I get them as well...though I'm usually in some sort of pain 80% of the time. Sometimes it's because of spasms, sometimes constipation, sometimes diarrhea, sometimes just food moving through my system...makes me wanna blow my brains out on a daily basis.View Thread
I'm glad you had a good experience with your doctor....that matters sooooo much. I hope he comes up with some answers for you. Just remember, unfortunately, it will probably months if not years before you feel like you did before you got sick...just ask the others on this site.
As far as the emotional part, I agree, it is really hard to have a positive emotional state after dealing with all that you deal with. I still cry on almost a daily basis...whether from pain, or frustration, or the frustration of living with pain that nobody can see or understand.
Try to hang in there. I know it's easier said than done, as I've considered offing myself from all this, but I'm still here, so far, so I hope you are too and that things will start to look up for you. I'll keep you in my prayers.
It sounds like you are asking all the right questions. From my experience, I know you can go into remission (yes, that is the right word), but unfortunately it may take time until your GI and your body figure it all out. I get chronic constipation, followed by a day or two of diarrhea. I have met many people who are constipated instead of having diarrhea.
When your doctor said to "keep him posted" I doubt he meant every time, my doctor usually means to keep track and tell him generally how things are going. Also, if the bleeding doesn't subside or if it gets worse, definitely talk to your doctor right away.
As far as piece of mind from cancer, make sure you get colonoscopys as recommended to keep it in check. As long as you keep up with preventative care, most colon cancer is preventable or containable. (from my reading at least, and from the profuse amount of colon cancer that runs in my family)
As far as your stomach size and constant pressure, you will feel some relief when you finally go to the bathroom...however, I always have fluctuations in stomach swelling because of the variance between constipation and diarrhea. Also, I have yet to be pain-free for any length of time since being diagnosed....but I found that my definition of "pain" has changed and I'm able to tolerate it much more. Additionally, there are meds that help with the pain, so ask your doctor about that. Please know that this community is a great resource of people and experience and that we care about you, so keep us updated!View Thread
I'm sorry to hear about what you've been through...hopefully things will start to look up for you...don't lose hope! I was allergic to the first 7 meds that I was given after being given mixed diagnosis, so I know what it's like to feel like things are just getting worse and never feel like they are getting better. Hang in there and keep us updated. This is a great community that does care and has been really helpful with my journey through this. Praying for you!View Thread
Everybody is different as to what you can eat...somehow there are a hundred books out there about what you should eat, however, from meeting people with IBD, it seems like we are all different. For example, dairy is always a good idea for me...greek yougert, cottage cheese, protein shakes...but for some people dairy is a trigger, so my best advice,(and what my doctor told me) is to introduce one new food at a time and wait 2 to 3 days to introduce something else so you can tell if that food bothers you or not. Good luck, and know that we support you!View Thread
I'm doing the loading dose thing...i had my first on Monday, then my next is two weeks from that, followed by one 4 weeks from that. Then, I'm on the eight week cycle. I really hope it works because I'm allergic to all other drugs for IBD except for Biologics (so far).View Thread
Everything went well. I can't believe you drive that far for treatment Hannah and jaimem92. Luckily, where I live we have a great health system and I only have to go 10 minutes from my house. So far, I feel okay...I didn't sleep through the treatment, but I've had less energy than normal the past two days. Yesterday I had waves of nausea and today my feet itched like crazy, but other than that, I'm good. How long did it take being on Remicade before you started feeling better?View Thread
Today I start Remicade...I am nervous and excited. I'm nervous because I have no family in the area and nobody to take care of me should I feel worse. Excited because I'm hoping that this will be the thing that finally puts me into remission for the first time. Having IBD is lonely enough without anyone to be a support system around me that is physically there, so I'm going to be optimistic about this and be positive that soon I will feel like my old self again and will be out doing the things I love and making new friends. Wish me luck! It can't get any worse, right?View Thread