Welcome! Read your posting with great interest. This is a a great site and you are correct...you will make new friends and get everyone's point of view and opinions. It's very interesting here and very helpful at the same time.
I myself have ulcerative colitis, for a little over four years, and right now I'm in remission, but there are spring and fall flares that can cause havoc in anyone's life. It controls our lives, when we go out, if at all, and for how long. we just do a day by day thing. All part of the IBD diseases. I know a few with Crohns and you have described it graphically, but very honestly. I like the honest part...don't pull any punches...honest is the best, and we all learn from it as well.
We all certainly welcome you here, and look forward to any future posts you might have. So happy you're "on the road" to a better day to day experience. That's what we all hope for with any IBD. Bottom line is, we deal with the cards we're dealt, some good hands and some not so good, but again, we learn to deal with it, not only from our medical authorities, but our friends here. So helpful.
Look forward to hearing from you again, and hopefully it will be all positives. If there are other "bumps", we all have to learn to deal with them and move ahead.View Thread
Miserable, there are others out there who are accepting of their J pouch and others like you, but maybe not as vocal, who are not as accepting of it. And Hannah and I are just trying to let Czech know that you are quite "vocal" about what you think of yours, but that certainly does not mean that EVERYONE who has one is as unhappy and as....miserable....as you are. You named yourself...and it certainly fits!View Thread
Kudos once again to you, Hannah. You are special, no doubt about it. So many would just sit back and feel sorry for themselves instead of accepting what has happened to them. I did that at first with my UC, but a couple of months of a self made pity party, I woke up! Hey, I didn't want to go on like that.
Keep it up, Hannah. You're on the right track.View Thread
Everyone differs on this one. I could not tolerate salads very well, and I normally passed them within a few hours. Other foods would maybe take 24 hours. It is difficult to keep track of this, but in the long run, it will help you tremendously. Just avoiding some of these foods will help you quite a bit.View Thread
Czech, take a deep breath and try to see two views on your situation. Truth be known, this is your situation, and Hannah and I are not trying to tell you there are no other alternatives. Talk with your Dr., find out what he suggests. If you are not sure about what he tells you, get a second opinion.
Also, there are remissions of UC. I have been in one for quite awhile. I had a little bump in the road after my latest hip surgery on July 16, but all is well again. It has been a year now for my remission (except for the hip thing). But I am always aware that the UC could come back full force at any time. I am on Lialda (mesalamine), and Lomotil. I was on a low dose of prednisone but I'm not on it now. Also, sometimes UC flares in the spring and fall. Not always, but sometimes. So if you are not having severe UC symptoms, try to roll with the punches if you do flare in spring or fall. .
Also, your diet is very important. Keep track of what might be the cause of your urgency issues. Make yourself aware of what you can and cannot tolerate. This makes a big difference in controlling the urgency situation. But then again, because UC is unpredictable, you might be able to tolerate a certain food for awhile, and all of a sudden, its a problem for you. Again, keep track of your diet. Stay away from fried foods, fresh vegetables, some fruits, and try to eat mild foods, like baked potatoes, rice, broiled chicken, sweet potatoes, etc. You can go on line for find suggestions for a good UC diet. Again, it means eliminating some of your favorite foods and learning to like others that you never did before!
So, what we're trying tell you is that you can be in control of some of your symptoms, but maybe not all. It sounds like you might be in the early stages of UC. You can control this, Czech....we have confidence in you. Now you have to have confidence in yourself.
Take care, and let us know how you're doing. We really do care.View Thread
Hannah is special...she deals with the hand she was dealt...sometimes that's easier for some than for others. I give her all the credit in the world. She has moved on with her life, going to school, and is never complaining about her situation. She has accepted it and I really respect her for that. She is a very special young lady. We can all learn from her, that's for sure.View Thread
Hannah, you are absolutely correct...positive thinking goes such a long way, and negative this and negative that makes ones life absolutely miserable. It's up to the individual how they deal with things....I believe in accepting what is, and not looking back over my shoulder at what "might have been". That makes no sense to me at all. Shoulda, coulda, woulda....be thankful for what we have. That's the bottom line. Do I resent someone who doesn't have UC and other problems like two hip and one knee replacements? No, I don't resent them and the entire world...I have dealt with what I have and lived with it.View Thread
Hi Hannah...we've missed you, but also know you're busy with school!!!
Calmoseptine has helped my butt also. A neighbor recommended it and it has worked for me.
And you are so correct...drink a lot of fluids. This is so important. There were times that I just didn't think I could get another swallow of some sort of fluid, but I did because it was so helpful in softening my stools.
So far so good with my colitis, but now my GI thinks that my UC is in remission and I just have IBS. Normal for awhile, then somewhat constipated, then some diarrhea, etc. etc. No bleeding at all, unless my hemorroids decide to "pop". That's my description for those son of a guns!! I am scheduled for a colonscopy in January. My GI doesn't think he will find anything suspicious, but this is precautionary. We all need to have one when it is time/needed. My hip surgery in July gave me problems, but that is well past now. Thank God!
Shadetree, our dear Hannah is so well versed/informed,been there done that, and we can all learn from her. She's a real gem. Always has excellent advice, so we are so lucky to have her. Heed her advice. Take care and keep us updated on how you're doing.View Thread