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Crohns and Colitis Exchange

This is a place for members with Crohn's Disease or Ulcerative Colitis to get ... more

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forgetfulagain

Joined: 04/07/2010

My Story:

I was diagnosed with UC in 2004 but by 2006 they figured out it was probably Crohn's. I've had symptoms since I was 10 or 11.
I also have a good number of other illnesses, the physical ones being trigeminal neuralgia, mixed vaso-depressor cardio-inhibitory response (some problem with heart rate/blood pressure regulation), and polycystic ovarian syndrome; and post-traumatic stress syndrome and depression in the not-purely-physical problems. (war survivor)
On account of all of that I take 16 prescriptions in addition to B12 shots and other vitamins. That's the part I really hate.
I sometimes disappear from the boards here mostly because I get very busy with work, but I'll check in occasionally and answer posts frequently as well as post my own questions when I'm around. My first and favorite board is the Colitis/Crohn's.

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Reply: I'm a medical mystery of the first order!

Oh, and get this - I just found out I wasn't supposed to take my Metformin before or...

Posted by forgetfulagain

20 Replies | Reply | Watch This DiscussionReport This| Share this:I'm a medical mystery of the first order! Oh, and get this - I just found out I wasn't supposed to take my Metformin before or...

Reply: I'm a medical mystery of the first order!

Is it possible to develop constipation from the CT contrast you drink? On top of...

Posted by forgetfulagain

20 Replies | Reply | Watch This DiscussionReport This| Share this:I'm a medical mystery of the first order! Is it possible to develop constipation from the CT contrast you drink? On top of...

Reply: I'm a medical mystery of the first order!

So, my GI didn't call, but another attending just told me that I have two options:...

Posted by forgetfulagain

20 Replies | Reply | Watch This DiscussionReport This| Share this:I'm a medical mystery of the first order! So, my GI didn't call, but another attending just told me that I have two options:...

Reply: I'm a medical mystery of the first order!

Thanks Gin. I hear you about needing to be thankful about not being stuck in that...

Posted by forgetfulagain

20 Replies | Reply | Watch This DiscussionReport This| Share this:I'm a medical mystery of the first order! Thanks Gin. I hear you about needing to be thankful about not being stuck in that...

Reply: I'm a medical mystery of the first order!

Mindy thank you so much for responding. I really needed some reassurance. The GI...

Posted by forgetfulagain

20 Replies | Reply | Watch This DiscussionReport This| Share this:I'm a medical mystery of the first order! Mindy thank you so much for responding. I really needed some reassurance. The GI...

I'm a medical mystery of the first order!

HI all, I'm writing to vent after an extremely frustrating week capped by tonight's...

Posted by forgetfulagain

HI all,

I'm writing to vent after an extremely frustrating week capped by tonight's ER visit. Apparently, I am the most incredible medical mystery on the planet! I have symptoms but every test shows I'm the healthiest person around! It is quite amazing how year after year, whenever they do some tests on me, the tests come back "normal" despite my obvious symptoms and the doctors dismiss the symptoms rather than doubt the veracity of their tests. So, I must be the most incredible medical mystery in the world! My gravestone should read: Here lies a woman killed by perfect health!

Stopping the sarcasm:
So, I have Crohn's. Since Saturday I've had abdominal pain and blood in my stool, but no diahrrea. I called my GI on Wednesday and he had me do some bloodwork and x-rays. Today I call him and the nurse says that the tests were normal, but that my doc wants me to go to the ER for a CT scan.

Grudgingly, I went to the ER since I've been living on Gatorade, plain bread + yogurt since Saturday and because I've missed 4 days of work. (I hate ERs as most of you do too, I'm sure)

I spent 5 hours in the ER hallway (there were no rooms at first, but when rooms became available, they still kept me in the hallway), did more bloodwork and had the CT. The doc comes back and says that all the tests are normal - sed rate, CBC, etc. on the blood and CT shows nothing suspicious. He advises me that he'll call my GI who will probably want to admit me and put me on IV steroids. (?!) Why IV rather than my usual 7-day dose? Have no idea.

The doc comes back 15 min later and says that my GI's office said that I should go home and report to them on Monday. No steroids. No medicine whatsoever. He now said that because my bloodwork is not showing inflammation, steroids are of no use (this after first telling me I'll end up admitted on IV steroids?!?). I asked him well, why am I passing blood then? His response: Oh, it's from Crohn's.

So, I'm sent packing from the ER with apparently nothing whatsoever wrong with me. At least according to their tests. I am so mad, I can barely sustain myself from punching someone or something. I called my GI office back but they haven't returned my call.

I don't understand how the ER doctor can claim that my GI bleeding IS from Crohn's but at the same time say there is no inflammation and thus I don't need steroids. What would the bleeding be from then?!

For 11 years I was being told there's nothing wrong with me and that it is all in my head, so, as many of you, I am quite intolerant of this nonsense. They do some tests which turn out "normal" and then they dismiss the person in front of them who is clearly in pain, with a bloated abdomen (noticeably bloated), who is passing blood and mucus and look me in the eye and tell me, essentially, there is nothing wrong. Their logic goes something like this: If there is no inflammation on the tests, there is no ulceration in the colon, therefore, there is no bleeding. I think even if I showed him the blood in the toilet he would still not believe it!

Ugh! I'm so frustrated. Please tell me I'm not crazy. If you know what the explanation would be, please write back. I'd rather find out my logic is wrong than loose all faith in the rationality of the medical profession!View Thread

Posted byforgetfulagain

20 Replies | Reply | Watch This DiscussionReport This| Share this:I'm a medical mystery of the first order! HI all, I'm writing to vent after an extremely frustrating week capped by tonight's...

Reply: Prednisone use

Prednisone can really mess you up and you have been very lucky in not having any...

Posted by forgetfulagain

19 Replies | Reply | Watch This DiscussionReport This| Share this:Prednisone use Prednisone can really mess you up and you have been very lucky in not having any...

Reply: post-endo problems

I think I didn't make it clear - I was talking about an upper endoscopy not...

Posted by forgetfulagain

5 Replies | Reply | Watch This DiscussionReport This| Share this:post-endo problems I think I didn't make it clear - I was talking about an upper endoscopy not...

Reply: Prednisone use

Welcome! I had a 3-month therapy of Prednisone a while back and I don't remember...

Posted by forgetfulagain

19 Replies | Reply | Watch This DiscussionReport This| Share this:Prednisone use Welcome! I had a 3-month therapy of Prednisone a while back and I don't remember...

post-endo problems

Has anyone experienced bad headaches and low-grade fever after an endoscopy? I've...

Posted by forgetfulagain

5 Replies | Reply | Watch This DiscussionReport This| Share this:post-endo problems Has anyone experienced bad headaches and low-grade fever after an endoscopy? I've...

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