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Miserable_SOB

Joined: 09/05/2010
My Story:
I came down with Ulcerative Colitis in 1984, long before I ever heard of the internet. Thus I only wish I had more resources to choose from back then. I found a few books but was more dependent on the advice of my doctors at the time. The alternatives were few, my health got worse and worse. After having no success with steroid and constant hospitalization, I chose a J-Pouch. For over 20 years now I curse that decision and wish I could take it back. Maybe living with UC was rough, but I only wish I could go back and try more alternatives now.

Latest Activity

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Reply: Surgery for UC
By all means stay away from surgery. I made the mistake of choosing it 25 years ago,...More
Posted by miserable_sob
Reply: UC
Hi, I had a 90 day colostomy. My colon is missing now and my small intestine is...More
Posted by miserable_sob
Reply: crohns or not
From what I've seen doctors screw up at diagnosing Crohn's and Ulcerative Colitis all...More
Posted by miserable_sob
Reply: Pain
I'm wondering what kind of pain you're having when you have flare ups? I had lots of...More
Posted by miserable_sob
Reply: What can you eat and
I couldn't find anything to eat with Ulcerative Colitis, nor have I had much luck...More
Posted by miserable_sob
Reply: Doctor's Wont Listen - What are my options?
Now that you've brought this subject to mind, I wonder if I might have B12 problems?...More
Posted by miserable_sob
Reply: newly diagnosed and scared
I'm sorry to hear about your mom. If Ulcerative Colitis is caught early enough, you...More
Posted by miserable_sob
Reply: Fecal Transplants cured Ulcerative Colitis for me
Since I had my colon surgically removed, there's no way I would call the removal "a...More
Posted by miserable_sob
Reply: Having a flare.....
From what you report, I assume you have Colitis. If that's the case Prednisone failed...More
Posted by miserable_sob
Reply: strange symptoms
Have you tried any probiotics yet or Metamucil or Lomotil? A friend of mine who has...More
Posted by miserable_sob