I can understand all, except for the fistulas. Thankfully I have not had them yet! Everything you have had removed, I have too! I am 61, and have had CD since 1970. My flares were on and off until 2000 when the doc found a carcinoid tumor between my SB and Colon, it had not gone thru the wall. IN Oct. 2000 I had surgery to remove the tumor, which was not cancerous, thank God. I was in the hospital for 28 days, split from stem to stearn! I was given such high powered antibiotics, that I had to be hospitalized in Feb 01 for 7 days with UC. I have been in my current flare for over 2 years! Nothing has/will control it! I weigh 95#, and am 5'6, since 6/11 I have lost 49#'s right in front of the GI Dr.! Do you think he cared? I am steroid tolerant, none of the ASA drugs will work, so I agreed to go on Humiria, which is a biologic like Remicade, only you can give the shots at home, rather than the IV @ hospital with Remicade. I too suffer with Chronic Pain, and NO ONE can understand, unless they suffer from it. Then put the CD spasms, and pain on top of that! I have been turned away from 2 ER's, as starving is Not an emergency! I am tired, frustrated, angry, and know if help does not come soon I will die! Go to Abbott.com and request the book on CD, it is really good, also go to the CD/UC Foundation website, they have great info also. Read,& read, learn all you can about Crohn's, the dr's do not know everything about this horrible disease. You learn how your body responds, know when your potassium, sodium, and vitiams are low, then when you go to the Dr or ER, you tell them what is wrong and make them understand that YOU are aware of your disease! You also can have me for support, if you chose. I wish all of the blessings of God for you! You are not alone, you have the support of all those with this disease, as only we can understand what it does to us! Hang in there, keep fighting, and hopefully someday someone will find a cure!View Thread
Boy do you have this right, Johnny! IV potassium is the MOST PAINFUL treatment I have ever received! I have "run out" more than 5 times,one time I was so low that the ER staff "squesed" a liter into my vein, I thought I was going to die from not only the potassium, but from the cold fluid!! The last IV I had the ER Dr. gave me an RX for the tablet! They are HUGE, I break them in half, I will get them down somehow, just no more IV Potassium!! I also take 2 per day!
I also recommend that anyone that has Crohn's check your level, and just like Johnny said: YOU DO NOT WANT AN IV!! Unless you like horrible pain! Just a bit of info on IV potassium, it is the lethal drug used for lethal injection! The first is a vein nummer, the 2nd is a sedative, and then the 3rd is the potassium!! (the doctor told me this) Why do they get the first two, we real sick people only get the 3rd!View Thread