My husband got accepted to Grad School! He is going back to get his Masters in Theater Education. He has his undergrad in the same thing. A Master's will get him back into teaching, will double our income, and will give me access to HEALTHCARE COVERAGE!!!!! He won't be done for another 2 years, but this is a HUGE light at the end of the tunnel!!
I have had some of those thoughts lately. I have REALLY been struggling with depression (to be addressed with my new PCP soon) and frustration. And it dawned on me that this disease is not going away. Bouts of remission is the best I can hope for. I had better come up with a better wat of dealing with all this, or my life is REALLY going to suck. All I am doing is driving off my friends and family.
I need to re-plan my life. Some of my goals may not happen, but I can come up with others. There are too many options out there.
And my kids are not sick. That means everything. I would rather be the one battling this "crappy" disease (hahaha). As long as they are happy and healthy, what do I have to complain about! Heck!! I HAVE KIDS!! And considering what this disease does, I need to remember to THANK MY LUCKY STARS. So many women can't have kids. I struggled to get mine here, but I have them!
Surgeries, hospital visits, lots of medications, proceedures, tests- all are going to be part of my life now. I need to figure out how to accept it, and not let it ruin what I d have.
Now, if I could stop accumulating massive debt everytime I need treatment! But, oh well. It is ONLY money. Money comes and goes.
Everyday right now is a challenge. Some days are better than others. But no matter what- "Tomrrow is a new day with no mistakes in it" (Anne Shirley, Anne of Green Gables.)
I can't say I feel overly good. I am no where near remission. But HOPEFULLY, HOPEFULLY I can get there.
you can regain consiousness during surgery, But they have more options to knock you back out. I have been told that I have woken up under general, had numerous asthma attacks, and have been very restless. I also tend to have asthma attacks immediatly following general anesthesia. Inflamation goes crazy in my lungs when they use a breathing tube.
So I would prefer consious sedation when it is possible. I will have to see what he plans for the next colonosocpy. If he stays in the colon, then I am fine with Versed/Fentenyl. If he venterues into my small intestines, he will do it under general.View Thread
general anesthesia requires an anesthesiolosit AND a breathing tube. It comes with more risks, ie, pneumonia. Concious sedations is what is generally used for prceedures- colonosopdy, endoscopy, D&C's, etc. It is shorter lasting, does not need a breathing tube or anesthesiologist to administer it. I have had 14 surgeries, some with consious sedation, most under general anesthesia. I was even fully awake during my c-section with nothing more than a spinal block! That was a trip, knowing my guts were literally being messed with while I was fully awake!View Thread
AND IT FREAKING HURT. He was in my small instestine when I woke up and holy crap did it HURT. I was crying and whimpering. It WAS AWFUL. I WILL NEVER DO ANOTHER COLONOSCOPY WITHOUT GENERAL ANESTHESIA AGAIN.
Crohn's looks MUCH better. Still there, still some inflamation, but better than 5 months ago. Not bad enough to justify the abdominal pain that I have. So I have to see my OB/GYN and a surgeon to look for scar tissue adhesions AND endometriosis (previous diagnosis).
My Husband is pissed and being a total jerk about it all since I don't have insurance and we are struggling to get care as it is. I know when all the meds wear off I am going to have a freak out also. I have no idea how I will get treatment. I have no idea how I can afford surgery. I have no idea how I will ever feel good or functional again. And the thought is so depressing that I just want to sit and hide and cry. What surgeon will even see me with insurance or payment up front, which I don't have either. I have to also change PCP's so that will probably stop what little pain meds I get for this.
UGH! I am freaking miserable. I do not want anything else to drink, I think I will vomit if I have anything else sweet or any broth to drink. I was up all night in the bathroom. I caught a couple short naps, but this sucks.
I got through the whole 64oz of gatorade. Took me 12 hours.
yeah, I have been into the fruit snacks already! My daughter is home with me right now and my son is at school. My husband will leave work at noon, pick up me and the girl, then we'll get the boy and head down to my dad's house. My GI is 80 miles away and my dad lives by his office. We will spend the night there and I will start my miralax when we get there. I plan to set the computer up in the bathroom, and "camp" there overnight! Ha ha ha ha!!
I am a fat chick, and I am always eating, so clear liquids for a day is a challenge for me! LOL!!View Thread
AND I am flare-ing! Wait, when am I not? Bloody diarhea and mouth sores anyone?? I am actually not that upset about clear liquids tomorrow since my stomach is awful today, and solids do not want to stay down either.
So hopefully, in 36 hours from now we will have a better idea of what the Crohn's is doing, and what the next step in treatment is. So far he has 3 directions
1. Crohn's is active. Double Humira and/or add other medications. 2. Crohn's is NOT active, so I get a referral to a surgeon to look for scar tissue adhesions from previous surgeries. 3. Crohn's is active AND I get a referral to a surgeon to look for adhesions AND I get medicaions changed/added.
Friday will give an idea of what to do next. I am not sure which of those I think is better. THEY ALL SUCK. But HOPEFULLY we get some idea of why I keep landing in the hospital and why I can't seem to get better.