Mindy, Oh honey, please go get checked out before things get bad. I hope things are not bad like you think. But, I believe at this stage we know our body. And that just stinks. This disease is just crazy, and there is just no knowing how to controlling it. Honey, I am praying for you. Hugs honey. GinView Thread
Hannah, I am just glad to hear you are feeling better. What a relief! I understand why you stopped the Lialda, when you feel as bad as you have for the last few days you are desperate for relief. And sometimes I think we do know our bodies better. I know what is too much for me, when at times other say "Oh come on, its no biggie its just a picnic or just a salad".. I know.. I know when I need more sleep or when the pain is not right. I am just grateful you feel better. I hope you continue to feel better each day. Hugs honey, GinView Thread
Cheryl, I am sorry you are going through all this. Unfortunatily, its not an uncommon story. You need to keep pushing your doc and keep letting him know you feel awful. The only way the doctors know you are not feeling well is when they hear from you. Its sad, but when they do not hear from you they just assume all is fine. Make an appointment, call in between, and try hard to understand some times making diagnosis is based on how long the diarhea last and how long the symptoms lasts.
Try to keep up on the fluids (sports drinks help greatly), and gets lots of rest. And communicate and communicate with your doctor. I am sorry you are such a hard time. Hugs, GinView Thread
Hannah, I know sweetie. I am tired of this crohns and garbage. It seems to be a neverending cycle of crap! I am sending you big hugs honey. I wish I could help you out, or wave a magic wand and make it better even if just for an hour. I just had another blockage last week, and it beats down on me mentally as much as physically. When do you go back to your doctor? Honey, I know you are mostly in the bathroom and in bed. Let your Mom take care of you and know that we will be here when you need us. Hugs, hugs and more hugs, GinView Thread
Did you go to the University of Indiana Hospital? There is a GI specialist there that many doctors from other states recommend. I know if I leave any names in this posting the message will be removed. I am with you in the fact that any surgery including your intestines is a huge surgery. The side effects with the nerve damage and the adhesions are mentioned, but not really discussed to the extend I feel they should be. Or the incident of incisional hernia's and the possible usage of mesh, that may complicate future surgeries. I do not want to scare you, I just want you to be aware of it. I had a resection in 2008 and each and every day I deal with pain and issues from it.
I wish I could help you more. Keep your head up, and make sure you see a doctor you trust. Just because he has a fancy title does not mean you trust him/her. GinView Thread
Crohns specialist? Or a GI that specializes in crohns? Are you currently under the care of a GI or just a PCP? Being that you are in Chicago, I would think you are near a good hospital that would provide a good GI. What type of "minor surgery"? A resection? That is a not a minor surgery and needs to be considered carefully. Even if its necessary it needs to be considered carefully.
I have had one, and trying desperately to avoid another. GinView Thread
I hate to say this, but I think you need to consider a trip to the ER. Are the doctors sure you do not have a blockage or anything like that? I actually spent the Thursday in the ER for severe abdominal pain, and it turned out I had a blockage. I will be honest, I had pain that was steadily getting worse and worse over the past few weeks (tolerable) until I just could not handle it anymore with the meds I had at home. If you do not think its urgent, have you tried a liquid diet for a day or two to see if that helps to relieve the pain? I was discharge on Thursday only because I have history of blockages and it was NOT serious. I was on liquids for 48 hrs until the subsided and then slowly added solids back as long as I could tell my bowels were working. I feel better pain wise then I have for weeks so I clearly had been building up to this. My only question is how to avoid this? No one seems to have a good answer for that. Take care.... Give your bowels a chance to rest. It might help. Hugs, GinView Thread
Mindy, How did your daughter make out at the orthopedic? I hope she did not break her arm again. What's the deal? Does she think she is a monkey or something? .. Holly went through a phase where she broke her leg, her nose, and her arm all within 1 year! Yikes! It was crazy, but then she was crazy. Trampoline, roller blade stunt tricks, etc. Now, I just duct tape her to the couch and turn on the TV! .. Just kidding!
Let me know how both you and your daughter are. You sound exhausted honey. Take care of yourself. Hugs, GinView Thread
Mindy, Thanks for the hugs. Sorry, I did not get a chance to post this last night. After a cat scan, yep I have another small bowel obstruction. Because of my history at this hospital (I had all my surgeries there) and crohns history, it was decided I could go home with pain meds and a clear liquid diet. As long as I promise to return if anything worsens. I am a bit better today, but as I stopped eating yesterday morning I am now 24 hrs without food, so my bowels have had a short time to rest. So, instead of my fancy chocolate fudge coffee, this morning I am sipping chicken broth! Not the same at all! But maybe by Monday I can have coffee, maybe..
I slept a bit last night, only about 5 hours but hey more than I would have if I was at the hospital. I can't even begin to tell you how scared I was, thinking Oh crap here comes the surgery decisions. How am I suppose to avoid these blockages? I did not eat anything I was not suppose to!
Hey... wait.. Mindy I just reread your post. Your playing should you go the ER or not. Honey go.. Because if you wait too long you are going to be in the 4th of July mess at the ER. Thankfully, I was in and out of the ER in less than 6 hrs. Plus, I don't know about you but when I play the "should I go game" it usually means I should, and I end up going when the pain is really out of control.
What's going on Mindy? I hope you are feeling better today. Let us know. Hugs back at ya, sweetie. GinView Thread