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Joined: 11/30/2010
My Story:
I am in my early 30's, and I was diagnosed with moderate-severe Crohn's disease and non-celiac gluten intolerance on 11/24/10 after 20 years of symptoms. I was diagnosed with fybromyalgia at age 18 and chronic fatigue syndrome at age 20. In my early 20's I had multiple Dr's tell me my bleeding was hemmeroids or IBS without even investigating the problem, so I figured it was not a big deal. Not until I was having severe headaches, nausea, vomiting, and seizures did I start looking into what was wrong with me. I have had a CT scan, 2 MRI's, LP, EEG, EKG, dozens of blood tests, and finally an endoscopy and colonoscopy.

I am on Humira, 4500mg/day of Pentasa, 40mg prednisone, but not anywhere close to remission. I am in constant flare. I am unable to work due to severe headaches, stomach pain, and fatigue. It takes all I have to keep up with my kids right now.

I have now had 2 obstructions that landed me in the hospital for 4 days in March 2011, and 3 days in April 2001. My GI is 99.99% sure I have Crohn's but now suspects scar tissue to be involved in causing obstructions.

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Reply: I got in!
Congrats!!! Yay!!! The program I want to do is a 13-month accelerated. But I need to...More
Posted by JavaMamma27
Reply: crohns meds???
you don't want to be on prednisone long term, and it is used to control inflamation,...More
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Reply: JavaMamma27
Mindy, thats fine. Give me your email and I will find you on facebook. (My email uses...More
Posted by JavaMamma27
Reply: What's Up Wednesday - How Would You Finish This Se...
I was told after my colonoscopy as I was waking up, and it really didn't phase me. 6...More
Posted by JavaMamma27
Hoping to go home today!
Things opened up last night and are now moving through. I slept really well last night....More
Posted by JavaMamma27
Reply: Looking for a little hope...
I don't have much to offer except to tell you that you are not alone. I feel like...More
Posted by JavaMamma27
Back in the Hospital
Yup, back in the hospital. On solu-medrol, morphine, vicodin, sennacot, lovonox and...More
Posted by JavaMamma27
Going to the ER. Everything is shut down... AGAI...
I am obstructed. No gas, no stool. Vomiting bright green. Unable to keep down liquids...More
Posted by JavaMamma27
Reply: I have had enough
you hear of people you get sick or injured and their friends & family come out and...More
Posted by JavaMamma27
Reply: Asked for help
All my helpers bailed on me this morning. I freaking give up.
Posted by JavaMamma27