Oh, and get this - I just found out I wasn't supposed to take my Metformin before or after the CT. Apparently the contrast can cause lactic acidosis combined with Metformin.
I have to wait 48 hours and get my kidney function tested before I can resume Metformin. Did anybody tell me this? No. I found out by accident when I was looking up the information on CT contrast and constipation.
The idiots could have killed me. Yet again. This is the 3rd time I was given dangerous combinations of drugs...View Thread
So, my GI didn't call, but another attending just told me that I have two options: wait until Monday or if the pain gets really bad to go to the hospital to be admitted.
This is so ridiculous. They're behaving like I don't have a diagnosis. In the past, they would always just call in some prednisolone and I would get better the next day. This time around they just decided to screw with me and now 7 days later I'm still incapacitated for no reason. No reason at all.
Thanks Gin. I hear you about needing to be thankful about not being stuck in that crowded hospital. I know you're right, I need to find the good in all this frustration...
It's just that I have faced sooo many doctors who insist there's nothing wrong with me while I feel like crap. I know many members here had similar experiences and it can really get to you.
My therapist says that most MS patients report they are relieved when they get their diagnosis because they had been suffering for years without anyone acknowledging there is something wrong with them. It is really messed up that someone who gets a terrible illness like MS feels RELIEVED about it. But, the relief comes after feeling for years they're in the twilight zone where no one is listening to them. I felt that way for many years because I was suffering in pain and no one was acknowledging there was anything wrong with me. To this day I'm grateful to my GI in Wisconsin who finally diagnosed me in 2004 after years of symptoms and "normal" test results. There's little relief to be found in "normal" test results when I feel "abnormal." Missing a week of work also sucks.
I know it's not hemorrhoids since I don't have any pain in the rectal area, just lower abdomen. Plus, I haven't had any problems passing stool.
But since I haven't really eaten much solid food the last three days, I haven't had a bowel movement yesterday or today. Just small amounts of mucus and blood.
I had the strictures test done last year and they didn't find anything except that I also passed the liquid literally within 15 minutes. The doctor just came in to introduce herself and she took a look and it was already all the way through...I was out of there in 40 minutes... We should compete for the record.
Mindy thank you so much for responding. I really needed some reassurance.
The GI attending called me last night and my GI should be giving me a call today.
What you said about the microscopic inflammation makes complete sense since every time I have a colonoscopy they do not see anything wrong until the biopsies come back indicating microscopic involvement. I tried explaining that to the attending last night, but she looked at my last colonoscopy from over a year ago that happened to be the one where the biopsies were normal...
I'll wait for my GI to call today and see if he is more reasonable than these people from last night.
I mean, what are the chances that something completely unrelated to Crohn's is causing this? The attending last night asked me if it was maybe gynecological (?!?). They must think I'm a complete idiot who doesn't know anything about her body - or physiology...
I'm writing to vent after an extremely frustrating week capped by tonight's ER visit. Apparently, I am the most incredible medical mystery on the planet! I have symptoms but every test shows I'm the healthiest person around! It is quite amazing how year after year, whenever they do some tests on me, the tests come back "normal" despite my obvious symptoms and the doctors dismiss the symptoms rather than doubt the veracity of their tests. So, I must be the most incredible medical mystery in the world! My gravestone should read: Here lies a woman killed by perfect health!
Stopping the sarcasm: So, I have Crohn's. Since Saturday I've had abdominal pain and blood in my stool, but no diahrrea. I called my GI on Wednesday and he had me do some bloodwork and x-rays. Today I call him and the nurse says that the tests were normal, but that my doc wants me to go to the ER for a CT scan.
Grudgingly, I went to the ER since I've been living on Gatorade, plain bread + yogurt since Saturday and because I've missed 4 days of work. (I hate ERs as most of you do too, I'm sure)
I spent 5 hours in the ER hallway (there were no rooms at first, but when rooms became available, they still kept me in the hallway), did more bloodwork and had the CT. The doc comes back and says that all the tests are normal - sed rate, CBC, etc. on the blood and CT shows nothing suspicious. He advises me that he'll call my GI who will probably want to admit me and put me on IV steroids. (?!) Why IV rather than my usual 7-day dose? Have no idea.
The doc comes back 15 min later and says that my GI's office said that I should go home and report to them on Monday. No steroids. No medicine whatsoever. He now said that because my bloodwork is not showing inflammation, steroids are of no use (this after first telling me I'll end up admitted on IV steroids?!?). I asked him well, why am I passing blood then? His response: Oh, it's from Crohn's.
So, I'm sent packing from the ER with apparently nothing whatsoever wrong with me. At least according to their tests. I am so mad, I can barely sustain myself from punching someone or something. I called my GI office back but they haven't returned my call.
I don't understand how the ER doctor can claim that my GI bleeding IS from Crohn's but at the same time say there is no inflammation and thus I don't need steroids. What would the bleeding be from then?!
For 11 years I was being told there's nothing wrong with me and that it is all in my head, so, as many of you, I am quite intolerant of this nonsense. They do some tests which turn out "normal" and then they dismiss the person in front of them who is clearly in pain, with a bloated abdomen (noticeably bloated), who is passing blood and mucus and look me in the eye and tell me, essentially, there is nothing wrong. Their logic goes something like this: If there is no inflammation on the tests, there is no ulceration in the colon, therefore, there is no bleeding. I think even if I showed him the blood in the toilet he would still not believe it!
Ugh! I'm so frustrated. Please tell me I'm not crazy. If you know what the explanation would be, please write back. I'd rather find out my logic is wrong than loose all faith in the rationality of the medical profession!View Thread
Prednisone can really mess you up and you have been very lucky in not having any side effects. I think your doctor is just following the best practice of reducing the time/dosage a patient spends on the drug.
I'd talk to him/her and present your case...View Thread
I had a 3-month therapy of Prednisone a while back and I don't remember the doses, but I know I did at least 50.
Steroids in general can make you feel quite awful. While I was on the up dosage, my bleeding stopped, fewer bowel movements, etc. BUT, I had tachycardia (fast heart beat), arrythmia, difficulty even walking up a flight of stairs. I felt awful!!! And then on the way down, arrythmia got worse, my muscles were hurting, I had joint pain, etc... This is not unusual for prednisone at all, unfortunately.
It will get better once you are off the drug completely, but be patient with yourself. Now, if you are seeing blood again and have more symptoms of the colitis itself, you should talk to your GI. Maybe the steroids are not working for your UC and something needs to be adjusted.
Has he/she mentioned Rowasa? That's an enema medication - it sounds awful, but it only took me a few days to adjust to it and then it was not a big deal at all and it did help me. I know they use it for UC because they originally thought that's what I had.