I know that some people struggle with their pouches, but do manage to get some assistance with them that really does help. Other people never have a problem with them once they get into a routine.
Is there an ostomy support group in your area? Ostomy nurse?
In any case, I encourage you to talk to your doctor about your feelings of helplessness and that no one cares. You can also check your phone book for local numbers for people to talk to and help in your situation.
Also, WebMD offers an extended list of crisis resources on our site. Please click or paste the following URL into your browser's address locator: http://www.webmd.com/help/crisis-resources . As always, if you think you might have an emergency, please call your physician or 911 immediately.View Thread
There is a prescription med for sleep that I tried once that is for people with short sleep cycles. It is mainly used by truckers with insomnia who need a 4 hour med--I can't think of what it was called. It came out between Ambien and Lunesta I think.View Thread
UC tends to confine itself to one area--crohn's does the whole digestive system. When I worked out of the home, I did end up missing work every couple of weeks. Working from home is easier on me and I end up with leftover sick days at the end of the year.
Is your job one that you could do some work from home or have a flex schedule?View Thread
The drugs may make it stop hurting. I have way more pain free or low pain days than a few years ago. It took a while though. But, you will again be able to eat a meal pain free. It happens. Patience and a lot of support but most of all time.View Thread