Firstly, thank-you all for all the posts... they are an invaluable resource!
I've been dealing with my fourth flare up in two years, and have now gone through 5-ASA's and azathioprine. Trying to keep my chin up, but this sucks! I feel like I'm missing out on so much in life. Anyway, enough pity-partying!
I'm wondering if anyone has thoughts on the long-term benefits of remicade (aka infliximab) v.s. a colectomy? I don't like the permanence of surgery, but at the same time, I've only heard good things about it. On the other hand, I'm not so sure about being on such a major medication for the rest of my life, and being immune-suppressed etc. either. Do people ever stop taking remicade gradually once in remission?
Thanks for the reply. I had spoken later to a GI, and I think I'll try remicade. Although the side effects are scary! I was also worried about immune suppression, because I'll be (hopefully) starting a nursing program in september, but she said that it's not a HUGE problem (just to be careful etc).
Surgery does seem drastic, but at times tempting! But you're right... least invasive first.
Thanks again, and good luck in your recovery!View Thread
Has anyone ever tried the specific carbohydrate diet (SCD)? It is the subject of a book, "Breaking the Vicious Cycle", that I've been reading lately, and I'm giving it a try. Just wondering if anyone has had any success/problems that they would like to share?
Thanks for the responses! I did try the SCD for 9 days, but it didn't really work for me. I didn't ever get off the "Intro diet" of eggs, cheese, applesauce, chicken, etc, which wasn't very balanced! But it was worth a try. Thanks again!View Thread
Hello, I'm new here (and with ulcerative colitis), does anyone have any tips or hints at how and when to reintroduce fibre back into a diet? I understand IBD is very individual, but any information would be greatly appreciated! The discussions and replies have been very helpful. Thanks!View Thread
Thanks for all the advice! I've found that pretty much sticking to bland, boring white foods (white bread, rice, chicken, all that good stuff) has been a life saver, as well as yogurt and smoothies. It gets boring, but I'm ok with that right now! I don't really want to pay for anything really adventurous later!View Thread
Thank-you for the tips. I'm 20 and because this is my first "flare-up," it's all been somewhat overwhelming. To have the opportunity to communicate with people who have been through this is very encouraging. Thanks again, and I look forward to getting to know you all!View Thread