I am sorry you have been suffering for so long. I've been struggling with lightheadedness for nearly a year. I've had lots of blood work done,2mris, 2 Baer tests. Finally a spinal tap was done and showed I had spinal meningitis and sarcoidosis. I have been on 40 mg of prednisone for a couple of months. Just had another spinal tap and the results were good. However my lightheadedness hasn't changed at all. I'm on long term disability with my company and am now trying to get on ssi how likely I'll be approved is unknown since my doc has no explanation for my condition.
Next month he is sending me to baptist medical center. In hope the neurology dept is supposed to be excellent.
I have been told that aces like ours a lot of the time cannot be diagnosed.