Crohns and Colitis Exchange
This is a place for members with Crohn's Disease or Ulcerative Colitis to get ... more
See All
Preferences
My Communities
My Discussions
My Email Digests


I am so happy to hear that you are proactive about your diagnosis and ready to begin whatever is needed to feel "better". I think with your outlook, patience and research you will do very well in your new Crohns adventure. ( I look at it as an adventure that only a person with Crohns can explain.)
If things seem rough for your husband because of questions or not knowing how to help you, let him know about these sites. They are great for family members too. If he has a question, have him throw it out there and it might help. It's something the whole family adjusts too, not just the person with the disease.
Prayers and God Bless,
HeatherView Thread

HeatherView Thread

I have a reaction to Humira however it's a little different. I get the feeling of my skelton being set on fire when the medication is dispensed and lasts for quite sometime, depending on each time. My doc took me off stating that a patient should not have to convince herself into taking her meds for hours. My husband would actually "force" me to take it because I hated it so much. I don't usually have reactions, my issue is I build an imunnity and the meds stop working. I have taken Cimzia before and was not "bad" and I did see short term results. I would have continued if able but changed to Remicade which is what my doc is putting me back on. I take it in conjuntion with methotrexate to make it last, we will be starting it soon and I pray it works. I am finding it's hard to find a GI that really wants to "listen" to me and not go by a book. I am praying that my new doc will relize I have done it long enough I know my body. My fav GI moved and I am having a hard time with the change because once you find one you love it's hard to deal with a new one! Please let me know how you are doing and keep us posted
View Thread
Here whenever you need someone I love this site. Has really helped me during some scary times.
Prayers for you and please keep in touch
View Thread
Laura, so glad to read you were able to get over the illness and I can so relate with you. They have been testing me for the last 5 months and they all come back positive I still have salmonella. I now am having various joints swelling for no reason which can be a sign it is in the blood and causing infection in the joints. I am addressing that today when I go see the GI. Thank you for your support, it is greatly appreciatied and needed right now! TY!
Hannah,first thank you for responding and your concern and support but, yes you are correct in what you are stating. It's the same I was on before and she wants me to try 4 weeks of it. It's Cipro which I have taken MANY times in the past which leads me to the concern of resistance which is very common for me with medications. I didn't see alot of change with it last time but was also informed after 8 years how to properly take it and I sooo didn't regulate alot of things that will make it ineffective. I still see no change though even after taking it properly.
I do have an appt today with the GI after having a colonoscopy last week showing inflamation(of course), ulcers, bleeding lesions and stricture. That was located at the surgical site from small bowel resection and could not go past it with the scope. She sent me a message stating "Hi, I think restarting remicade is a good idea". YEAH- ya think!! LOL
I appreciate you returning a post to me, it really helps to know I'm not alone!View Thread

View Thread
View Thread

HeatherView Thread
See Related Digestive Disorders Communities
Women's Health Newsletter
Find out what women really need.
Other Member Communities
- Dieting Club: 10 - 25 Lbs Member Community Share Your Tips and Support!
- Caregiving Member Community The Support and Understanding You Need!
- Parenting Friends Talking Member Community Get Support from Members Like You!
-
More Related Communities
The opinions expressed in WebMD User-generated content areas like communities, reviews, ratings, or blogs are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. User-generated content areas are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions. Some of these opinions may contain information about treatments or uses of drug products that have not been approved by the U.S. Food and Drug Administration. WebMD does not endorse any specific product, service, or treatment.
Do not consider WebMD User-generated content as medical advice. Never delay or disregard seeking professional medical advice from your doctor or other qualified healthcare provider because of something you have read on WebMD. You should always speak with your doctor before you start, stop, or change any prescribed part of your care plan or treatment. WebMD understands that reading individual, real-life experiences can be a helpful resource, but it is never a substitute for professional medical advice, diagnosis, or treatment from a qualified health care provider. If you think you may have a medical emergency, call your doctor or dial 911 immediately.
Health Solutions From Our Sponsors
©2005-2013 WebMD, LLC. All rights reserved.
WebMD does not provide medical advice, diagnosis or treatment. See additional information.

