel this way---from now on. That's discouraging. The weather is always fluctuating. I'm reading the 'Feel Good' book, trying to learn how to 'cope' better with something I'm evidently going to have to live with. Anyway, does the differing weather patterns make your shoulder worse? I know many folks say their 'bones' ache more with those changes. So, I just have to 'deal with it'. Still have to sit back and let my head calm down---often during the day. Just having a hard time accepting the fact that there is nothing can be done. But---guess I have to. Talk to you soon.
yanksgirlView Thread
Hopefully, time will be a 'healer' for you this time. Until then, you are optimistic and keep busy with this board and your work at the clinic so I see you being very 'positive' in your approach.
Thanks for the encouragement and I'll keep you posted and get an update on your progress too. Who knows---we may both be 'well' or at least be 'better' in a few weeks/months ???
yanksgirlView Thread

Are you going to therapy still? My hubby is for his back--just started, reluctantly--LOL
As for me, my head pressure that no one has answers for has been especially bad--just goes from mild to really making me feel like I need to 'sit back' or I'll fall back!
I did see a therapist for the first time and do like her. She's suggested two books to help with anxiety and depression that she thinks will help me with all I'm dealing with--and the Meniere's symptoms too. Though she certainly couldn't say it would make the head pressure 'go away', just help me 'cope better'. Sure hope the books help. They have Cognitive therapy techniques in them she said for me to do. So, we'll see. She also said for me to 'for awhile' not to look at 'forums' or do medical research 'online'! I agreed but did explain to her that I have a layman's education on medical things and that I research and read with an 'inquiring' mind, not a gullible one--not those words, but did say I get encouragement and help at times and other times it's depressing and I stay off the forum--the Meniere's one-- awhile. Still, only those who have this truly understand. I'll follow her advise since I'm asking her help though---and see if it helps. She said I may never be 'rid' of this head pressure thing. But hopefully, we can get me to a point of dealing with it better. Either with or without meds. Preferable without. I surely hope so. I'm keeping busy and she said that's important. Some days though--you just can't as I'm not working, and you can't 'go' all the time and reading is something I do off and on and watch TV--keep up with the house and etc. Only so much 'busy-ness' one can do! Then you just 'deal' with it. Take care and I'll talk to you soon. yanksgirl :_View Thread

So sorry this has happened will pray that this time, even before a year, you get better and/or full use of your bad arm.
Yes, you're so right --patients have to be their own advocates and so many just say 'if my doctor prescribes' it's ok---and doctors are well meaning but cannot know all the side effects and contra-indications of different meds--BUT--they should check them out before prescribing---because most patients don't and they 'pay' for it many times. Thanks for your reply. Take care of yourself---you 'will' improve---I just know it!!!
yanksgirlView Thread
Also have an appt. with a 'therapist' next week--due to the ongoing anxiety/depression that comes and goes with all this meniere's thing and other things and the Psychiatrist thought it was a good idea--as he is hesitant to give me meds since I don't do them well.
He did offer to try one (and I've only seen him 2 times now) but when I went to get it filled, found out I couldn't take it with my heart meds for A-fib. I checked and double checked and then called my cardio doctor and he said 'no' to it.
Makes you go 'hmmmm'!
If I hadn't done the checking--I'd have taken it because the pharmacist at first said it was ok--then I read about it and called them and they advised me calling my cardio doctor. You do have to be your own advocate for sure.
The Xanax I'm tapering off of--slowly, as I'm not always having anxiety, and the doctor said I could do that.
But I want to have it available when needed, so now I'll see the therapist and hopefully in time--soon I hope, things emotionally will improve. It's been a journey, as you well know for sure. I'm getting out and doing things, just still not truly enjoying them due to this 'ongoing pressure' in my head. Still a mystery but may all be stress related--no one seems to know.
How is that shoulder of yours doing? I can only imagine you have to get discouraged too--so hang in there--we all care about you here--you've helped all of us so much and have been a 'true friend' and medical advisor a long time to me and most of all 'encourager'. Thanks so much. Yanksgirl
View Thread
Glad to have you back.
Take care.
yanksgirlView Thread
The price was good with my insurance covering all but about $500.
I'm having a problem putting it in, believe it or not. It has a small wire that is at the end of the 'plug' that goes into the canal and I'm supposed to push the plug/or head of the aid, into my ear with my thumb--and the small wire just lies in the lower portion of the ear hardly visible if done right, and the over the ear wire portion fits snug. Then I put the hearing aid over the back of my ear. Well, neither was doing either of those things but I've practiced until I've gotten my ear a bit sore--ha Finally have gotten it better. It has 4 programs--including 'telecoil'. My other one has that too, but with the severe loss of hearing in the other ear, I can't use it on the phone.
I will try this one as my hearing loss is about 30 % in this ear. I've tried the different programs watching TV--can't tell much difference and there is a slight 'noise-like static at times and/ or feedback when I change programs. The hearing therapist worked a long time with me getting the sound right-on the computer and so I'll give it time. I can return it in 70 days--a long time really--and get a full refund or exchange it if necessary. I hope I don't have to do that.
For some reason the last few days my head has not been good.Lots of stress going on though with funerals to attend of close friends and family (in-law) connections dying and some family issues--we all have from time to time. Stress always makes my head worse. Course the heavy pressure is there most of the time but my nausea has nearly gone so I've been out and about more---just really wish this feeling of lightheadedness---caused by the pressure would ease. It's been bad, as I said for a couple of days now. So, that's the latest.
Hope your shoulder is doing well and that you're all 'rested' up from your vacation. Welcome back! :
yanksgirlView Thread
We got the answer we were looking for==as always! Thanks again.View Thread

When I said 'let me tell you what the MRI tech told me when he was doing the MRI--he first said it would take only 20 mins. then he'd do the dye injection and add another 5 mins. or so.
He pulled me out in 20 mins. said the Radiologist said the order was a bit 'unclear' so he wanted me in again for a 'deeper look into the ear' and it was another 24 mins. then the dye injection and another 14 or so minutes.
I explained this to his nurse and she said, 'I'm writing all this down', then called back--3 hours later and said he still says this is nothing that needs antibiotic treatment, but is just part of the surgery still healing and will take time and 'not to worry'!
Easy for them to say!
View Thread
I could be wrong too--I'm sure Dr. M will set us straight on this.
yanksgirlView Thread
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