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Crohns and Colitis Exchange

This is a place for members with Crohn's Disease or Ulcerative Colitis to get ... more

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JavaMamma27

Joined: 11/30/2010

My Story:

I am in my early 30's, and I was diagnosed with moderate-severe Crohn's disease and non-celiac gluten intolerance on 11/24/10 after 20 years of symptoms. I was diagnosed with fybromyalgia at age 18 and chronic fatigue syndrome at age 20. In my early 20's I had multiple Dr's tell me my bleeding was hemmeroids or IBS without even investigating the problem, so I figured it was not a big deal. Not until I was having severe headaches, nausea, vomiting, and seizures did I start looking into what was wrong with me. I have had a CT scan, 2 MRI's, LP, EEG, EKG, dozens of blood tests, and finally an endoscopy and colonoscopy.

I am on Humira, 4500mg/day of Pentasa, 40mg prednisone, but not anywhere close to remission. I am in constant flare. I am unable to work due to severe headaches, stomach pain, and fatigue. It takes all I have to keep up with my kids right now.

I have now had 2 obstructions that landed me in the hospital for 4 days in March 2011, and 3 days in April 2001. My GI is 99.99% sure I have Crohn's but now suspects scar tissue to be involved in causing obstructions.

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OT, But we got good news last night! WOOOHOOO!!

My husband got accepted to Grad School! He is going back to get his Masters in Theater...

Posted by JavaMamma27

6 Replies | Reply | Watch This DiscussionReport This| Share this:OT, But we got good news last night! WOOOHOOO!! My husband got accepted to Grad School! He is going back to get his Masters in Theater...

Reply: Staying Positive

I have had some of those thoughts lately. I have REALLY been struggling with depression...

Posted by JavaMamma27

9 Replies | Reply | Watch This DiscussionReport This| Share this:Staying Positive I have had some of those thoughts lately. I have REALLY been struggling with depression...

Reply: OMG I woke up DURING the clononsopy

you can regain consiousness during surgery, But they have more options to knock you...

Posted by JavaMamma27

11 Replies | Reply | Watch This DiscussionReport This| Share this:OMG I woke up DURING the clononsopy you can regain consiousness during surgery, But they have more options to knock you...

Reply: OMG I woke up DURING the clononsopy

general anesthesia requires an anesthesiolosit AND a breathing tube. It comes with more...

Posted by JavaMamma27

11 Replies | Reply | Watch This DiscussionReport This| Share this:OMG I woke up DURING the clononsopy general anesthesia requires an anesthesiolosit AND a breathing tube. It comes with more...

OMG I woke up DURING the clononsopy

AND IT FREAKING HURT. He was in my small instestine when I woke up and holy crap did it...

Posted by JavaMamma27

11 Replies | Reply | Watch This DiscussionReport This| Share this:OMG I woke up DURING the clononsopy AND IT FREAKING HURT. He was in my small instestine when I woke up and holy crap did it...

Reply: Start my prep in 11 hours, I can't wait!

UGH! I am freaking miserable. I do not want anything else to drink, I think I will...

Posted by JavaMamma27

10 Replies | Reply | Watch This DiscussionReport This| Share this:Start my prep in 11 hours, I can't wait! UGH! I am freaking miserable. I do not want anything else to drink, I think I will...

Reply: Start my prep in 11 hours, I can't wait!

So far I am half way through my "cocktail" and doing ok. I know I have a loonnnggg...

Posted by JavaMamma27

10 Replies | Reply | Watch This DiscussionReport This| Share this:Start my prep in 11 hours, I can't wait! So far I am half way through my "cocktail" and doing ok. I know I have a loonnnggg...

Reply: Start my prep in 11 hours, I can't wait!

yeah, I have been into the fruit snacks already! My daughter is home with me right now...

Posted by JavaMamma27

10 Replies | Reply | Watch This DiscussionReport This| Share this:Start my prep in 11 hours, I can't wait! yeah, I have been into the fruit snacks already! My daughter is home with me right now...

Start my prep in 11 hours, I can't wait!

AND I am flare-ing! Wait, when am I not? Bloody diarhea and mouth sores anyone?? I am...

Posted by JavaMamma27

10 Replies | Reply | Watch This DiscussionReport This| Share this:Start my prep in 11 hours, I can't wait! AND I am flare-ing! Wait, when am I not? Bloody diarhea and mouth sores anyone?? I am...

Reply: It's time for another colonoscopy. :(

I will be prepping on Thursday for mine on Friday. I do the Miralax one also. I get...

Posted by JavaMamma27

25 Replies | Reply | Watch This DiscussionReport This| Share this:It's time for another colonoscopy. :( I will be prepping on Thursday for mine on Friday. I do the Miralax one also. I get...

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