The program I want to do is a 13-month accelerated. But I need to be a whole lot healthier- ha ha ha. Right now I can't even keep a 15/hour a week job.
So glad you are going to school now. I do have my BS. and I am so freaking glad that I am not trying to get my degree with kids, and Crohn's and life in general. Do it while you are YOUNG!!! Especially when considering your health issues.
I was told after my colonoscopy as I was waking up, and it really didn't phase me. 6 days later at my GI appt when my GI was talking about the mechanics of it, the medicaitons, the long term-prognosis I was SHOCKED. I was crying on the way out of the office. I sobbed in the car on the way home. When I heard "immunosupressant" drugs I was DEVISTATED. I struggled to stay healthy with them, and felt like my dreams were crushed. I was planning on nursing school, but if I can't fight infection, how can I be a nurse?? I cried all day. I cried for days. Then I got ANGRY. And as I jkept having flares, and pain, I felt CHEATED by life. Then my back was giving me issues b.c I can't take NSAIDS for it. Then I felt DEFEATED. Then after 2 hospitalizations, 2 colds, an ear infection, and sinus infection all on Humira, I just feel DEPRESSED and HOPELESS. Everyday is a struggle right now.
I have still not made peace with the dx. I still feel like my life was stolen from me. I will be 31 next month. I can't keep up with my kids, my home, my friends, my job. It has been nearly a year since I have had a night out with the girls or a date with my husband. I have not been able to take my kids to the zoo or museum. I go from test to Dr appt, to test, to hospital, to Dr appt. I have no life anymore.
I am still very upset with all of this. The financial burden is overwhelming. I am now at 40K I can't pay with no end in sight. No idea how I will pay for surgery or a surgeon. But if I can't get that done, I can't get better.
I feel like this disease has ruined my my life.View Thread
I don't have much to offer except to tell you that you are not alone. I feel like Crohn's has stolen my life. I have been unable to work for 6 months, and most days are a struggle. I am in the hospital for the 2nd time in less than 30 days. The last stay was 4 days, don't know how long it will be this time.
Feel free to vent here. I am SO THANKFUL for everyone here. Most days I don't know what I would do without my fellow IBD sufferers.
you hear of people you get sick or injured and their friends & family come out and help, check on them, and support them. To me, it''s fiction.
I come from a family where you work hard and take care of yourself. My grandparents, parents, aunts, uncles, all feel that way.
I called to refill my Humira, and my GI never put refills on the script! WTH?? I am out of Pentasa and can't afford to fill it. I got lectured about "non-compliance" at my last appt on my meds, but how the hell am I supposed to follow through when I can't afford them, or the Dr office looses the assistance paperwork or doesn't give me refills????
Give me a freaking break here!!!! I didn't ask for this. I didn't make it up. I didn't look for this. I never wanted this and I still don't want it.