I still tend to wander by here, mostly in lurk mode to report all the spam that's been showing up.
My colitis has been pretty well overall. I've passed the 20 year mark, when my GI wants people to be scoped every other year. She must have been really impressed with my last few scopes as she wrote on the report that I should get my next colonoscopy in 3 years. My GP made a point of reading that out to me.
I'm taking a blood pressure med now - thanks family medical history of that. Actually I can't complain too much, as at least the doctor knew to check for it and started me on a low dose med as soon as it started consistently showing a bit high. I made some minor diet changes too.
At the moment I have a minor outer ear infection, for who knows why (haven't been swimming or anything like that). It's been a bit of a comedy routine, getting a drop in my ear without actually putting the dropper in my ear, and then tilting my head at various angles to get the drop right in my ear. Then I get to walk, with my head still tilted, to go lie down for a few minutes and let it soak in a bit.View Thread
It depends on which variety you have. Did the doctor say you have a specific type of colitis? Some doctors use the term generically to mean that you have inflammation in your large intestine.View Thread
Which med were you on before Lialda arbob? I'm asking 'cause it's a megadose of mesalazine (which comes up with a few different names), and it might be cheaper to take the non-megadose, multi pills a day version instead.
I worry about you not taking it at all. Over the years I've varied the amount of Dipentum I take daily - and I know if I'm not taking enough as I'll start seeing blood. There's a very real chance of your colitis acting up if you're not taking meds for it (and there are horror stories to be found about sulfasalazine).
I'm very thankful that I'm in a situation where I don't have to worry about prescription bills. Years ago I added up just the med costs (left off the dispensing fees) and the numbers were scary.View Thread
If you're early in the diagnosis stage, then I can understand why your doctor doesn't want to commit just yet. You have an IBD - even getting that far is a lot. Problem is there are a few IBDs with overlapping symptoms, so narrowing it down can take some time. Here's a quick overview (look at Classification): https://en.wikipedia.org/wiki/Inflammatory_bowel_disease
Along with symptom overlap, there's also treatment overlap. It's often a case of trial and error to figure out which med is best for each person. I'm one of the lucky people here in that it only took two tries to find a maintenance med that works for me.
I wouldn't bother with what your family thinks of it right now. They don't understand what you're going through. For the time being all that matters is that you begin to feel better.View Thread