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Any other "testimonials" or comments on this? I just may start on my one pound bacon breakfast anytime now, although my spring flare is over.View Thread
I'd avoid long term Pred, if you can. Best of luck on figuring out what works for you. These boards are great for ideas!
Clayton-
View Thread
So I'm wondering if removing that section (yes, this may cause a plumbing issue) would have any effect on the extra-intestinal symptoms I experience (joint pain, fatigue, dehydration, abdominal and facial bloating, crankiness)?
Anyone have experience with this?
Thanks,
Clayton-
View Thread
Anyway, I'm almost out of the flare now and quite thankful for that. My favorite breakfast is frosted mini wheats. I have them about 5 times a week. They don't bother me at all. But I know they do bother others who have UC or crohns. I can also tolerate sunflower seeds, while others can't. Again, we are all different. We just have to really take notice of what foods do bother us and try to stay away from them. I personally think there are more things we can tolerate than not, but maybe I'm wrong about that. I have a kind of short list of what I have to stay away from. Raw veggies are not the best thing for me, I can tolerate fruit, but not all the time. And this is what I mean.....these diseases are so difficult to deal with. But I still think there are so many others out there with other diseases that are much much worse than what we have to put up with. Do you agree with that? I hope so. So many others have no control over what they are suffering from, but if we pay close attention to our diets and other things that cause us a problem, we can attempt to eliminate these things. Not always possible, of course, but most of the time.
Let us know how you're progressing. And again, keep track of what does bother you, as you say bananas do, and that is a good start. And some day you may be able to tolerate bananas!!! Who really know.
Look forward to your comments. God bless.View Thread
I recommend that everyone take a potassium supplement daily. Low potassium seems to go with a Crohns flair and you do NOT want to receive a potassium I.V. Talk to your primary care Dr. about what dose you should take.View Thread
Hope this helps someone.View Thread
I was diagnosed with Crohn's in February 2012, after about 5 years of ongoing bowel movement concerns and weight loss (total loss of 60 pds). After the diagnosis, I was put on Prednisone (tapered) for 8 weeks and Lialda (3 per day). I concluded my Prednisone course and about 3-4 weeks after that got really sick.
For the past two weeks I've had diarrehia and extreme urgency for bowel movements. Also, I have this gurgling/bloating noise in my stomach. Lost about 10 pounds and cannot seem to keep food or liquids in. The GI doctor prescribed another 8 weeks of Prednisone (tapered again) and I recently finished a one-week course of Flagly and Cipro.
I still am off of work due to the continued urgency and diarrehia.
Being new to Crohn's, are these systems typical of a Crohn's flare-up and that the medication prescriped just isn't keeping me in remission? Or, is this something more serious? I don't want to think that this is my new way of life. Very depressing. I'm hoping this is something that can be controlled....
Any suggestions or similar experiences?
Thank you!View Thread
She has had the first 4 injections of Humira 10 days ago and has another injection on Wednesday. I called our Telehealth where you can talk to a registered nurse. We had a teleconference with my Mom and her. She recommended we see a doctor within the next 24 hours.
It is to the point now where even juice is causing her extreme pain. But she is still having bowel movements although now it is diahrea so there is not a complete obstruction but I think it is close enough to being one. She has been vomitting also but only twice in the past 2 weeks. She is afraid to eat because she knows she will be in pain afterwards. She is going to call the GI's sectretary tomorrow morning to see if she can get in quicker then May 10th and if she can't then I am bringing her to a walk in clinic.View Thread
I have recommended them to many on this site and they work for some and not for others. But I think the majority have been quite pleased with them.View Thread
You had asked for experiences on flare/remission w/ IBD...I am 31 and have been diagnosed with severe crohns for almost 10yrs. Though it's severe (my GI calls it malignant - just meaning that it's typically unresponsive to treatment) there was a period of time that I was not on medication due to lack of insurance, and I was mostly symptom free for almost 2 years. Every case is completely unique and I would definately not rule out IBD just because you had 6 years without major symptoms.
I guess my advice is to keep gathering as much info as possible and to also utilize your doctor as the most valuable resource you have available to you. Testing is not difficult and it is worthwhile.
Hope you feel better soon!View Thread
Take care,
JeaneauView Thread
Prednisone is a very powerful drug. In good ways I suppose and bad. I experienced very scary side effects immediately upon taking the drug. I had taken low doses (10mg) for a week at different times for my asthma flair ups and I had no problems. But, when my GI put me on a very high dose (60 mg/day) for my Crohns things got scary. I was on the prednisone at this dose for 4 months. Gradually over those four months I gained 20 lbs. which is not actually scary, but my pulse rate and blood pressure began to creep up. I sleep on my stomach and I would lay in bed at night and I couldn't go to sleep because my heart was beating so hard I could feel it beating against the mattress. At one of my GI visits my bp was a little high for me 158/78. My GI said oh I've seen higher. Well two days later I wound up in our local ER with a resting pulse of 125 (my pusle in the ER laying on the gurney was 156 bpm) and my bp was 200/100. I had to lay in the ER for four hours on a Cardizem drip. Then I had to continue to take the Cardizem for four months as I tapered off of the Prednisone and even afterwards because it took that long to get my body back to normal.
They tell me that this was an allergic reaction and that I can never take Prednisone again. My primary care physician said that my GI was just focusing on the Crohn's and it being under control that he just completely overlooked my symptoms. I know this is probably and unusual thing to happen to someone, but it was just my experience. So I agree with you, research your meds and ask lots of questions.
Again please accept my condolences.View Thread
Again, I think you should contact your Dr. to see what dose to start on. And please let us know how you're doing.
By the way, Spring seems to bring on flares. I have been in remission from my UC for about 7 months or so, but the last week I have noticed a slight flare. I'm managing it tho by my diet instead of getting back on prednisone. I do not want to do that.
Safe traveling and God bless.View Thread
I don't do well at all with shredded wheat when I'm hurting. Fiber in general seems to make me cramp worse and causes bleeding. I do okay with the fiber supplements (like Benefiber) but I still can't digest the whole dietary fiber stuff well.View Thread
It does sound a lot like Crohn's or UC. To me, your second post sounds more like UC. They're both very painful diseases, but according to the few GI docs I've seen, UC is consistently more painful for patients because of the extent to which the colon is damaged. It's also more common for UC patients to have the lower left abdominal pain that you described than Crohn's- Crohn's patients tend to feel it more on the right side.View Thread
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