LauraLW

Joined: 01/02/2012
My Story:
Diagnosed with crohn's at age of 23 after losing 75lbs in three months. At the time, I had disease in my stomach and small intestine only. I achieved remission with Remicade and then lost insurance coverage, so was not on any medication for a few years. Maintained a tolerable level of health until I began suffering flares that couldn't be controlled with prednisone. I began taking Humira once a week and while that did help considerably, I still had significant disease and I began developing abcesses/fistulas. I had a resection of my terminal ileum and proximal colon. The decrease in symptoms allowed the abcessing to cease for awhile, though an extablished fistula tract to the skin remained. I achieved enough of a remission at age 29 for my GI dr to say it may be safe for me to attempt pregnancy. My husband and I were blessed with a healthy, beautiful baby girl born Dec 2010 by planned c-section. While pregnant, I did not take Humira, as I was concernd about possible side effects for my daughter (against my dr's advice). I had another bout of abcess/fistula after she was born. Impossible to know if I would have been sick if I stayed on my meds while pregnant or not...but I have never regretted my decision to be med-free during pregnancy. Three months after she was born, I had a colostomy and though the adjustment period was a little rough, I know it was the right decision for me. I know that crohns will always be a part of my life and who I am. I know that I will most likely not be able to maintain remission forever as my GI doctor has told me that I have "refractory/malignant" crohns, but I'm committed to doing everything I can to be well and keep hoping that new treatments are coming out. I do believe that I am a better person because I have been touched by disease. I believe that I have actually been given a gift that allows me to be more forgiving of others, to be of better service to others, to let the unimportant things in life slide and just embrace the life that I have. Sappy....yuk....just hope all those out there with crohns/ulcerative colitis and all who are sick can find health and well-being.

Latest Activity

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Reply: Crohns/Fistula/GI/Help!
Hi, I'm sorry your husband is so sick! I, too, suffered with anal fistulae, so I...More
Posted by LauraLW
Reply: Crohns, Clomid and Trying to get pregnant
Hi Jaime, congratulations on starting a new chapter in your life I was on clomid for...More
Posted by LauraLW
Reply: Remicade & Pregnancy
Jaime, sorry about the confusion! I wish you all the best and hope you are blessed with...More
Posted by LauraLW
Reply: Remicade & Pregnancy
Hi Jaime, congratulations on your pregnancy! When I was pregnant, I was on Humira. My GI...More
Posted by LauraLW
Reply: tysabri anyone?
That's too bad Hannah. I got my results back and I also tested positive for the JC virus. I...More
Posted by LauraLW
Reply: Not headed for surgery
I am so happy to hear that you are doing well!!! Good luck Friday and I hope you DO have a...More
Posted by LauraLW
Reply: tysabri anyone?
Hi Hannah, thanks for replying. I thought you'd said you were on Tysabri. I'm glad you're...More
Posted by LauraLW
tysabri anyone?
Hi everyone, I lost response to Humira and Cimzia wasn't effective for me, so Tysabri was...More
Posted by LauraLW
Reply: Crohns Disease question
Hi Nicole, I'm sorry your mom isn't feeling well. It's so hard to see our loved ones so...More
Posted by LauraLW
Reply: Length of remission with IBD?
Hello, sorry you've not been feeling well. I also agree w/ sheba and arbob that you should...More
Posted by LauraLW