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Crohns and Colitis Exchange

This is a place for members with Crohn's Disease or Ulcerative Colitis to get ... more

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JavaMamma27

Joined: 11/30/2010

My Story:

I am in my early 30's, and I was diagnosed with moderate-severe Crohn's disease and non-celiac gluten intolerance on 11/24/10 after 20 years of symptoms. I was diagnosed with fybromyalgia at age 18 and chronic fatigue syndrome at age 20. In my early 20's I had multiple Dr's tell me my bleeding was hemmeroids or IBS without even investigating the problem, so I figured it was not a big deal. Not until I was having severe headaches, nausea, vomiting, and seizures did I start looking into what was wrong with me. I have had a CT scan, 2 MRI's, LP, EEG, EKG, dozens of blood tests, and finally an endoscopy and colonoscopy.

I am on Humira, 4500mg/day of Pentasa, 40mg prednisone, but not anywhere close to remission. I am in constant flare. I am unable to work due to severe headaches, stomach pain, and fatigue. It takes all I have to keep up with my kids right now.

I have now had 2 obstructions that landed me in the hospital for 4 days in March 2011, and 3 days in April 2001. My GI is 99.99% sure I have Crohn's but now suspects scar tissue to be involved in causing obstructions.

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Reply: Pregnant with Crohn's

I was undiagnosed during my pregnancies. I have 2 children, but I lost 3. Pregnancy was...

Posted by JavaMamma27

I was undiagnosed during my pregnancies. I have 2 children, but I lost 3. Pregnancy was very hard for me.

I will tell you this. You do get through the losses. My last miscarriage was 6 years ago this month. And as time goes on, I think of them less. I keep a little box in my night stand that has any "memories" of those babies. I know they are close to me. I had two losses before my son, then another after him, then I had my daughter.

I don't know much about these meds and pregnancy. But I did take ALLOT of meds while pregnant, and even had emergency surgery! And then was on morphine after!! I had to take pre-term labor meds every 2 hours for 2 months with both kids. I had to take anti-biotics and prednisone for pneumonia with my son. I took progesterone suppliments with both kids. I took muscle relaxants through both pregnancies for joint pain and inflamation. I took TONS of phenegren b.c I was unable to keep down water. Also Imodium daily to slow down the chronic explosive diarhea (from Crohn's).

I have 2 HEALTHY kids now.

I even nursed my daughter through back surgery, emergency surgery for a staph infection, and 6 weeks of PICC line anti-biotics. Oh, and demeral for pain control.

Take ONE DAY AT A TIME. Pregnancy is VERY VERY hard emotionally after you have lost a baby, and even harder after 2. But even after the baby is born, nothing is certain, nothing is safe, and you are always worried about something happening to your child. That is part of being a mom. The fear NEVER goes away, you just learn to accept it as a part of parenting. Being a mom is emotionally hard, and it starts while pregnant.

You will go on if something happens. It is VERY hard, but you manage. And eventually the awful pain gets less and less.

Also, have you visited the Pregnancy After Loss message board here on WebMD? I spent years over there when I was pregnant, and it was a HUGE support.

I hope everything goes well for you.

StephanieView Thread

Posted byJavaMamma27

5 Replies | Reply | Watch This DiscussionReport This| Share this:Pregnant with Crohn's I was undiagnosed during my pregnancies. I have 2 children, but I lost 3. Pregnancy was...

Reply: adding Lupron to the list

and menopause won't land me in the hospital! I am miserable on the prednisone. Random...

Posted by JavaMamma27

5 Replies | Reply | Watch This DiscussionReport This| Share this:adding Lupron to the list and menopause won't land me in the hospital! I am miserable on the prednisone. Random...

Reply: adding Lupron to the list

yup. That is the goal. We are going to try a "false menopause" before we make the...

Posted by JavaMamma27

5 Replies | Reply | Watch This DiscussionReport This| Share this:adding Lupron to the list yup. That is the goal. We are going to try a "false menopause" before we make the...

adding Lupron to the list

Trying to figure out why I am having these SEVERE flares that are landing my in the...

Posted by JavaMamma27

5 Replies | Reply | Watch This DiscussionReport This| Share this:adding Lupron to the list Trying to figure out why I am having these SEVERE flares that are landing my in the...

Reply: Experiment (I can't spell : )

Blueberries are a HUGE no-no!. I have had intermittin sharp stabbing pain for days and...

Posted by JavaMamma27

4 Replies | Reply | Watch This DiscussionReport This| Share this:Experiment (I can't spell : ) Blueberries are a HUGE no-no!. I have had intermittin sharp stabbing pain for days and...

Reply: Any advice for my first Remicade infusion?

I hope it works for you!

Posted by JavaMamma27

19 Replies | Reply | Watch This DiscussionReport This| Share this:Any advice for my first Remicade infusion? I hope it works for you!

Reply: Experiment (I can't spell : )

Nothing happened after eating that last night. I had more strawberries and bananas for...

Posted by JavaMamma27

4 Replies | Reply | Watch This DiscussionReport This| Share this:Experiment (I can't spell : ) Nothing happened after eating that last night. I had more strawberries and bananas for...

Experiment (I can't spell : )

My Dr TELLS me that there is less inflamation in my ilium. FOr dinner tonight I had...

Posted by JavaMamma27

4 Replies | Reply | Watch This DiscussionReport This| Share this:Experiment (I can't spell : ) My Dr TELLS me that there is less inflamation in my ilium. FOr dinner tonight I had...

Reply: What's for Dinner?

I LOVE quinoa. I brown it in a tbsp of oil, then add chicken broth to cook it in. I...

Posted by JavaMamma27

1 Reply | Reply | Watch This DiscussionReport This| Share this:What's for Dinner? I LOVE quinoa. I brown it in a tbsp of oil, then add chicken broth to cook it in. I...

Reply: Pancolitis, Anyone?

just googled pancolitis. Yuck. Sorry to hear that you have been diagnosed with that....

Posted by JavaMamma27

4 Replies | Reply | Watch This DiscussionReport This| Share this:Pancolitis, Anyone? just googled pancolitis. Yuck. Sorry to hear that you have been diagnosed with that....

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