Gin - you said it right when you say that someone that has not walked in your shoes gets to determine your fate! I am just compiling my medical records in order to start the filing process - not looking forward to it as I know that it will be a long process! I wish you luck with your case!View Thread
Gin thanks for your reply. I am just so confused with all of this. I try everything my doctor tells me and currently started the enema's nightly which aren't as bad as I thought. If they would help, I would do them as many times as I had to! We'll see if they start working (ha!) Since I am in the low percentage of people that do not normally have diarrhea (it is hard for me to pass stool, it's not hard but it seems it takes an act of god to get it through the inflammation). Therefore, when I say I am confused I often think that I need fiber to pass my stool.. you say to watch out for bloackages due to fiber? What to do, what to do?? I really often think that I am allergic to something but don't have a good plan to figure out what that could be. I have had the tests through my doctor for the normal stuff but have been told that when they test you have to have it in your system so I don't know that I have truly been tested?! I have tried eliminating certain foods for a short period of time but not sure I am doing it long enough, etc. Man, it is a full time job trying to get through this eh? I do know that surgery is not the answer though even though I wish it would be! I envy those people that can just eat whatever/whenever.. I joke with my husband that I eat the healthiest of anyone I know and am probably one of the most ill people I know! Oh well.. such is life I guess! I will keep truckin' along to try and figure this out. Hugs!View Thread
Your responses do help. I am going to give it a shot knowing that I will most likely be denied at least the first try. I am in the process of gathering all of my medical records currently and going to try and get a written statement from my current doctor as I have heard that helps. It didn't make sense to me that my husband's income should matter as he doesn't have anything to do with my income!
I will be checking back from time-to-time as I really appreciate everyone's input to these discussions! Good luck to everyone who is in the process as I know it is frustrating and time consuming and I am only getting started )View Thread
Thanks for your comments. I think I am going to give it a try. It's going to be hard for them to get all of my records as we have moved and I have gone to 3 different offices for care but hopefully they can gather everything and I can finally get some compensation.
Someone told me that they look at your spouse's income which I don't think should matter. If you can't work, there is one less income coming in! Thanks everyone you have been great!View Thread
HI there, Just found this discussion and am wondering if anyone has been able to get awarded disability payments due to crohn's/colitis? I haven't been able to work since I was diagnosed but have heard that my husbands salary would most likely disqualify me for receiving benefits. If anyone has any insight I would greatly appreciate it. I am so sad that I haven't been able to get well enough to work but we could use the money!View Thread
I should also mention that I normally do not get diarrea, I have the opposite problem with my stool not being able to get through. Every now and then it wiill go to loose stools but my doctor says I am in the 10% of patients who have constipation (although it's not hard stools, it just can't get through the inflammation).... sorry, I know that's gross ;o)View Thread
Gin, I am new to this group but not new to crohn's/colitis. I was diagnosed 5 years ago and have been on pretty much every medication to include remicade infusions and currently humira injections weekly which currently is not working. After being admitted to the hospital a few months ago and now back on steriods my doctor has a few more things up his sleeve to include nightly enemas to see if that will boost the inflammation in my colon until the hopes that the humira will start working. He is trying to alleviate my having to have surgery as he feels that is a last resort as do I. I haven't had inflammation in my small intestine for about 2 1/2 years right now it's mainly my last 2 sections of my large intestine. I am so scared about surgery as I know it's not a full-proof and most likely I would end up with scar tissue damage and more surgery only to be in worse shape. I just don't understand why my body won't accept some of the drugs. It seems they work initially and then no longer work.
Well... if nothing else it's good to know I am not alone!View Thread