Crohns and Colitis Exchange
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I definitely helps to hear real stories such as yours! I am so sorry to hear you developed cancer.. I often worry about this very same thing! I have no immune system as well being on immune suppressants. I have very skinny stools but they have never mentioned strictures, etc. just inflammation in the last 2 sections of my colon.
I have taken stool softeners in the past, actually the one that really worked for me was Surfak.. which is often hard to find but I was even able to take it while preggo. Curious which type you are currently taking?
I really think that these drugs that I am taking which aren't really helping are more dangerous than the disease iteself! Hang in there.. and good luck!View Thread

I have used Miralax in the past and it just makes me have diarrhea and actually caused me to be more bloated. My dr. recently took me off of it and gave me amatiza which just causes me to have bad headaches. I find if I drink lots of fluids and of course try to increase what fiber I can handle it works the best. I have not seen or even heard of a motility specialist. I will check into that because even back 20 years ago with my original PCP he told me he thinks I have a "lazy bowel!" My current GI doctor even mentioned a motility problem but I didn't know there were specialist for it.
Currently I do go every day but I know there is SO much more as when I lay down I can see and sometimes feel it contracting. Also the narrowing is obvious as it is formed and "skinny" ...
I really appreciate your reponses!View Thread


Even as a kid I always had issues of not being able to go. My doctor and previous doctors have said that I have "mobility" issues or a "lazy bowel"... now my almost 7 yr. old son is having the exact same problems. We just took him to a pediatric GI doctor and they are saying that he is full of poop all throughout his colon which totally scares me! I don't want to watch him go through the pain that I have gone through.
I do have an appt. coming up just to talk to the surgeon and get some of my questions answered as I do not think this is going to be the answer for me but when you run out of options and your colon is so inflamed, your stool just won't come through.. that is scary!
I have learned how to alter my diet through trial and error over the years which helps but it's still very tough! I do drink water and juices all throughout the day as well as aloe vera. I do take a fish oil (omega 3) tablet as well as Calcium Citrate and a probiotic along with all my crohn's drugs that I am on. I am probably the healthliest person as far as eating goes that I know... which is ironic that I am the most unhealthy when it comes to health! Oh well...
) I guess we are special but I would like a break to enjoy life for more than a week at a time! I'll let you know what the surgeon comes up with ... but I'm not going to make any RASH decisions!View Thread

I have been on about 10 different strong drugs for this and the drug therapy just doesn't work for me. He is now suggesting that I speak to a surgeon to discuss a resection to remove the diseased sections (last 2 sections of colon). I would love to hear from anyone who is also on the other end of the spectrum with constipation issues.
Thanks everyone - you've all been great!View Thread


I was diagnosed 5 years ago with crohn's/colitis. I have been on every drug under the sun myself to include a hospital stay recently due to pain. My last 2 sections of my colon are highly inflammed. After 2 days of IV steroids and morphine (sp?), they sent me home on 40 mg. of steroids and now I am down to 10mg. which is no longer working. I am also on methotrexate (low dose), 40mg. humira 1x/per week, daily enema's of Rowasa. Since I have been on everything my doctor is now mentioning surgery but he wants me to give the drugs a chance even though I have been on them for months now with no relief.. with that said, I feel your pain and am very glad you found this group. It has already helped me so much.
Keep us posted how your appt. goes. I am sending good vibes your way! I know how it is to take care of a family all while feeling "crappy" pardon the pun! Hang in there
)View Thread
Anyway, I just can't help but wonder if I am allergic to something which is also aiding in the inflammation but I am sure it's just my body not cooperating. So weird how some people take just fine to drugs or a particular regimen and others just don't! Most of the drugs work for me for a few months (if that) and then boom... nothing, even prednisone! So frustrating! I am a pretty thin person and my stomach is so large and bloated I sometimes can't move! Well... thanks again everyone for your comments and support and I send you all good health vibes!View Thread
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