This is new pain for me - I've never had flank or lower back pain - upper back pain with duodenal ulcers for sure, but this is different for me. And this morning it's wrapping around the right side and into the groin area.
I have Norco for another condition so I took some about half an hour ago and it's still not gone.
I wanted to add that if you are really getting depressed, (as opposed to feeling blue) please ask for some help. I've had depression for many years, not really because of Crohn's but rather PTSD (I'm a war survivor), but depression is an awful illness. And having this flare or whatever it is going on for almost 4 weeks now is certainly challenging my mental health! But I know having an illness like this can really trigger depression in people. I hope you can feel better soon...
I'm still struggling with what I believe is a Crohn's flare while my GI is still considering, reconsidering, and has put me on hold until he does a colonoscopy on Fri.
Tonight, all of a sudden, I developed sharp pain in the lower back/flank area, on both sides (just above the line connecting my hips, below the ribs) Could this be from Crohn's? I've never had this kind of pain before.
It's not gynecological, I have no urinary problems, and this latest bout with GI symptoms included everything from diarrhea to constipation and everything in between.
Thank you for thinking of me. As you guessed my doctor sent me to the ER. I spent the whole day there so I couldn't check in.
At first they were pretty sure it was a blockage of some sort and were going to admit me. However, once they gave me Gastroview to drink, something in that finally made my bowels wake up and I went to the bathroom while still in the ER.
I thought they would let me go home right away, but it took 4 hours until I found out that the resident forgot to put in the order for the CT even though he kept "checking in" if the results were in. (?!?) (At one point the attending told me: "Great news, the CT looks normal." but went sheepish after I told him I hadn't even gotten one done yet. God knows whose CT he was looking at...)
Once the CT was done and the results again came back normal, they let me go home. I've had watery diarrhea ever since and I'm still in a lot of pain and still bloated, but I can at least drink water and I even had a little bread this morning.
As for the tales from the ER - this one's for the record books: In the room divided with curtains in the ER there were 3 patients: me and another lady with Crohns and a dude who had some "travelers diarrhea." The two of us were not visited by the GI fellows or attending GIs, but the dude got a visit from not only the GI but general surgery as well, all in the time it took me just to get a freaking CT done. (They all were there to tell him he must have had some bad food somewhere) At the end we overheard that he was the executive officer of the medical center we were in! No wonder the two of us were forgotten! The other lady called the nurse a million times before she showed up, my IV started bleeding and I had to beg for another bag of fluids (I couldn't drink because I was so bloated), etc, etc. I finally said out loud that it must be very nice to be an executive of the medical center since it seems that's the only way one could get some decent health care around here...Needless to say, the doc was pissed I said that. It made me feel better, though. My husband was mortified, but after I said that it took them 5 min to get me up to CT and send me packing. I know, I was bad, but it felt good for once.
The other Crohns patient was also sent home and she was doing ok it seems by the end.
So, I'm doing relatively better. Now I'm waiting for a colonoscopy next Friday to see what's up with this...I had to cancel my trip to see my sister and her two boys but at least I'm not in the hospital...
You guys were so nice listening to me the other day when I was ranting about my doctors, I had to come back, give you an update, and ask for your advice.
Reminder: I had Crohn's flare up like symptoms: blood in stool, abdominal pain, fatigue, etc. The doctors took two weeks to check what was going on: blood work, x-ray, ct scan, c. diff and it all came back normal. Assuming then it was Crohns, my doc put me on Medrol - the 7 day steroid pack.
The first day on steroids, I was doing a little better, but still had some blood in the stool and pain. But, it never got better than that. Instead the pain got slightly worse when I developed constipation 3 days into the Medrol.
I have been constipated since Saturday. I tried my usual Miralax 3 times a day that does the trick (as I was encouraging another member here to try out, oh, the irony!) but it didn't work. I ate a bowl of cereal yesterday morning and thought my stomach would burst. Didn't eat anything for the rest of the day. My doc told me to do half a bowl prep with Miralax (1 gatorade + 120 grams of Miralax [half a bottle>). This not only didn't work (took it yesterday around 6 pm) it caused even worse bloating and intense pain to the point I almost had my husband drive me to the ER last night.
I'm no better this morning. My pain in lower abdomen is persisting and slightly worse (dull and achy, sometimes more sharp on upper left side) and upper stomach area is still bloated and painful. There's no way I could eat anything and I'm not even sure I can drink much at this point either.
Any ideas on what I should do besides calling my doctor? Could this be a blockage or something? I'm totally perplexed...
Any thoughts are welcome as I wait for my doc's office to open and get a call back...
I totally get you about yogurt. That's the reason why I don't eat blue cheese...
I also need to lose weight and I get so frustrated with it. As Gin says, it's hard to be on a tolerant diet for Crohn's and lose weight. But I know I have a problem with carbs - I just eat too many...*sigh* I do love bread...
But, we should all commit to losing weight together. Do you guys exercise? I did on and off, but every time I get a flare or some other health problem, I tend to stop and not go back to it...That is my biggest obstacle...As soon as I get healthy, I want to make up on the work that I missed and house chores, etc. and have no time to go back to the gym and it just becomes a vicious cycle...
I am so sorry to hear about all your medical problems. As far as the GI doc - in 1998 they saw colitis in the colon but didn't tell me. I found out in 2006 when I went back to the same office and my new doctor shared that bit with me. Oh, and I did the camera pill and guess what - came back normal!!! I literally cried on the phone when he told me, not because I wanted to be sick, but because I knew I was despite all their tests being 'normal.'
I am sorry to hear about your liver! How did that come about? That's really awful. Is there really nothing else but transplant?
This is going to sound really strange, so please forgive me if it sounds stupid, but I'm always tempted to share this one family story when I hear stories like yours. My grandma, back in 1979 or 1980 was sent home with liver failure. The doctors said there was nothing else they could do and that she can go home to die. They told my dad and aunt they could give her anything she wants, since it didn't matter any more. My grandma wanted yogurt. She ate about 4 lbs of it (and nothing else) every day and when she came back to the doctor's in 30 days he couldn't believe she was still alive. Her liver had started regenerating. Hers was initially destroyed by medicine for thyroid problems. I don't know how or why and I know it sounds like a fib, but my grandma is still alive and well... Needless to say, we're all big yogurt eaters every since!
I know medicine is supposed to be far more sophisticated now compared to the late 70s, but I hope you can get better without a transplant, but if not, then I hope you get a new liver soon.
You are always welcome to rant with me - I have other "mystery" problems too...
But, as an update - my doc finally agreed it's Crohn's and I'm on steroids for 7 days to see if it improves. Needless to say, 2 days in it has improved somewhat already.
No, my stools were not necessarily hard. What the GI motility specialist told me is that constipation can include just the inability to pass stool, regardless of what it's like. Mine was usually in small pieces when that was happening to me.
I didn't give Miralax much of a chance at first, but when I upped the number of doses I took, it really made a difference. But it takes at least a week of regularly taking it for you to start noticing. I'd mix it in my coffee, gatorade, Tang, orange juice, etc. during the day to get all my doses in. What it does is add more water to your stool so that it takes less effort to pass.
I also understand the point about inflammation making it harder. First off, it makes it more painful, but I would not have the strength to move the bowels properly because of the pain.
Try sticking to Miralax - it's completely harmless and very easy to take - has no taste whatsoever.
I never found Aloe to do anything for me. I do believe in probiotics, but they don't always help me either.View Thread
I am also one of those few that get constipation. It happened for the first time last year and I was dumbfounded. I didn't even know it could happen.
Anyway, my GI sent me to another GI who specializes in constipation and after they eliminated all possible sources of it, they told me it's just happens.
As for fiber: when my constipation first started, my GI thought I wasn't eating enough fiber and kept pushing me to eat more, more, more. After a few months, I didn't know how to add more fiber (eating raw veggies, fruits, whole grains, cereal, etc.) so I ate some of those new products with 50% of daily fiber in one serving. I think it's chicory root they use. Anyway, ended up in the hospital with a horrible blockage because, surprise, surprise - I had too much fiber!!!
What ended up helping me wonderfully is Miralax. It's kind of expensive, but your doctor can write you a script for the generic version. You can mix it into just about anything from coffee to juice, etc. The specialist GI told me it is the safest drug in the world and it cannot harm you in any way. There are no side effects or anything. I was taking up to 4 doses a day and after a few months, it completely resolved the constipation. If you have not tried this, you must!
wish you all the best and some good health on top!View Thread
Seriously, I think my cat's vet would have done a better job!
I'm totally over it now. It's a crazy world and I cannot get more upset about this. I am making an executive decision to have as good a day as I can. I will drink tea, watch some movies and try to forget this whole thing. I will deal with it tomorrow.
You and Mindy are great - thank you so much for being my shoulder to cry on this weekend.