I was tested about 8yrs ago and was told " I know not what's wrong with you." The Dr. sent me to Mayo Clinic. After all the tests I was told I have Crohn's and could be treated at home. When I got back home the Dr. didn't believe that I had Crohn's and told me there was no real evidence. After a year of no help in my home town I went back to Mayo and ended up having a reseaction. I was to the point that my intestines where smaller than a pencil and wouldn't strech do to scare tissue. They removed 10inches and then 2 yrs later had to have scare tissue removed. Had a re check this week and I've been in remission for 2yrs now. So I say get another Dr to check things out! Don't take the word of 1 because they make mistakes. I was told most of my life I had IBS. No one would take me serious. Well until I lost 40 lbs in 6 months! Just keep digging until you find someone you trust! Good Luck!View Thread
Just had my 2nd resection. Thank God they didn't have to take much, just cleaned up scar tissue.so 6inch or so. So far no active Crohns has come back. So once I'm able to get back to living hope things will stay in remission.
Sorry if I offended anyone on the gutting, just husband has been talking about deer hunting and I feel like the poor deer right now. this time was much better do to some changes they find more helpful, like less IV, pain meds in spine and letting things wake up on there own. They had me eat the first night and walk. I was out 2days earlier than I was 2yrs ago and they they took 16 inchs and didn't cut as much.
this was kind of interesting to me. I live in ND also, right across the river from MN. When I called ND about getting any sort of medical help with bill and such, they guy told me to move to MN and get MN care my only option. So if you could give me any info on how to find out about the medical assistance in ND that would be great!View Thread
some back ground, I have Crohns 2 years ago I had a resection, 14in removed. Now I have scar tissue problems and some Crohns in the area of resection. They want to take out another 16ins. Ok, question, what happens if I do this, to my bowl movements after, with so much removed? Will I be able to work or is this something that is going to make working impossible. I work with High school kids, that are very dissabled and do a lot of lifting and they depend on me to be at thier side, not in the bathroom. They want to do this as soon as possible, but I'm putting it off. But think I will need it done by Oct, as I'm having a lot of pain and discomfort. I'm very scare so anything will help, even if it's not a positive! I do have a call into DR with questions, but seems like thoses who have been through this stuff is a better place to find real life answers~View Thread
Looks like middle of Oct.....have to talk to work see what they will do. I have the sick time, so hopefully all will be good. Except having to have it done in the first place. But guess I don't have a choice anyway.....
Thanks everyone, I found out they will be taking at least 15cm and hopefully no more, but could be 40cm if they get in and find more Crohns. For me diet doesn't seem to matter..... I can eat something one day and be sick and a month later eat the same thing and nothing, so I don't know what I'd do about diet. Right now, the only problems I am having are pain and stools change every time I go and could be up to 10 times a day. But I have been able to keep the diarrhea away so far. I plan to have this done in Oct if I have enough sick leave otherwise I can't afford to do it till spring and Dr said he didn't think I could wait that long for fear of blockage. But what does one do, can't afford not to have insurance and if I don't have the sick leave, then I have to take a leave of absence and pay all of my family health! OUCH no way, I don't make even 20,000 a year. How do people do this????? Thanks again! Hannah you are a remarkable young women! At 45 wish I had the drive you do!View Thread
I know I'm not getting a J Pouch....I hope. It's not the Crohns that's the real issue right now, as I understand. It's the scar tissue closing things off. I've had it streached once but they don't want to do it again as it's to weakend. The Crohns has come back but only like 2-3cm. So I don't understand why they have to take so much? So living with a shorten colon involves what exactlly? I read the link, not sure I'd try that at this point, but who knows what the future holds.
Thanks, I've read most of your posts and you are a great help to many. Wish we could be of help to you.....View Thread