I've had colitis for over 18 years now and take Dipentum for it. Over the years the number of pills I've had to take for it has gone up and down. For many years I've had the doctor ask me how much I need - not the doctor telling me how much I *should* be taking. I wish I could wean off the meds completely but I know that's not going to happen.
While it might not appeal to your doctor, I see no harm in trying to (very) slowly reduce the number of pills you take. Remove one pill a day and keep it like that for a month to see what happens. If you start having problems go back up to your old dose, otherwise keep slowly moving down.
You'll never be able to not take meds at all, but it may be possible to take less of them. On the other hand you may have been so lucky because the amount of meds you've been taking has kept it under control. Have you always been at 6 Asacol a day, and do you take anything else (vitamins, supplements, etc)?View Thread
Keeping reminding yourself "Rome wasn't built in a day." You've had this for years - taking meds for a few days/weeks isn't long enough to make a difference. Sadly there is no such thing as a magic pill that's going to make this go away with just one dose.
Here's an IBD starter diet. One of the fun things we get to deal with is that there isn't a set diet, other than "don't eat what bothers you" - like that helps when it seems like pretty much everything bothers you.
* eat smaller meals at more frequent intervals * avoid eating many processed foods * avoid citrus fruit and anything highly acidic * reduce the amount of rich, greasy and fried foods * limit consumption of milk and milk products * restrict your intake of high-fibre foods * avoid whole corn (inc popcorn) * cut back on sugary foods * avoid alcohol (esp beer)
As much as you may not want to take another pill, it's probably in your best interest to right now. I'm weird with antidepressants (the standard SSRI's that they prescribe do nothing for me) but I'm not against them. You're having a difficult time and you need help coping. Also small doses of antidepressants are prescribed to calm the 'second brain' we have in our belly, so taking one could doubly help.
What you're seeing may only be the shell casing and not the whole pill. It comes up on here every so often with Asacol.View Thread
When I've brought up colitis and antibiotics with doctors, the answer has been 'don't take them unless you really really need them'. I've only taken them once in the last 15 or so years, and even then my doctor was careful about which one she prescribed.
I have trouble understanding why you would be taking them often (other than knowing that antibiotics are heavily over-prescribed).
I don't know why any doctor would say there aren't any long term side effects. Pred is known for messing with a persons bones, leading to osteoporosis. If you haven't already I'd suggest starting a Cal/Mag supplement.View Thread
I have ulcerative colitis and take a 5-asa so I'm in a different situation that you. But...
I think the idea of not taking meds really isn't good. I can see it for the moment if you're trying to get pregnant. After that though, you have to get your mind around the fact that you have a serious medical condition, and waiting for the bottom to drop out before you treat it is not exactly the sanest thing to do.
I've had to take meds every single day for the last 18 years. It's not something that I really want to do, but when I think about what would happen if I didn't, it's the lesser of two evils. By not taking something as a preventative, you're bound to have more problems later on - "an ounce of prevention is worth a pound of cure."View Thread
I wonder if you could smuggle the prep I take (it's still not available in the US). My GI suggests it as it's "less gross". It tastes like ground up orange chewable Vit C. I liked it better before they 'improved' the taste, as it was bland and I could mix it with fresh juices. When it's time from my scope I worship my juicer.
I only have UC but I can tell you one thing - patience. He hasn't been on the meds for very long. Between when I first got sick and when I was diagnosed was only two months, but it took me about a year to really feel like myself again. Just like "Rome wasn't built in a day" this is going to take time.
Have you tried diet changes, and does he take any vitamins or any other supplements? It's not a cure but when it comes to digestive issues, we really are what we eat.View Thread