I agree with what everyone else has said. You have a family on here and not only do we know what it's like to live with colitis/Crohn's, we also know what it's like to be surrounded by people who don't get it.View Thread
* eat smaller meals at more frequent intervals * avoid eating many processed foods * avoid citrus fruit and anything highly acidic * reduce the amount of rich, greasy and fried foods * limit consumption of milk and milk products * restrict your intake of high-fibre foods * avoid whole corn (inc popcorn) * cut back on sugary foods * avoid alcohol (esp beer)View Thread
My colitis is fairly stable so I'd have to say no for me - I'm more likely to notice fatigue problems, which is why I take a nap most days. Seeing as your Crohn's is active right now I'm not surprised that activity is hurting you, esp if you're doing any bending, twisting etc. Of course it's tough to move around without moving your torso much.
One thing a lot of people seem to have trouble getting their head around is that they can't do everything whenever they want like they used to. Learn to pace yourself and try to do something every day, even if it's just having a shower.View Thread
Some people can take birth control pills and do great, while other people react really badly to the added hormones. For me I find taking them evens out my hormones so that my ulcerative colitis doesn't act up because of that.View Thread
I have to second what was said. A few years back my GI told me she was seeing a lot of premenopausal women. It's not that there was anything wrong with them, just that fluctuating hormones cause fluctuating bowel issues.
Also it could be tied in with pms minus having a period, which isn't helping you any. Is there any way you can take hormones to try to stabilize that? I take birth control pills as my colitis would go haywire when I'd have my period (it still acts up a little).View Thread
I know that feeling of being "the only one". I've had ulcerative colitis for almost 20 years now and I've only ever met a few people with Crohn's (that I know of anyway). I'm sure there are more people with an IBD out there than that, but we don't tend to announce it.
Right now you sound like you're in overload - you finally got an answer and now all the possible treatments/side effects/etc have overloaded your brain. Just take a moment to slow down - you don't have to deal with everything today.
With all medications you have to give it some time to work. This didn't just start yesterday and it's not going to go away after taking one pill (as much as we wish it would). The immune suppressants aren't that bad as you're taking a low dose of them. Sure you'll be more likely to get a cold, but you won't get every one that comes around. With some basic preventative measures you won't be that much worse off than the average person is.
Have you started a food diary to see what foods set your Crohn's off? Are you taking any vitamins, supplements or anything else along those lines?