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JavaMamma27

Joined: 11/30/2010
My Story:
I am in my early 30's, and I was diagnosed with moderate-severe Crohn's disease and non-celiac gluten intolerance on 11/24/10 after 20 years of symptoms. I was diagnosed with fybromyalgia at age 18 and chronic fatigue syndrome at age 20. In my early 20's I had multiple Dr's tell me my bleeding was hemmeroids or IBS without even investigating the problem, so I figured it was not a big deal. Not until I was having severe headaches, nausea, vomiting, and seizures did I start looking into what was wrong with me. I have had a CT scan, 2 MRI's, LP, EEG, EKG, dozens of blood tests, and finally an endoscopy and colonoscopy.

I am on Humira, 4500mg/day of Pentasa, 40mg prednisone, but not anywhere close to remission. I am in constant flare. I am unable to work due to severe headaches, stomach pain, and fatigue. It takes all I have to keep up with my kids right now.

I have now had 2 obstructions that landed me in the hospital for 4 days in March 2011, and 3 days in April 2001. My GI is 99.99% sure I have Crohn's but now suspects scar tissue to be involved in causing obstructions.

Latest Activity

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Reply: Pregnant with Crohn's
I was undiagnosed during my pregnancies. I have 2 children, but I lost 3. Pregnancy was...More
Posted by JavaMamma27
Reply: adding Lupron to the list
and menopause won't land me in the hospital! I am miserable on the prednisone. Random...More
Posted by JavaMamma27
Reply: adding Lupron to the list
yup. That is the goal. We are going to try a "false menopause" before we make the...More
Posted by JavaMamma27
adding Lupron to the list
Trying to figure out why I am having these SEVERE flares that are landing my in the...More
Posted by JavaMamma27
Reply: Experiment (I can't spell : )
Blueberries are a HUGE no-no!. I have had intermittin sharp stabbing pain for days and...More
Posted by JavaMamma27
Reply: Any advice for my first Remicade infusion?
I hope it works for you!
Posted by JavaMamma27
Reply: Experiment (I can't spell : )
Nothing happened after eating that last night. I had more strawberries and bananas for...More
Posted by JavaMamma27
Experiment (I can't spell : )
My Dr TELLS me that there is less inflamation in my ilium. FOr dinner tonight I had...More
Posted by JavaMamma27
Reply: What's for Dinner?
I LOVE quinoa. I brown it in a tbsp of oil, then add chicken broth to cook it in. I...More
Posted by JavaMamma27
Reply: Pancolitis, Anyone?
just googled pancolitis. Yuck. Sorry to hear that you have been diagnosed with that....More
Posted by JavaMamma27