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Crohns and Colitis Exchange

This is a place for members with Crohn's Disease or Ulcerative Colitis to get ... more

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Any thoughts?

I was diagnosed with UC back in 2010, and have not been able to really take care of myself. I have been...

Posted by An_247238

3 Replies | Reply | Watch This Discussion Report This | Share this:Any thoughts? I was diagnosed with UC back in 2010, and have not been able to really take care of myself. I have been...

UC and sinus infections

Hello all. I am brand new to this community and wanted to pose a question to you all. I have had UC for four...

Posted by kmp04

2 Replies | Reply | Watch This Discussion Report This | Share this:UC and sinus infections Hello all. I am brand new to this community and wanted to pose a question to you all. I have had UC for four...

Crohns/Collitis - general advice needed

Hi, I'm a 27 year old female who has suffered with tummy problems for the past 10+ years. In Feb 2010 I was...

Posted by Ellealaw

Hi,

I'm a 27 year old female who has suffered with tummy problems for the past 10+ years. In Feb 2010 I was diagnosed with coeliac disease but symptoms didn't improve. I need to take calcium, ferratin, Vitamin D and B12. I need ferratin infusions and seem to break bones with little difficulty.

When I was first diagnosed with coeliacs my GP at the time thought I had some sort of Collitis but the consultant said nope it's IBS. It was only through her persisting I had a biopsy that proved coeliac.

I have since moved house and have a new GP and she too believes I have some sort of Collitis.

I've had various flare up and a particularly bad flare up in April seems to have triggered. Never ending nightmare. Every night I go to the loo and use the toilet numerous times a day. Nothing eases the pain which is primarily right sided but can sometimes be felt elsewhere. The most horrific pain is in the back passage. I saw the consultant a few weeks ago and had planned to question if I had a fistula but he had med students with him, didn't ask me if I was ok with them being there and as a result I got embarrassed and froze. He's agreed to do a scope but told me crohns never causes pain?!!!!

A week or so prior to seeing him I was going away on business and was terrified because my life is sort of ruled by toilets. My GP gave me a week of prednisalone and life was fantastic. I came back from work and everyone said I looked so well then the course stopped and I was Bak to square one.

Was given another dose which ended last week and have been in severe flare since Tuesday.

I get sudden need to empty my bowels, horrific pain, sweating but clammy, my tummy distends and becomes hot to touch and I have felt generally poorly. On Tuesday I was unale to stop the diarrhoea and there was some bleeding. I felt terrible all day Wednesday and on Thursday at about 7pm out of nowhere the pain returned along with all the other symptoms. The bleeding increased a little. Today I have slept for a few hours in the afternoon but in the last hour full symptoms have returned though the pain isn't as bad the bleeding is severe. I'm not panicking about the blood as its bright red but I just don't know what to do.

Do these symptoms sounds like Collitis/crohns/UC to you or something else. The scope is being done but there's a 16 week waiting list though my GP was calling the hospital as he said this wasn't on. I get told to go to e hospital but can't leave a toilet to do so and am embarrassed as I will be working there. The GP understands this, he has given me the steroid enema in foam which I'm going to try tomorrow. I'm just panicking because I'm taking steroids (GP taken me off pred due to risk of fractures, I have low calcium hv gd to short doses recently and broke my wrist two weeks ao) If the scope is done whilst I take steroids and it doesn't show where do I go from there?

My GP's seem convinced it's something. Do you think the treatment they are giving suggests they think it's Collitis of some sort and what do I d if the gastro consultant says no? Life as it is can't go on like this - I'm afraid to start a relationship, hardly go out with friends and seem to spend my life linked to the toilet. I just want to live again but am fearful as to where I go next if nothing shows on the scope

Any advice, opinions or stories would be most grateful!

BASIC SYMPTOMS :

Pain in tummy (severe cramps) Temp Generally feeling poorly Severe pain in back passage Tummy distended Tummy hot to touch ClammyView Thread

Posted by Ellealaw

5 Replies | Reply | Watch This Discussion Report This | Share this:Crohns/Collitis - general advice needed Hi, I'm a 27 year old female who has suffered with tummy problems for the past 10+ years. In Feb 2010 I was...

10 years undiagnosed

I have been having "flares" and symptoms for 10 years now, I'm 28 years old and it's finally gotten to...

Posted by asphaltcwgirl

2 Replies | Reply | Watch This Discussion Report This | Share this:10 years undiagnosed I have been having "flares" and symptoms for 10 years now, I'm 28 years old and it's finally gotten to...

Crohns/Fistula/GI/Help!

Hi! My husband was diagnosed with Crohns last year after a pretty severe flare-up landed him in the hospital....

Posted by kjsimps

Hi! My husband was diagnosed with Crohns last year after a pretty severe flare-up landed him in the hospital. We were shocked by the diagnosis. My father also has Crohns but has a wonderful GI and has made great progress with treatment. My husband was referred to a GI center locally, and the Dr. that he is seeing is not being very helpful. My husband has a pretty bad anal fistula that is pretty nasty and will not clear up, he has had it for a very long time. He started to have a flare-up about a month and a half ago and he has been absolutely miserable since. He has severe pain in his intestines and constant diarrhea. He can't eat, and has lost like 25 pounds. He looks and feels terrible. He saw his GI 2 weeks ago and he told him that his only option was Remicade. My husband did a lot of research on Remicade and decided that it was not a course of action that he was willing to take because of the potential side effects and long-term effects. Because of this decision, his Dr. basically wrote him off and flat-out told him that basically, if he's not willing to do the Remicade then he isn't going to help him. He prescribed him sulfasalizine 3 times a day but it was making him so incredibly sick that he is only taking it once a day right now. He was throwing up every time he took it, couldn't eat, and felt awful all of the time. The fistula he has is in bad shape, he said it feels like poop comes out of it every time he goes to the bathroom and it hurts a lot. My Dad asked his GI about fistulas and she said that it should be surgically dealt with, but my husband's GI said that no GI would be willing to do surgery on him as a Crohns patient b/c he won't heal correctly. He refused to prescribe any form of pain medication because in his words, it "doesn't treat the disease" but my husband is in constant pain. He can't even sleep. He is exhausted and sick and miserable and I feel so bad for him. If he looses any more weight he will disappear. I don't know what to do for him at this point and frankly, I feel that the GI center here is being paid to push Remicade, as it is all over their website, their office, and it is the first thing they throw out as a treatment option. Because of my Dad's Crohns experience over the last 15 years, I know that there are many other treatment options available that are effective with less severe side effects. I'm wondering if this GI Dr. is just being dismissive as I suspect, or if the prognosis of Crohns really is this grim. He's been miserable for over a month now - he's 29 years old, this just seems ridiculous now. Advice?View Thread

Posted by kjsimps

2 Replies | Reply | Watch This Discussion Report This | Share this:Crohns/Fistula/GI/Help! Hi! My husband was diagnosed with Crohns last year after a pretty severe flare-up landed him in the hospital....

Crohns/Fistula/GI/Help!

Hi! My husband was diagnosed with Crohns last year after a pretty severe flare-up landed him in the hospital....

Posted by kjsimps

0 Replies | Reply | Watch This Discussion Report This | Share this:Crohns/Fistula/GI/Help! Hi! My husband was diagnosed with Crohns last year after a pretty severe flare-up landed him in the hospital....

Research Study for Relapse or Intolerance to Treat...

Moderate to Severe Ulcerative Colitis You may qualify to participate in a clinical research study with an...

Posted by agaresearch

0 Replies | Reply | Watch This Discussion Report This | Share this:Research Study for Relapse or Intolerance to Treatment for Moderate to Severe UC-Palm Harbor, FL Moderate to Severe Ulcerative Colitis You may qualify to participate in a clinical research study with an...

Crohn's disease?

Hello all, i was diagnosed with crohns in 92...I have been in and out of remission for years....well back in...

Posted by Kare114

1 Reply | Reply | Watch This Discussion Report This | Share this:Crohn's disease? Hello all, i was diagnosed with crohns in 92...I have been in and out of remission for years....well back in...

Remicade & Pregnancy

Has anyone ever been on Remicade and been pregnant? Did you have any problems? My GI says it's safe but my...

Posted by jaimem92

5 Replies | Reply | Watch This Discussion Report This | Share this:Remicade & Pregnancy Has anyone ever been on Remicade and been pregnant? Did you have any problems? My GI says it's safe but my...

using Remicade for colitis and crohn;s

Hi..I have been taking oral meds for my crohn'e the latest of which is endocort which initially was doing...

Posted by tiger0133

2 Replies | Reply | Watch This Discussion Report This | Share this:using Remicade for colitis and crohn;s Hi..I have been taking oral meds for my crohn'e the latest of which is endocort which initially was doing...

Stomach Bug or Flare Up

I have been diagnosed with Crohns for five years now. I have been off of all meds for two months do to an...

Posted by lbcash

1 Reply | Reply | Watch This Discussion Report This | Share this:Stomach Bug or Flare Up I have been diagnosed with Crohns for five years now. I have been off of all meds for two months do to an...

tysabri anyone?

Hi everyone, I lost response to Humira and Cimzia wasn't effective for me, so Tysabri was recommended. I know...

Posted by LauraLW

5 Replies | Reply | Watch This Discussion Report This | Share this:tysabri anyone? Hi everyone, I lost response to Humira and Cimzia wasn't effective for me, so Tysabri was recommended. I know...

Colitis and Diverticulitis

Hi. I am sick and in pain, and new to the disease and to the community discussions. I was diagnosed in April...

Posted by Tontonk

0 Replies | Reply | Watch This Discussion Report This | Share this:Colitis and Diverticulitis Hi. I am sick and in pain, and new to the disease and to the community discussions. I was diagnosed in April...

diagnosed with IBS

After i had my gallbladder removed i had more and more problems with drinking milk and eating cheese....

Posted by MysteriousOne2012

1 Reply | Reply | Watch This Discussion Report This | Share this:diagnosed with IBS After i had my gallbladder removed i had more and more problems with drinking milk and eating cheese....

I need help!

I have been dealing with UC symptoms for 1.5 years now, but was only diagnosed with UC in April of 2012. I am...

Posted by ndw0317

4 Replies | Reply | Watch This Discussion Report This | Share this:I need help! I have been dealing with UC symptoms for 1.5 years now, but was only diagnosed with UC in April of 2012. I am...

New Research based patient care program for Crohn'...

We're the UCLA Center for Inflammatory Bowel Diseases. We'd like to share with you our research based patient...

Posted by UCLAibd

0 Replies | Reply | Watch This Discussion Report This | Share this:New Research based patient care program for Crohn's disease We're the UCLA Center for Inflammatory Bowel Diseases. We'd like to share with you our research based patient...

Remicade

Hey I was just diagnosed with cd at the age of 56. im in the hospital right now and getting a little better...

Posted by sherrylang

1 Reply | Reply | Watch This Discussion Report This | Share this:Remicade Hey I was just diagnosed with cd at the age of 56. im in the hospital right now and getting a little better...

Looks like its back to sqaure 1...

For the past couple of months I have been on Asacol and Imuran and have been doing very well till...

Posted by Zekesandkyliesmom

5 Replies | Reply | Watch This Discussion Report This | Share this:Looks like its back to sqaure 1... For the past couple of months I have been on Asacol and Imuran and have been doing very well till...

20 years with Crohns

I was diagnosed with Crohns in 1993. I have had only that one flare up. My last 3 colonoscopies were totally...

Posted by Anon_43652

Take the Poll

Has anyone had this same situation?

0 Replies | Reply | Watch This Discussion Report This | Share this:20 years with Crohns I was diagnosed with Crohns in 1993. I have had only that one flare up. My last 3 colonoscopies were totally...

Ceohns and menopause

I have a long list of problems that make my everyday life a challenge! I am two years crohns and about just...

Posted by catsp

1 Reply | Reply | Watch This Discussion Report This | Share this:Ceohns and menopause I have a long list of problems that make my everyday life a challenge! I am two years crohns and about just...

What can I do for my sister?

Hi, guys. My youngest sister is 12 and lives with my parents. She is 9 years younger than me. I'm married...

Posted by Anon_177415

Hi, guys.

My youngest sister is 12 and lives with my parents. She is 9 years younger than me. I'm married and so I don't live with her. But I try to see her often, and to text her a lot. She is often very sick and I worry about her constantly, especially lately.

I have IBS but I was tested for Chrons, and so my doctor told me about all the symptoms (I do not have all the symptoms and the test was negative). And then I did a lot of research about Chrons because my little sister has ALL of the symptoms.

I discussed this with my mother, but she refuses to take my sister to a doctor. They have very good medical insurance and I agreed to cover any extra costs. I am to the point of begging them to take her. Even if she doesn't have it, maybe they can figure out what's wrong. She is so malnourished and weak, and losing weight. It's breaking my heart.

I have another sister close to my age and growing up, no matter how sick we were, they ever let us go to the doctor. We were homeschooled, and my youngest sister is now being homeschooled, so no one ever knew we were sick. My mother is (in my and several others' opinion) a little bit crazy; and I say that with respect, because I know she just needs psychological help.

She's convinced that if she took my little sister to the doctor, that since she doesn't have any shot records that the doctor's office will call DCFS and have my little sister taken away. She thought the same thing when me and my middle sister were kids. I was always sick as a child, and they wouldn't take me to the doctor.

What do I do? DCFS wouldn't take my little sister away because she doesn't have shot records, right? It sounds kind of crazy. And I personally am in touch with the doctor who tested me for Chrons and I don't think this doctor would do that. But how do I convince my parents to take her? And even if she does have it, is there a treatment that will help her? Is there anything I can do to make her feel better? I'm so worried. I cry for my baby sister.

Please help. I don't know what to do. :_(View Thread

Posted byAnon_177415

6 Replies | Reply | Watch This Discussion Report This | Share this:What can I do for my sister? Hi, guys. My youngest sister is 12 and lives with my parents. She is 9 years younger than me. I'm married...

Do I have Crohn's if I have opposite symptoms?

Hi, I just had a colonoscopy this week and the specialist told me I have either Crohn's or Ulcerative Colitis....

Posted by KarleyR

3 Replies | Reply | Watch This Discussion Report This | Share this:Do I have Crohn's if I have opposite symptoms? Hi, I just had a colonoscopy this week and the specialist told me I have either Crohn's or Ulcerative Colitis....

Flare Ups that hit like a ton of bricks!

Hello Everyone! I am new to this forum. Just wondering if anyone else has had similar experiences. This is...

Posted by itswhit

4 Replies | Reply | Watch This Discussion Report This | Share this:Flare Ups that hit like a ton of bricks! Hello Everyone! I am new to this forum. Just wondering if anyone else has had similar experiences. This is...

colitis/crohns

i'm new to this forum so pls bear with me. is colitis the same thing as crohns? i recently spent 6 days in...

Posted by leafsfan1

1 Reply | Reply | Watch This Discussion Report This | Share this:colitis/crohns i'm new to this forum so pls bear with me. is colitis the same thing as crohns? i recently spent 6 days in...

Changes in symptoms

I was diagnosed with UC about 5 years ago. Since then, I have been on 800mg of Asacol a/day. I rarely have...

Posted by An_245469

1 Reply | Reply | Watch This Discussion Report This | Share this:Changes in symptoms I was diagnosed with UC about 5 years ago. Since then, I have been on 800mg of Asacol a/day. I rarely have...

Could colon surgery improve extra-intestinal sympt...

My ulcers have been confined to less than a linear foot from my rectum... So I'm wondering if removing...

Posted by Claytonium

1 Reply | Reply | Watch This Discussion Report This | Share this:Could colon surgery improve extra-intestinal symptoms, like joint pain? My ulcers have been confined to less than a linear foot from my rectum... So I'm wondering if removing...

6MP and reproductive side effects

Does anyone know of any reproductive side effects to 6MP. I am asking because I have a 2yr old that i...

Posted by evanwilliam

0 Replies | Reply | Watch This Discussion Report This | Share this:6MP and reproductive side effects Does anyone know of any reproductive side effects to 6MP. I am asking because I have a 2yr old that i...

colitis attack

hello everyone, i'm also new here and don't really know if i have colitis or not but when i went to the...

Posted by kathy_1961

2 Replies | Reply | Watch This Discussion Report This | Share this:colitis attack hello everyone, i'm also new here and don't really know if i have colitis or not but when i went to the...

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