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Crohns and Colitis Exchange

This is a place for members with Crohn's Disease or Ulcerative Colitis to get ... more

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UC and CMV

Hello UC ites. Is there anyone out there that have been diagnosted with the CMV virus? My doc seems to think...

Posted by An_249347

0 Replies | Reply | Watch This Discussion Report This | Share this:UC and CMV Hello UC ites. Is there anyone out there that have been diagnosted with the CMV virus? My doc seems to think...

UC and CMV

Hello UC ites. Is there anyone out there that have been diagnosted with the CMV virus? My doc seems to think...

Posted by An_249347

0 Replies | Reply | Watch This Discussion Report This | Share this:UC and CMV Hello UC ites. Is there anyone out there that have been diagnosted with the CMV virus? My doc seems to think...

New Member (Introduction story and friendly hello...

Hey everyone my name is Jesse I am 22 and live in Austalia, I just recently got diagnosed with Crohn's...

Posted by JesseCorlett

Hey everyone my name is Jesse I am 22 and live in Austalia, I just recently got diagnosed with Crohn's disease October - November this year 2012.

I just wanted to introduce myself to you all since I have read posts about all your storys and get the sense of friendlyness and understanding from all the people in the same boat as us and wanted to join the ranks in this helpful community.

My Crohn's story basically started early 2012 when i felt constantly weak stomached and barely had an appetite, I would put off going out with friends and when ever I was around them they would always tell me too man up and come party or stop acting like your sick with a little stomache ache.

On the family side of this, they just thought I was depressed and kept telling me to get councelling.

By the time July came I was getting the most chronic abdominal pain which turns out was my ileum, I couldn't eat at all around this time, constantly tried to sleep but failed through pain and had a huge lack of energy and motivation. I lived like this until late October.

Late October came and i had lost just over 12 kg since July (26 pounds I believe) my face was as white as a ghost and extremely gaunt, my ribcage poked out and i basically looked anorexic at a weight of 48 kg (105 pounds). I started feeling dizzy all the time and started throwing up, i had constant diarhoea which had blood in it.

At the time of all this my girlfriend of 2 years who I lived with also dumped me because I became too dull for her which just made me feel the loneliest I had ever been. Finally I decided to go to the emergency at the local public hospital after spewing up and passing out on the ground of my apartment.

I was in hospital for 2 weeks, turns out my ileum had severe ulcerations, scar tissue and severe flaring. I had 3 teams of doctors coming and seeing me within my hospital stay which included the medical team, gastrologists and the surgeons started seeing me after my ileum was taken out via keyhole surgery.

Also whilst in hospital for the 2 weeks I had an emergency CT scan done at night after I had a huge spasm breakout where i started sweated prefusely and shaking nonstop with a heart rate of 170bpm. The CT scan showed a small infection in my ileum called bacilli I believe. I was started on a drug called Piptaz to get rid of this.

I then had a Endoscopy and Colonoscopy which finally made the diagnosis of Crohn's Disease a few days later I had surgery to remove my ileum via keyhole surgery. After the surgery was done there was a lot of intense pain though i had a button to push for morfein which was great! though a blood vessel had broken and i had chronic blood diarhoea (sorry if this is graphic) and had 6 blood transfusions in two days to get my hemoglobin levels stable (I can barely remember these two days since I was under borderline rating in HB level - hemoglobin).

I got released out of hospital a month ago today with the drug Mercaptopurine which breaks down in the body and creates 6mp i believe, the hospital pharamacist also gave me vitamin D supplements called Cholecalciferol and Iron supplements called Ferrous Sulfate.

I am so happy to be in remission at the moment and to feel normal after this torturous year of pain, though i feel so stupid for not going and seeing the hospital earlier.

At the moment I am on a high protein/high energy diet to recover some of the weight I had lost and I have put 6 kgs back on (13 pounds).
If i get a flare up i am to go on a low fibre diet.

Anyway I have gotten way too carried away with this behemoth story when really I just wanted to say hello to all of you who read this and who understand Crohn's or any other Inflamatory Bowel Disease IBD.

I feel your pain and am here to talk with if you would like because i know how isolated and alone you can feel.View Thread

Posted by JesseCorlett

5 Replies | Reply | Watch This Discussion Report This | Share this:New Member (Introduction story and friendly hello) =] Hey everyone my name is Jesse I am 22 and live in Austalia, I just recently got diagnosed with Crohn's...

Happy Thanksgiving to all of my friends at Web MD!

I wish the very best for all of you out there and hope you and your loved ones have a wonderful Thanksgiving.

Posted by arbob5

0 Replies | Reply | Watch This Discussion Report This | Share this:Happy Thanksgiving to all of my friends at Web MD! I wish the very best for all of you out there and hope you and your loved ones have a wonderful Thanksgiving.

Anyone had the Prometheus 7 Blood Test to diagnose...

and do you think it is accurate?? Reason being is DH has been to his Dr. after having a ruptured appendix a...

Posted by Devin2004

3 Replies | Reply | Watch This Discussion Report This | Share this:Anyone had the Prometheus 7 Blood Test to diagnose Crohn's and do you think it is accurate?? Reason being is DH has been to his Dr. after having a ruptured appendix a...

My 9 yr old with Crohn's Diagnosis

It's been a rough two years. Around April my 9 yr old was diagnosed with Chrone's. I would not agree to...

Posted by betterhealth19

0 Replies | Reply | Watch This Discussion Report This | Share this:My 9 yr old with Crohn's Diagnosis It's been a rough two years. Around April my 9 yr old was diagnosed with Chrone's. I would not agree to...

Does "ileum is prominent" BMT test result is relet...

My nephew 13 years old suffering with pain and frequent stools(after taking every meal).Doctor(GE) diagnosed...

Posted by neel290

1 Reply | Reply | Watch This Discussion Report This | Share this:Does "ileum is prominent" BMT test result is releted to IBD? My nephew 13 years old suffering with pain and frequent stools(after taking every meal).Doctor(GE) diagnosed...

Reaction to Remicaide

I have had severe sporiasis and psoriactic arthritis for years. I had my first infusion 4 weeks ago. Three...

Posted by Peanut123

1 Reply | Reply | Watch This Discussion Report This | Share this:Reaction to Remicaide I have had severe sporiasis and psoriactic arthritis for years. I had my first infusion 4 weeks ago. Three...

UC Rookie Questions

After radiation treatment for prostate cancer I had symptoms that I thought were related to that treatment. Two...

Posted by Czech

25 Replies | Reply | Watch This Discussion Report This | Share this:UC Rookie Questions After radiation treatment for prostate cancer I had symptoms that I thought were related to that treatment. Two...

Is there a connection of GERD to Crohn's Disease (...

I was diagnosed with CD about 20+ years ago and I've been treated for GERD for about 6 years. I've noticed...

Posted by MzRegina

1 Reply | Reply | Watch This Discussion Report This | Share this:Is there a connection of GERD to Crohn's Disease (or any IBD/S) I was diagnosed with CD about 20+ years ago and I've been treated for GERD for about 6 years. I've noticed...

UC Help

hello - I was diagnosed with UC 4months ago and I was under Apriso ( mesalamine) medication and I my bowel...

Posted by An_248719

0 Replies | Reply | Watch This Discussion Report This | Share this:UC Help hello - I was diagnosed with UC 4months ago and I was under Apriso ( mesalamine) medication and I my bowel...

Suspected IBD

For the past 10 days, I have been having bouts of bloody diarrhea which happens 3-4 times per day. Sometimes...

Posted by ericjames

2 Replies | Reply | Watch This Discussion Report This | Share this:Suspected IBD For the past 10 days, I have been having bouts of bloody diarrhea which happens 3-4 times per day. Sometimes...

confused

Has any one been that they (drs) cant help them any more?.I am so confused! Any ideas? And these diets ?

Posted by PamelaF

0 Replies | Reply | Watch This Discussion Report This | Share this:confused Has any one been that they (drs) cant help them any more?.I am so confused! Any ideas? And these diets ?

Living with Crohn's

I was diagnosed with Crohn's a little over 3 weeks ago. I was put on a gluten free/dairy free diet and given...

Posted by mindylee

6 Replies | Reply | Watch This Discussion Report This | Share this:Living with Crohn's I was diagnosed with Crohn's a little over 3 weeks ago. I was put on a gluten free/dairy free diet and given...

colitis - rectal pain

recently diagnosed with inflammatory colitis. some symptoms have relaxed except that I have severe rectal...

Posted by shadetree

2 Replies | Reply | Watch This Discussion Report This | Share this:colitis - rectal pain recently diagnosed with inflammatory colitis. some symptoms have relaxed except that I have severe rectal...

Any help would be appreciated

Hi, Over teh last 5 years of my life I have been diagnosed with ibs, ibd a md has been treating me for...

Posted by cmack090

1 Reply | Reply | Watch This Discussion Report This | Share this:Any help would be appreciated Hi, Over teh last 5 years of my life I have been diagnosed with ibs, ibd a md has been treating me for...

Any help would be appreciated

Hi, Over teh last 5 years of my life I have been diagnosed with ibs, ibd a md has been treating me for...

Posted by cmack090

0 Replies | Reply | Watch This Discussion Report This | Share this:Any help would be appreciated Hi, Over teh last 5 years of my life I have been diagnosed with ibs, ibd a md has been treating me for...

Is This Crohns or Colitis or Something Else?

What does it mean when you get intense pain shooting all though your stomach, lower back, and sides, then you...

Posted by An_248327

0 Replies | Reply | Watch This Discussion Report This | Share this:Is This Crohns or Colitis or Something Else? What does it mean when you get intense pain shooting all though your stomach, lower back, and sides, then you...

Trying 2 suffer smartly

Lucky & blessed...hard to say w/ CROHN's(i call the other 'C' word) but fistulas are my problem, i am 51,...

Posted by AntKing

2 Replies | Reply | Watch This Discussion Report This | Share this:Trying 2 suffer smartly Lucky & blessed...hard to say w/ CROHN's(i call the other 'C' word) but fistulas are my problem, i am 51,...

43 yr old Canadian feeling like a hypocondriac

I am 43 yrs old and have worked ever since I was 14. This past year I have been looking for work in a...

Posted by CanadianGirl

0 Replies | Reply | Watch This Discussion Report This | Share this:43 yr old Canadian feeling like a hypocondriac I am 43 yrs old and have worked ever since I was 14. This past year I have been looking for work in a...

Colitis and Constipation

I have had left sided uc for nearly 20 years. My father died with colon cancer in 1980. My problem is I am...

Posted by Chattie1955

1 Reply | Reply | Watch This Discussion Report This | Share this:Colitis and Constipation I have had left sided uc for nearly 20 years. My father died with colon cancer in 1980. My problem is I am...

Doctor has me confused and lets me down

I was diagnosed with GERD 2 yrs ago and Cronhs last January. I suffered with chronis GERD symptoms for 4 months...

Posted by Isarae

1 Reply | Reply | Watch This Discussion Report This | Share this:Doctor has me confused and lets me down I was diagnosed with GERD 2 yrs ago and Cronhs last January. I suffered with chronis GERD symptoms for 4 months...

Honey & Apple Cider Vinegar

Has anyone heard of this remedy for just about anything healthwise? Organic honey (1 teaspoon) Organic Bragg...

Posted by arbob5

0 Replies | Reply | Watch This Discussion Report This | Share this:Honey & Apple Cider Vinegar Has anyone heard of this remedy for just about anything healthwise? Organic honey (1 teaspoon) Organic Bragg...

Weight Loss But No Symptoms

I have been diagnosed with Crohn's for over four years now. I have a 9 month old baby. Once I started back on my...

Posted by lbcash

2 Replies | Reply | Watch This Discussion Report This | Share this:Weight Loss But No Symptoms I have been diagnosed with Crohn's for over four years now. I have a 9 month old baby. Once I started back on my...

Sharp pain in left side of abdomen

I am 24 years old and have Crohns disease. I have stomach aches all the time but this time is...

Posted by dellcomputer123

3 Replies | Reply | Watch This Discussion Report This | Share this:Sharp pain in left side of abdomen I am 24 years old and have Crohns disease. I have stomach aches all the time but this time is...

Diarrhea after surgery?

Hi group: Its been awhile. I had right hip total replacement surgery on July 16. The surgery was so easy...I...

Posted by arbob5

8 Replies | Reply | Watch This Discussion Report This | Share this:Diarrhea after surgery? Hi group: Its been awhile. I had right hip total replacement surgery on July 16. The surgery was so easy...I...

Crohns, Clomid and Trying to get pregnant

Hey all, Well my husband and I have started the wonderful journey of fertility treatments. We've been trying...

Posted by jaimem92

5 Replies | Reply | Watch This Discussion Report This | Share this:Crohns, Clomid and Trying to get pregnant Hey all, Well my husband and I have started the wonderful journey of fertility treatments. We've been trying...

stomach pain

yeah i have had his peculiar pain today, mainly 2 inches above belly button, comes and goes. lets...

Posted by healthyalternative

0 Replies | Reply | Watch This Discussion Report This | Share this:stomach pain yeah i have had his peculiar pain today, mainly 2 inches above belly button, comes and goes. lets...

First digestible pill approved by the FDA (article...

While we're still decades away from having nanites crawling through our bloodstream, hunting down foreign...

Posted by sheba_q

1 Reply | Reply | Watch This Discussion Report This | Share this:First digestible pill approved by the FDA (article) While we're still decades away from having nanites crawling through our bloodstream, hunting down foreign...

Crohn's and stomach pain

Hey all, I've had Crohn's for many years now but I have been feeling pretty good the last 8 months or...

Posted by forgetfulagain

1 Reply | Reply | Watch This Discussion Report This | Share this:Crohn's and stomach pain Hey all, I've had Crohn's for many years now but I have been feeling pretty good the last 8 months or...

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Hello My name is Kristin Im 36 yrs old with 3 beautiful sons and was dignosed with Crohns Disease at 23 but suffered most all my life not knowing ...More

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Vitamin D and Crohn's

Encouraging article that discusses Vitamin D supplements and the link with improved symptoms of Crohn's . There's many articles out there. ... More

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