Too much! The most valuable thing that I've lost would be relationships and understanding from the people that I love.
The hardest thing for me to accept is being misunderstood all the time by friends and family. It has created a wall between me and them. These forums and communities are a blessing in my life. It's seriously the only support I have where people actually understand me.
I actually just created a Community for people that could benefit from support and understanding in regards to illness - specific to digestive problems. If you're in need of health and wellness support or just need to feel understood by someone, I encourage you to participate and share.