Hi, I'm new to this board but not new to colorectal cancer. I was diagnosed July of 2007 with stage 2 cr cancer, had the radiation/chemo and then a transanal excision November of 2007. March of 2009 the cancer came back to my lung, lymphnodes in my chest and in the sacrum. Did 21 months of oxi,xeloda and avastin, ironetican, xeloda and avastin, just xeloda (for a chemo break), had 34 rounds of I.M.R.T. to the chest nodes and cyber knife for the sacrum. Was told a couple of weeks ago after my first scan after the cyber knife that it wasn't gone and 3 spots were on my right lung. Oncologist said no more options. I was pretty upset at first. I decided to go to a big cancer hospital in Milwaukee (I live in the boonies of NE WI) just to see if I had any options. It looks like they don't think it's as bad as my onc. I had a consultation last week with a interventional radiologist who took my case to the tumor board. I now have an appt. next Fri. with their medical oncologist and cardiothoracic surgeon. So we'll see what they have to say next Friday, but so far there seems to be some hope. Between that and my faith in the Lord, I'm feeling pretty positive right now.View Thread
I pray your still doing well Mark. Your so right, faith in God is what's important. "Our faith, honors HIS faithfulness!".
I had my middle lobe of R lung removed and nodes in chest. Problem...scan 1 month later showed surgeon missed one node:( Not happy, but I understand they're human. For the past 4 months I've been dinked around by the colorectal surgeon in Milwaukee. Went back to the cr surgeon that did my excision and things are moving now. He prayed with me before I left the office. I'd rather have a surgeon that is a Godfilled man, than a surgeon that looks at me as a number. So hopefully the node in the sacrum will come out shortly then I can have them get rid of the one in the chest. Godwilling there isn't any more with them messing around for so long.
Update me on how your doing. Feel free to email me at firstname.lastname@example.org directly. I never use that email anymore but I'll watch for your email and then send you the one I use.
You have my prayers as well. Those pesky nodules:( Mine shrunk at first with chemo but then ended up coming back. Good luck to you. Make sure you tell them to take as many of the nearby nodes as they can and to look real well at all of them and take any they think look suspiscious. Let us know how it goes.
So I've been dealing with this cr cancer for 4 yrs now. I was diagnosed from a stage II to a stage IV March of 09' and told I was inoperable. I'm now operable and will be having a lobectomy or the right lung (middle lobe) and wedge removal of the lower lobe next Tuesday. Their also going to remove a node that's been sitting at the base of my trachea for 2 years. I did 21 months chemo, I.M.R.T. and that stupid node is still there. The lung mets went away with the chemo after a couple of months but came back after being off chemo for the past five months. I'm very nervous about the surgery, but very excited to get this junk out of me.
For whoever prays, I would appreciate your prayers for a uncomplicated surgery and recovery.
What kind of major breakthroughs do you think are going to be coming through? I'm fighting hard. I had my surgery and just had my first CT scan since the surgery last Tuesday. Thought, it will be great since they just took everything out right? Wrong:( There's a brand new pretrachial node that went from normal size to 21 mm. Could be inflammation and that's what I'm praying for. I met with the colorectal surgeon and he did an exam. The lymph node that has been in the sacrum for over 2 yrs. (they tried to cyber knife it and didn't kill it) is apparently growing into the rectum from the outside. He thinks I'm going to have to have a permanent colostomy to get that out. I guess if I do, I do., I just want this all done. I'm tired of this roller coaster ride after four years.View Thread
I can't believe I wrote this 2 months ago, it seems like so much longer. Well, it's been 3 weeks and 3 days since I had parts of my right lung removed as well as the cluster of nodes by my trachea. It hurt like you know what but I'm feeling pretty good now. One more surgery to remove the node from the sacrum and hopefully the Lord willing this ordeal will be over.
How are you doing Mark? One of my best friends lives in Seattle. We met on another club four years ago and have been friends ever since.View Thread
No problem. I'm only saying what's true. Don't take away from the fact that you had cancer just because you didn't do as much as anyone else. We all have our own personal journey and story to tell.View Thread
I belonged to a different board with more of a younger population. Many on there had resections and spoke of their problems with urgency and accidents. Some took as long as 2 yrs. to get to their new normal. One thing many of them spoke about was making a diary and list what you eat every day. After a while you may notice a pattern of what foods make this problem worse for you. One woman had to emit dairy completely from her diet. Some had to add more fiber, others less, but it's a good place to start.
I would say you are a survivor. There are all different dimensions of a survivor, those that have had chemo, those that haven't, those that only had radiation, only surgery, no surgery. What makes you a survivor is you had cancer and you living today. Don't take that away from yourself, you didn't ask to have cancer.Who would? I congratulate you on being a cancer survivor! Pat yourself on the back:)View Thread