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JavaMamma27

Joined: 11/30/2010
My Story:
I am in my early 30's, and I was diagnosed with moderate-severe Crohn's disease and non-celiac gluten intolerance on 11/24/10 after 20 years of symptoms. I was diagnosed with fybromyalgia at age 18 and chronic fatigue syndrome at age 20. In my early 20's I had multiple Dr's tell me my bleeding was hemmeroids or IBS without even investigating the problem, so I figured it was not a big deal. Not until I was having severe headaches, nausea, vomiting, and seizures did I start looking into what was wrong with me. I have had a CT scan, 2 MRI's, LP, EEG, EKG, dozens of blood tests, and finally an endoscopy and colonoscopy.

I am on Humira, 4500mg/day of Pentasa, 40mg prednisone, but not anywhere close to remission. I am in constant flare. I am unable to work due to severe headaches, stomach pain, and fatigue. It takes all I have to keep up with my kids right now.

I have now had 2 obstructions that landed me in the hospital for 4 days in March 2011, and 3 days in April 2001. My GI is 99.99% sure I have Crohn's but now suspects scar tissue to be involved in causing obstructions.

Latest Activity

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I have had enough
I swear, I think I am at my limit of how much of her crap I can take. This morning my...More
Posted by JavaMamma27
Asked for help
I asked 6 of my family/friends for some help next week getting caught up around my...More
Posted by JavaMamma27
Reply: What's Up Wednesday - If I Was a Superhero I would...
Telecanisis (sp?). I want to control objects and people with my mind. Do I have control...More
Posted by JavaMamma27
Reply: Colonoscopy next Thursday
My job is physically demanding. I work from 6-11pm, AFTER being a stay-at-home-mom all...More
Posted by JavaMamma27
Reply: UGH!! Seriously?
Good thing I have my colonoscopy next week. I started bleeding today! Is there no end?...More
Posted by JavaMamma27
Reply: Scarring is Scaring Me! Do you have scarring? What...
mine is doing them "as needed". We are doing one next week- my second one in 5 months...More
Posted by JavaMamma27
Reply: UGH!! Seriously?
I am taking my pain meds. It is the only way I can rest. I do have to time and space...More
Posted by JavaMamma27
UGH!! Seriously?
Now I have an ear infection AND a sinus infection. ON TOP OF THE FLARE THAT I AM IN!...More
Posted by JavaMamma27
Reply: Colonoscopy next Thursday
So I cried myself out last night and went to bed very congested from a head cold and my...More
Posted by JavaMamma27
Colonoscopy next Thursday
My colonoscpoy is scheduled for next thursday. Lucky me. My 2nd one in 5 months. ...More
Posted by JavaMamma27