I was diagnosed via colonscopy/endoscopy with ulcerative colitis the other day. This has been an ongoing battle for me for the last several years. I eat "clean" meaning I try to stay away from processed foods except for a bowl of Kashi or two a week which I know now to stay away from. I have had problems with my bowels for several years with the past three being the most trying. I went to my doctor three years ago with bleeding, cramping, feeling as though I had to "go" all the time, and weight loss. I was told I probably had bad hemorrhoids. They did do an endoscopy and then tried to do a colonoscopy in which I woke up so they stopped. Three months later after my symptoms had cleared up, they went back and did a second colonoscopy and found nothing but three polyps. Two months ago - I started having symptoms again. I had constipation, feeling like I had to "go", bleeding, and pain. I had another endoscopy and colonoscopy on Monday and was told that I have ulcerative colitis which is almost what I had expected to hear during my first colonoscopy. I am a little overwhelmed at this point because they did biopsies and an IBD panel. I am not sure what the IBD panel says - if he saw the ulcerative colitis - is this a definite diagnosis or is there further diagnosis. I have an appointment with him again in two weeks - in the meantime, I am on mesalamine suspension enemas. I am running a half-marathon in three weeks as well and really am pushing myself to finish that. I have a list of questions, but are there any recommendations of questions that I should ask and just don't know enough at this time to ask. Also, my doctor is a GI specialist, but should I find someone who specializes in Colitis/Crohn's and make an appointment with them. Any thoughts?View Thread
I notice when I put any kind of grain into my diet. But I didn't notice much from the UC till I started adding grains back in to my diet - that is where the difference came in. I read the Paleo Diet for Atheletes book and strongly believe Loren Cordain has some valid points and Robb Wolf (who has UC, I believe) wrote a Paleo book, as well. But everyone is different so what works well for one may not for others although I am still a strong believer in diet. I am an athlete and run marathons, but at one point in my life I was quite overweight. You don't have to starve yourself to lose weight or get healthy, but you have to be willing to put time into your meals and exercise. I make sure I cook a lot of chicken on Saturday or Sunday and prepare my lunches for the week. I buy most of my veggies at the Farmer's market on Saturday and find it cheaper than shopping at the grocery store. I eat a lot of fish, beef, pork, fruits, and veggies and I am never hungry!!! Best wishes. I am learning this can be really hard since I had a bad day on Saturday, but I am just going to do the best that I can and hope to keep my weight steady and my health as good as it can be.View Thread
I didn't do the probiotics....I just changed my diet completely. I already didn't eat processed foods, but now I only eat meat, veggies, and fruit. I think that has made a good difference for me. I still once in awhile will have some grains, but infrequently. I found that peanut butter really hurts my stomach so I stay away. I do agree that everyone is different - but I also believe there is something to this diet thing.View Thread
I have just been diagnosed last Monday with colitis and this is my second really bad flare up in three years. I have small issues throughout the years that I didn't realize what they were, but I do now. I am really concerned about staying with my GI doctor and wanted some feedback and opinions.
My concerns are due to the approach that I have seen from my GI. For instance, I had a horrible flare up three years ago and went to someone my mom recommended. I never saw the doctor till the procedure - only the NP - I like her. The symptoms were bad (bleeding, having problems going, double over pain, you name it - it was there) so they scheduled me for a colonoscopy/endoscopy. They found H. Pylori and gastritis in the endoscopy, but I woke up in the colonoscopy so they stopped. After the procedure, the doctor said that he wanted to wait until the inflammation calmed down some. They went back three months later and I am pretty sure they did a sigmoidoscopy and is this sufficient to diagnose colitis and if they did actually do a colonoscopy - shouldn't this have been found during biopsy.
The other part is that when I had the colonoscopy last week and the dr. came in to speak with me after - he said that they missed this the last time and that he didn't get up into the upper part of my colon because he just wasn't able to.
Plus, lastly - when I meet to discuss all this next Friday (giving time for medication to work), I won't meet with him - only his NP. I am feeling I want a second opinion on the whole situation - I have maybe lost trust. Has anyone ever had an experience like this.
Please don't think I am trying to find someone to blame my condition on. I work with physician's and researchers all day long since I write federal grants and know their challenges, but this is my health and I am not feeling like my condition is being taken seriously in how this particular establishment allows their practice to be run.