Sending you thoughts, prayers, hugs, and even some hugs for Mom. Just wanted to let you know I was thinking about you tonight and praying all goes well tomorrow. I know you will not be able to get to the computer for a few days, but if Mom or boyfriend can let us know how you are we will all be awaiting good news. Much love sweetheart. Hugs, GinView Thread
Be prepared to be there for a few hours. You will have to drink some contrast and then have some x-rays taken every 15 minutes or so until the contrast runs through your small bowels. If you are someone who gets diarrhea easily, take a bag with your own toilet paper and wet wipes for your bottom. Trust me on this. I dump everything and the contrast ran right through me, as I was drinking it, I was in the bathroom going and going and going. I was so glad to have my 2ply toilet paper and Preparation H wipes, otherwise I would have had a very sore bottom! Most hospitals have cheap 1ply toilet paper. And make sure you are dressed comfortable so you do not have to mess with panty hose or lots of complicated buttons. The time of test depends on how long the contrast takes to go through your system. Mine was a miracle of 45 minutes, which the nurse says she has never ever seen someone so fast. My daughter was 5 long long hours! So take a book! After the contrast goes through, a doc might come through with a paddle and special xray and tap on your belly for about 15minutes. After that you are all done. Nothing too painful or invasive just not fun.
I am glad to say, doc said I should eat! Yay! he thinks I need to eat small meals and stay away from all (ALL) fiber and eat much smaller meals. He thinks I have more adhesions or swelling of my intestines, and large meals and fiber is causing the pain & blockages Then when I do not eat with the meds I am making myself ill, because of the all the side effects. Kinda kicking myself in the tush trying to make myself better.
So, I came home and had a small bowl of pasta (white pasta) .. Food Yay! He did run blood work and increase the imuran.
I know what you mean about wishing it away. He did tell me I can eat all the pudding I want! So, all is not that bad! Pudding is better than nothing! I love my doc! Hugs to you Louise.. Take care. GinView Thread
Ugh! For the second time this month, and its only the 12th, I am on soft foods and liquids due to pain and feeling like I have a blockage again! I see my GI today, and I hope he does not want to do anything crazy like admit me in the hospital. Oh dear that would just throw my whole family into a tail spin. I can stay on liquids and soft foods (like pudding and liquid soups) from home and I know when pain gets to the point of needed to go to the hospital. But come on, I do not need a nurse up my tush every 4 hrs measuring how much I urinate, taking my temp, and the whole in the hospital stress. Look at me, I am trying to convince you guys... ... Deep sigh. If you could throw good thoughts, prayers, finger crossing, lucky dancings, or lucky underwear my way I would appreciate it. Home is better for me. And having a severe blockage is not something my poor body needs right now.
I promise to keep you updated. And I promise to say on the liquids and baby texture foods. Hugs to all, GinView Thread
Did you gain the weight while you were weaning off the predisone? That is what I did. I did not gain weight while ON predisone, I did it while weaning off. Up to 5lbs in one week, I was shocked and horrified! And the weight does not come up easily, not easily at all considering with crohns your diet is usually limited to avoid the fresh fruits and veggies.
The puffy face and other side effects from the steriods I promise you will go away, it just takes time. I know it will seem like weeks and feel like forever. But one day you sooner than you think you will look in the mirror and say to yourself "Hey, that is my face! My pre-steriod face! Yay!"
It takes time, so be patient and try to remember all the side effects are temporary. One thing that will help is drink lots of water and watch your salt intake, as some of the swelling is water retention.
Hang in there. It will get better. Hugs, GinView Thread
Oh sweetie, Do not worry about my daughter. Right now she is under control. If she loses her pancreas, she will become a diabetic, and will need insulin shots as her body will no longer produce any insulin. As of now, she is taking an ezyme before she eats anything (each and every time) that prevents her pancreas from working and does the job of her pancreas. So for now, the pancreas is just hanging out doing nothing and as long it keeps doing that she is good. You are correct pancreatitis is horrid pain, and I pray I never ever see her (or hear about you) in that pain again. Thank you for asking.
As for you. Sweet Hannah, please keep us up to date. I ask my parents to put you on their pray list at church. I figured the more help the merrier. Can't hurt. I hope you do not mind.
Please tell your Mom I am sending her a big hug. Be nice to each other, this is a stressful time for both of you. And be very nice to yourself. You are such a beautiful woman, and where you poo and how you poo will never change that!! Hugs, GinView Thread
Hannah, Oh honey. I want to reach through the computer and gather you up in my arms and just hold you honey. I think I told you about the night I introduced my duaghter to my buddies on the crohns site, and I just read my daughter (who is 16) your posting and we both just shed a tear for you. Its not pity! Do not go there, it empathy. Please remember my duaghter has her own medical issues, and has the risk of losing her pancreas due to her pancreatatis issue. So, it's understanding of the devastation you are feeling. Its the shock of the information and the understanding of how alone you must feel. You have us, you are not alone.
Hannah, I hope you do not mind I am going to email you too. I know you left the email for Minday, but ... you know I love you.
Hugs from my daughter and I . You have our support and our love, GinView Thread
The judge said she would get me an decision as soon as possible, but I think in judge vocab that means anywhere from 2 weeks to 2 months.... I found another stupid cyst, this one on my thumb, so I see the doc today.. I will let you know J what he says. Stupid stupid stupid cysts. If he wants to put me in a hand brace I think I will punch him in the nose!
Well, its over and now I just have to wait for the decision. I think it went well. The judge ask nothing of the vocational expert, and the medical expert seemed to agree that I could not work. But it's hard to tell until I get all the paperwork. My lawyer asked questions that went in my favor, but I have little faith in the system, so we shall see. Thanks for the support! I promise to let you all know as I know. Hugs to all! GinView Thread
Well, today is the day. The Social security hearing... I am scared to death. Will I say the right thing, say enough, dress correctly (its only 95 degrees here!) to impress the judge, will I be believed? This is so important for my family and I. I am so scared... I try to keep telling myself to relax, and not to over prepare or over worry but its all I can think about. Its later this afternoon, and then its done.