Amanda, What was your husbands reason for not calling an ambulance? Did he at least take you to an ER? Under no condition should he be making the medical decision, pain is my telling sign when I have intestinal blockages and if they are left untreated they can become very serious. Only the ER or a doctor can determine if I need surgery or the treatment. My husband and I never mess around with the pain, I know what I can tolerate and when the pain is too much or different we go to the ER if it makes me pass out or throw up we call the squad... No deep breaths are in the decision. Hugs, GinView Thread
Gin, I am 42 years old, I have had crohns since 2007. I have a resection, several hernia repairs, and now I am on Imuran, lyrica (for fibro) and Pentasa, along with a variety of pain meds and other stuff! . I am unable to eat any fiber due to strictures which my diet very interesting and boring. I would gladly trade the poptarts for a fruit salad!
I recently found out.. as in on Friday I was finally approved for SS disablity after a 3 year long battle. I have no details at all. Just a phone call from my lawyer. But the battle is now over. Thank God!
Hugs to all. This disease is exhausting mentally and physically, be sure to get all the rest you can! Hugs, GinView Thread
Most of you have heard this, but for you Newbies.. Trust me on this tip. Pamper your Bum, to keep your bum from getting raw and sore use moist toilettes that are flushables each time you go if possible. I prefer Preparation H wipes or Tucks, and I keep them in each bathroom and keep portables ones in my purse and car.
For those of us, who go many times a day toilet paper is too much for bottoms and its hard to clean an area that hurts when you wipe. To prevent any clogging, only flush one down at a time.
You can buy portable Preparation H wipes at Drugmart and Walgreens. I piurchase my Tucks and wipes for at home at costco. They are small price to pay for less pain.
Hannah, I would like to know about your stoma.. Feel free to post the information here or email me. I am glad to hear your wbc is down, but I am still concerned. My whole family is sending you good thoughts and prayers.
Honey, I know the horrors of blowing IV's one after another. I swear when I admitted for my resection I blew at least 15 IV's and the doc still refused a picc line as he planning to discharge me in less than 24 hrs. It was horrible, the nurses were getting mad at me for blowing the IV's, like I was doing it purposely. It got to the point where I was in tears and afraid to tell anyone when the IV was burning and swelling. My Dad finally had to step and talk to the nurses.. I mean yell at them! I am glad you have a picc line.
Hugs honey.. so many.. We are here for you. Let us know what you need. GinView Thread
Hannah, Oh honey.. Hugs., Hugs, hugs, hugs and more hugs. I wish I could do something for you. You must be feeling so overwhelmed at this point and just done with this whole thing. I wish I could wave my magic wand and make you all better and put your intestines back and make you crohns free. But darn it, last I knew it the stupid wand was under my bed. ..
I know I am just being silly here.. But I do not know what to do or say. I feel so helpless... please keep us updated. You know you have our love, prayers and our hugs.
Let everyone pamper you and take care sweetie. Nothing else matters right now besides you recovering... Rest and recover sweetheart... Hugs, GinView Thread
Surgery girl, I think you and I are twins. I have had 6 stomach surgeries in less than 2 years and now I am in a horrible spot where I have scar tissue and strictures yet a full abdominal mesh that makes any future very difficult and risky for me.
I guess the question is for you to decide.. How much pain and how is your life now? Will a new surgery improve your quality of life or possible make it worse? It's your body and your decision... Feel free to get second opinions.. But ultimately you need to decide how is your quality of life right now?
Hugs surgery girl... I know your delimma, I have had two blockages this month, like you that have resolved themselves with rest and liquids. But the number of strictures is multipling.... How long can I last until I NEED surgery? I do not know, but I know I risk losing a lot of good intestines just to remove the mesh to get the intestines. So, I just keep truckin.... eating small meals, No fiber, and lots prayers.
Shy, I have been taking the same dosage of Pentasa that you are for 3 years now. It does seem like a lot, but its a standard dosage. I will tell you when you go to the bathroom you may see little white beads, do not freat that is completely normal. That is the Pentasa and its fine.
Mindy, Doesn't this disease just blow?? I swear even if I do everything right, about every 10 days I feel like I am sitting on the edge of an ER trip. Oh, alright.. as I write this I realize I do not do everything right. I might eat right (as per my crohns and strictures) but its impossible to get a nap everyday and not EVER get stressed. Doctor appointments and life in general prevents me from doing everything right; kids, husbands, and so on and so forth prevents me from getting the rest I really need.. But... I swear to you I eat like I am suppose to, and I get kicked in the butt about every 10 days now. I either have to spend about 48 hrs down or I push myself and then I hang on the edge of ER visit. This life can suck. The life of the disease.
So, honey I know you just want the doctor to hold your hand for 5 little minutes and tell you what his thoughts are and what the game plan is. It seems so reasonable...Why is it so darn hard????
Please keep me updated, and let me know how Monday goes. Hugs honey. GinView Thread
I got an email from Hannah this morning, and it seems she is well from her surgery on Wednesday. Her bowels woke up yesterday so she had had clear liquids. Poor honey has an pain in the tush roommate who is always talking loudly on her phone! Keeping her awake, even at night. And because she has a roommate Hannah's Mom can't stay overnight with her. I am sure the nights are very long for Hannah. Wishing she could duct tape her roommate mouth or wheel the roommate down to a supply closet!
Hannah, asked me to update everyone... She is doing as well as expected and doesn't have her laptop. I will keep you all updated. Hugs, ginView Thread
Hannah, Honey, I am sorry you are having such a hard time. Surgery takes so much out of you, physically and mentally. And then for you not to have your antidepressants for days is like torture on top on that. Hugs honey.
Try to be very nice to yourself for the next few weeks. Expect to feel like a semi truck hit you, and allow yourself to cry. Being strong only goes so far until you fall apart and then feel more awful for doing so.
Hang in there honey. We love you and are here for you for anything you need. Hugs, GinView Thread