Well, I think lack of sleep triggers the 'bad episodes' of head pressure, then the depression it causes, because after waking very early in the a.m., not sleeping and having a bad dream--I was a 'mess' most of the day. I then 'give in' to 'this is never getting better' thinking! I know--that's not good! Talked to the therapist--next day, and felt much better just verbalizing it all. I had a pretty good weekend, got out, last week, went for a long drive, looking at the changing colors, etc attended church today,
Today felt the awful pressure but was having a fairly good day in spite of this pressure. So, we stopped after church to eat in a restaurant. The pressure got worse and when the food arrived I was too nauseated to eat, so I headed to the car, hubby took care of the bill and bringing our dinner home. I headed to bed, slept 2 hours! Still feeling nauseated--ate about 1/2 of dinner brought home after my 'nap'. Here I was doing pretty good for a few days--never without symptoms but learning to deal with them, walking--getting out, etc. Today I felt like I was about to have a vertigo episode (absent now since ear surgery 7 mos. ago);, and only had the nausea today--no vertigo, just bad pressure. So, tonight, I'm 'wiped out' and just resting.
I know there are no answers, Dr. Moser--just needed to talk about it. I am glad to know that when you retire, you'll still 'be here'! That made my day when I read that! Take care--yanksgirl View Thread
That's funny---that they might have to sit on the floor-- not really!! Glad you have help for that part of your practice. So sorry your shoulder hasn't responded, but your comparison is well taken. I could be 'totally deaf' too, but thank God, I'm not!
No vertigo anymore--so far--but that is what it feels like is 'about to happen' when this is really bad. So, I'm praying that doesn't return too. I'm so thankful the fear of that is somewhat diminished. I'm sure I'll have 'some neuro' tests but hopefully nothing 'scary' or difficult. I'm taking my MRI films of my head/ear with me that I had in July, so don't expect to have to do that again. 4 1/2 years to retirement? You're still young! I retired 11 years ago--early retirement--but it seems like yesterday at times. What will we do without you here? Or will you keep up the board forum? Anyway, I 'can't worry' about that too!! LOL Have a good week. Thanks for your input. I'll let you know any updates. yanksgirlView Thread
Hi--hope you are doing better--or at least better than I have been!
Same old thing with me--the head pressure and nausea and really bad light headedness that is making doing much and enjoying it a real 'chore'.
I do it anyway--like a wedding and reception and out to dinner and church, etc. Also a get together with friends. I do it all--but am pretty 'miserable' during much of it due to the above symptoms. Just don't say much--not to most folks--only those who really ask and want to know.
So--I saw the Ent doctor and he said he 'wishes he could give me better news, but really, there is nothing he can do at this point to help--and he wishes there was!! " He was very kind and I appreciated that. I had to see him early because I had another trip to the E.R. for what I thought was the A-fib returning, and it was just all due to the inner ear ( all the above symptoms, plus erratic heart beat). I was told by my Cardio doctor's office to go to the E.R. because we never know if my heart is holding it's normal sinus rhythm or not, without checking and he was out of the office so the E.R. was where they sent me. So, I got in to see my ear doctor sooner than expected and told him, they said it was all due to my Meniere's.
I did get a referral from him to get a Neuro--consult. I can't get in until the end of November--but am on a waiting list for sooner.
Not sure this will help but am hoping he might 'shed some light' on the what's going on that maybe is being 'missed'. I keep having these off and on hand trembling episodes, and my head will 'jerk' at the strangest times. Probably just stress, but sure is unnerving for sure.
Also, my Raynaud's has been showing up more often, even in my toes. I feel like my feet are asleep/numb (no pain) about half way up on each foot---from the toes. Weird, I know--but that's me!
Anyway, maybe a Neuro doctor will have some insight or help us figure it out. Sure hope so. If not, as the Ent doctor said, 'it is what it is' and hopefully, it will just end as it began--I think I've heard it referred to as 'burn out' with Meniere's. I've written alot, but wanted to bring you up to date. yanksgirlView Thread
Complicated? I'm taking that as a compliment--LOL Yes, I'm certainly keeping alot of folks working---and finding out with my E.R. trips, alot of other people are doing the same thing. It is bizarre for sure---how one person's misfortune helps another's fortune--but it is what it is!
This next week has to be less 'dramatic'--I kid everyone who asks by telling them" I wonder what 'drama' I can create next week?" They laugh with me, encourage me and pray for me and that's what friends do.
Thank you Dr. M. for the kind comment--back at you! View Thread
Yes--I knew that! Today my nose is better but still burns and a stinging pain every so often and I sneeze and sneeze--but it's better so hopefully in a few days it will be 'alot better'. By the way the polyp biopsy in the colon was benign--so that was good news. I start back on the blood thinner next week. Also see the doctor who has me on it--the Cardiologist, so we'll discuss if I need to stay on it since my heart is in sinus rhythm. However, with A-fib, it can go into A-fib without you knowing it, so there's the chance of clots, so I wonder if I'll have to stay on it? We'll see. Have a good weekend. yanksgirlView Thread
I always have 'something' peculiar--LOL! However, finding others when I asked the question online, describing the exact after effects during the same type of procedure and anesthesia, and using the nasal tubing w/oxygen makes me feel I'm not the only one--not that it helps the symptoms, but does add a bit of comfort knowing this isn't just 'me again'! I think Propofol (? spelling), is the name of the anesthesia not propanol--and I don't think it was that at all. I remember when they put the Oxygen tubes in my nose--they seemed 'very tight'--and I reached up and sort of moved them a bit as they were 'pressing in hard' on my nose. Then they really pulled the chin portion up tight--so it wouldn't move, I'm sure. The procedure went well--I felt nothing. Still having some bleeding today--more than I would normally, but certainly not like it was when I went to the E.R. Probably due to the procedure itself. I'm off the blood thinner until next Monday--my Cardio doctor's office returned my call and told me to not resume it until then. I did use a 'netti-pot' with a 'dash' of salt in warm water, last night and this morning, and my nose is better--it still stings and I sneezed alot this morning and nose ran like a sieve awhile, but I got a saline spray at the store today and will used it a moment ago and will another time today--but so far, it's not nearly as bad as yesterday. I always 'fear' anesthesia somewhat, but other than nausea (and I had none yesterday), I've done fine with it as a rule. Unless they don't give enough prior to or after a particular procedure--like colonoscopy and endoscopy. I told them---'give me the meds 'before the scope' and don't stop them until the scope is out'! ha And the CRNA--did a good job of that---as I felt nothing! Thanks for your input---I just wanted to be sure others know this can happen to them--and for anesthesia to know it and be prepared for the questions. So I did talk to someone in that dept. yesterday afternoon--they said it could have been the tubes that irritated the nose and it should be ok in a few days. So--now we have another thing to think about when 'going under'. You may be right about 'biting on a big stick! LOL yanksgirlView Thread
Hi--on and on it goes. Had 'alot' of bleeding (internal hemorrhoids), got really scary-- that sent me to the E.R. and an overnight stay at a nearby hospital last night and had colonoscopy today.
During the procedure I had oxygen tubes in my nose and they used Propanol of course. I woke in the recovery room and a strange reaction occurred. The one side of my nose--not the side I laid on--but the other side--was completely stopped up. I attributed it to the O-2 tubes. Began to sneeze soon after I woke and when I got to my room the sort of 'stinging' would occur in that side only, my nose ran and I'd blow and blow---and this has gone on 'all day' off and on--especially while trying to eat dinner. It's a miserable feeling. I keep sneezing and blowing!! I did a web search and found out the exact description happening to several people--following procedures using the Propanol and also using nasal oxygen tubes--most folks say the symptoms made them miserable--as it is me now--and went away in a few days.
Can I use a saline spray? I'm afraid to try any others due to my meds and how they interact with others. Or should I just give it time to 'go away'? I called the floor nurse again to ask her if she remembered me telling her about it, said that she did and it was 'new to her' too. I also left a message with anesthesia dept. on their answering machine for someone to call me as I want to find out for sure.
Many folks on this site that I found had a similar experience reported--almost word for word, like mine---said they were told it could be the tubes or the Propanol--but didn't mean they couldn't have either, just meant they were having a reaction but not an allergic one---ever heard of this happening?
I'm home, resting and fine--I have -internal hemmorhoids and blood thinner I take is causing the excessive bleeding and a polyp was biopsied but nothing suspicious there. I have to lay off the blood thinner for a few days but have to be on it due to A-fib. Just thought you might have heard of this, working with so many ent patients. Thanks. yanksgirlView Thread
Thanks Dr. Moser--I too have a problem with the answer of 'it's the weather'. Was it the weather that made me feel extra pressure when coming up the stairs a few mins. ago--and that has been off and on worse the last few months? I know Meniere's has serious side effects from reading other's complaints (which I'm not doing as the therapist told me to refrain from that for awhile)--but she didn't say I couldn't talk to you--but of course I didn't tell her I did. LOL Anyway, the Ent didn't feel he needed to see me until Dec. so guess I have to 'cope' the best way I can. I know depression can cause head pressure (at least I've read that) and other symptoms so maybe it's 'all in my head'. We'll see. You' need a good relaxing weekend-- yanksgirlView Thread
Beautiful morning here in the Midwest! Finally some rain the last few days and some sun and more rain tonight. Hope you are feeling better. I did get tests done this week--checking out my heart--w/EKG and also electrolytes including sugar, and magnesium and kidney function and potassium levels---all normal. Since my head has been 'so bad' with pressure and light headedness I was concerned enough to check in with the cardio doctor's office and he ordered the tests. All ok--that's good. Still, I keep saying 'why is this head thing not getting any better'? So I decided to call the Ent office and tell him how badly I've been feeling. His nurse called--said 'it's the weather'! I said, 'Really'?? It's only been stormy and rainy about 2 weeks off and on but this bad head of mine has been bad all summer--she said, 'he said it's the weather'!! Evidently other patients are having the same problems--I think she said alot of calls were coming in so I guess Meniere's will continue to make me feel this way---from now on. That's discouraging. The weather is always fluctuating. I'm reading the 'Feel Good' book, trying to learn how to 'cope' better with something I'm evidently going to have to live with. Anyway, does the differing weather patterns make your shoulder worse? I know many folks say their 'bones' ache more with those changes. So, I just have to 'deal with it'. Still have to sit back and let my head calm down---often during the day. Just having a hard time accepting the fact that there is nothing can be done. But---guess I have to. Talk to you soon. yanksgirlView Thread
Well--I certainly do 'hope' you get better and I can understand your not wanting to have surgery yet again. Hopefully, time will be a 'healer' for you this time. Until then, you are optimistic and keep busy with this board and your work at the clinic so I see you being very 'positive' in your approach.
Thanks for the encouragement and I'll keep you posted and get an update on your progress too. Who knows---we may both be 'well' or at least be 'better' in a few weeks/months ??? yanksgirlView Thread