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Joined: 01/02/2012
My Story:
Diagnosed with crohn's at age of 23 after losing 75lbs in three months. At the time, I had disease in my stomach and small intestine only. I achieved remission with Remicade and then lost insurance coverage, so was not on any medication for a few years. Maintained a tolerable level of health until I began suffering flares that couldn't be controlled with prednisone. I began taking Humira once a week and while that did help considerably, I still had significant disease and I began developing abcesses/fistulas. I had a resection of my terminal ileum and proximal colon. The decrease in symptoms allowed the abcessing to cease for awhile, though an extablished fistula tract to the skin remained. I achieved enough of a remission at age 29 for my GI dr to say it may be safe for me to attempt pregnancy. My husband and I were blessed with a healthy, beautiful baby girl born Dec 2010 by planned c-section. While pregnant, I did not take Humira, as I was concernd about possible side effects for my daughter (against my dr's advice). I had another bout of abcess/fistula after she was born. Impossible to know if I would have been sick if I stayed on my meds while pregnant or not...but I have never regretted my decision to be med-free during pregnancy. Three months after she was born, I had a colostomy and though the adjustment period was a little rough, I know it was the right decision for me. I know that crohns will always be a part of my life and who I am. I know that I will most likely not be able to maintain remission forever as my GI doctor has told me that I have "refractory/malignant" crohns, but I'm committed to doing everything I can to be well and keep hoping that new treatments are coming out. I do believe that I am a better person because I have been touched by disease. I believe that I have actually been given a gift that allows me to be more forgiving of others, to be of better service to others, to let the unimportant things in life slide and just embrace the life that I have. Sappy....yuk....just hope all those out there with crohns/ulcerative colitis and all who are sick can find health and well-being.

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Reply: I'm new to the group
Hello Mrs, welcome to the group and hope you are doing well! There are a lot of great...More
Posted by LauraLW
Reply: Crohns and Salmonella Poisoning
Hi Heather, I'm sorry you're feeling so sick and frustrated right now. Not only are you...More
Posted by LauraLW
Reply: Welcome Roll Call
Hi Brandi, you're likely feeling pretty sick right now -- to go in to the doctor and have...More
Posted by LauraLW
Reply: Please Help!
Hi raikage, sorry you're not feeling well. Your symptoms do seem suspicious for a digestive...More
Posted by LauraLW
Reply: considering resectioning surgery
HannaLeigh, I hope you do keep up with nursing school...I can tell you're going to be a ...More
Posted by LauraLW
Reply: Not headed for surgery
Hi. I hope you get to feeling better soon. I'm glad that your dr is ordering some good...More
Posted by LauraLW
Reply: joint pain with colitis?
Hi Miss Emma, I'm sorry you're not feeling well. I have crohn's and have experienced...More
Posted by LauraLW
Reply: Remicade Starting Concerns
Hi, I am glad that you are starting to feel better. I have always been told that what it...More
Posted by LauraLW
Reply: can't bounce back
Hi Meg, I see your original post was 2yrs ago. I hope that these years have found you...More
Posted by LauraLW