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Crohns and Colitis Exchange

This is a place for members with Crohn's Disease or Ulcerative Colitis to get ... more

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rednewbie

Joined: 02/27/2010

My Story:

I am 42 years old, and I have had crohns since 2007. I had a resection in 2008, along with 3 different hernia repairs. I am delaying a new resection with a no/extremely low fiber diet,pentasa and Imuran. I suffer with daily pain from fibromylia, scar tissue and stricture pain.

I have two kids, a patient husband, two kitties, and baby mini rex bunny. I am in the hearing stage of waiting for SS disabilty, I hear my case is sitting on a judges desk. If I am really lucky, the case will be decided without a hearing, otherwise I hope to have a hearing this summer.

I spend my days, reading, playing with photography (my family thinks I am good, I think they are biased!), trying to train my bunny, playing half a$$ed housewife. :) and napping.

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Reply: Hip Pain

Lexismom, I pray you do not have the osteonecrosis... Have you started the process for...

Posted by rednewbie

8 Replies | Reply | Watch This DiscussionReport This| Share this:Hip Pain Lexismom, I pray you do not have the osteonecrosis... Have you started the process for...

Reply: Update

Hannah, My daughter who is 16 and out of school for the summer, wanted to know why I am...

Posted by rednewbie

5 Replies | Reply | Watch This DiscussionReport This| Share this:Update Hannah, My daughter who is 16 and out of school for the summer, wanted to know why I am...

Reply: Gin

Shy, Please come back and keep in touch. There is a lot I am sure you can offer those...

Posted by rednewbie

2 Replies | Reply | Watch This DiscussionReport This| Share this:Gin Shy, Please come back and keep in touch. There is a lot I am sure you can offer those...

Reply: May photo contest

Thanks so much!

Posted by rednewbie

6 Replies | Reply | Watch This DiscussionReport This| Share this:May photo contest Thanks so much!

Reply: Not A-typical crohn's/colitis sufferer with consti...

Lindsay, I always wonder when no one replies if that means no one read my posting... I...

Posted by rednewbie

53 Replies | Reply | Watch This DiscussionReport This| Share this:Not A-typical crohn's/colitis sufferer with constipation! Lindsay, I always wonder when no one replies if that means no one read my posting... I...

Reply: shy14

Sky, Welcome to the group.. First please do not panic. There is a very good chance the...

Posted by rednewbie

3 Replies | Reply | Watch This DiscussionReport This| Share this:shy14 Sky, Welcome to the group.. First please do not panic. There is a very good chance the...

Reply: shy14

yes, its possible... have you had any surgeries with your crohns at all? From what I...

Posted by rednewbie

3 Replies | Reply | Watch This DiscussionReport This| Share this:shy14 yes, its possible... have you had any surgeries with your crohns at all? From what I...

Reply: Hip Pain

Lexismom, I have the hip pain, going down my leg. Have you seen a pain specialist? My...

Posted by rednewbie

Lexismom,
I have the hip pain, going down my leg. Have you seen a pain specialist? My pain specialist says my hip pain is my sciatica nerve pain, it starts at my hips and goes down my legs. I take flexerial and topamax and it seems to help keep the pain away. However, when I had the pain heating pads helped. I would wrapped around my hip and lay down.
As for future pain, I highly suggest seeing your doc and discussing the pain with him/her. I know and understand the pain and it is crippling. With the proper medication you can feel much better.

As for what to do about work. Get to the doc and have everything documented. Everything, your pain in your hips and your anxiety. If you truly can not return back to work in the next 2 weeks, you need to find out if your employer has any long term disablity benefits, usually its only 50% of your pay. But you will find, without traveling to and from work, buying coffee, lunch, the stress of working, etc. that 50% of what your were making and being home to "recover" or at least try to is worth it. Its also before taxes, so make sure you have your taxes takes out, however its not taxed by most states and citys. So you will have some tax breaks there.

If you think you can not return in the next few month start the SS filing immediately... If you get better great! You can always tell them and SS will be thrilled for you! But, if you are not better, then at least you have a start in the system before your Long term disabilty runs out.
If you need more information feel free to email me at orbitgina16@yahoo.com ...

If your company has Long term disabilty, here is my most important piece of advice to you.. and it sound cynical but..

Companies need someone to show up at work, they need employees who can do the job and are reliable. If you are too sick to be reliable no matter how much they like you, sooner or later they will let you go. If you are on long term disablity you are protected until your doctor says your well enough to work a full time job or the long term disablity time runs out (dependant on each company - some range 2 years or longer).

Hugs,
GinView Thread

Posted byrednewbie

8 Replies | Reply | Watch This DiscussionReport This| Share this:Hip Pain Lexismom, I have the hip pain, going down my leg. Have you seen a pain specialist? My...

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