Lexismom, I pray you do not have the osteonecrosis... Have you started the process for SS yet? My suggestion would be for you to. Its a long process, and I would suggest you start now. Who knows what would happen in the next few years, and hopefully it will not take that long for you to be approved but honey I would check it out now. Especially if you are not working. And yes, you can apply while you are on short or long term disabilty!
I hope you company has a decent long term disabilty and you are able to stay home and recover with minimum stress. Hugs honey, GinView Thread
Hannah, My daughter who is 16 and out of school for the summer, wanted to know why I am always on webmd.. like I am some crazy hydrocrondicate (sheesh, I really spell checker here!)... I talked to her about the message board, and introduced her to a few of favorite crohnies by reading their bios. Since my favorite buddies included you, we read your bio (along with others) and what a surprise for both us. First for me. Honey, you have baby. Wow. You are amazing, school, illness, and a little one! May I ask how old the little one is?
For my daughter.. The 16 year old World of warcraft freak who stays up late at night raiding and playing (did I even say that right?) was surprised to find someone on the crohns site she's can relate to. Makes the whole thing seem more real to her. As I think you know she has her own medical issues, and I think she just likes to know to there are others surviving out there with medical issues living a normal life too. Does that make any sense?
I hope I did not get too personal. If you ever want to email me, my email is email@example.com . I think its posted on the mens rooms across the country!
Shy, Please come back and keep in touch. There is a lot I am sure you can offer those who have crohns less time you have. I pray your appointment goes well with GI, and yes please let me know how it goes. I will be thinking about you! Hugs, GinView Thread
Lindsay, I always wonder when no one replies if that means no one read my posting... I just wanted to let you know.. I read it.. and NOPE.. I have do not have the constipation issues. Sorry, but please be patient. I do know there are a few member on here who do.
However, please think very careful about surgery and consider the risks.. I had a resection in 2008 and while I do not regret it. I deal with adhesions, scar tissue and hernia issue I did not consider before the surgery. Please, make sure you consider all your options and that you have all the information before you make your decision. And know, the stats of reoccurrence of crohns at the resection site. I do not mean to scare you.. I just want you to have the facts. Knowledge is power.
Making an important decision like surgery is best if all the cards before hand.. Surprises are not unavoidable, but best to be prepared if possible.
Hugs.. and once again. Please remember I do not regret my resection and I would do it again if I were to go back in time.
Sky, Welcome to the group.. First please do not panic. There is a very good chance the burning is NOT going to result in another resection. However, I think you should contact your doctor (pcp or GI ) ... I have had one resection to remove a narrowing section of my small bowel where the crohn disease was inflammed to the point of causing a stricture that was the size and shape of a rats tail. Which was a risk of a blockage. I had the surgery in 2008, along with a hernia repair. Within 6 months after, I had to have two more hernia repairs, which resulted in a full abdominal mesh. Now two years later, I have busted my hernia (again!) and I have another stricture (either due to disease or adhesions-not sure which) but unable to have a surgery unless life threatening as the mesh causes serious complications. So, my life is a little interesting now. ...
As for having one resection, do you ever need another??? Yes, unfortunalty its quite common to need more than one resection in a life time. Once you have one, its quite common to have Crohns attack the resection area. It's actually quite amazing that you have been about to go as long as you have. You give me hope! DID YOU ALL HEAR??? SHE HAD A RESECTION IN 1975? AND NEVER EVER HAD ONE SINCE? SHE GOT 35 YEARS OUT OF HER RESECTION! THAT IS AMAZING!
Shy.. please go see your doc. It might not be connected to crohns at all, it may be connected to the hernia repairs. Some nerve damage from those... but please let your doc make that decision. It is my pleasure to meet you.. Please come back often.. We are a great family here! Hugs.. GinView Thread
yes, its possible... have you had any surgeries with your crohns at all? From what I understand (and my knowledge is limited) burning is usually a sign of nerve pain. But yes, I do believe you can have burning pain associated with crohns. How long have you had it and how severe?
Lexismom, I have the hip pain, going down my leg. Have you seen a pain specialist? My pain specialist says my hip pain is my sciatica nerve pain, it starts at my hips and goes down my legs. I take flexerial and topamax and it seems to help keep the pain away. However, when I had the pain heating pads helped. I would wrapped around my hip and lay down. As for future pain, I highly suggest seeing your doc and discussing the pain with him/her. I know and understand the pain and it is crippling. With the proper medication you can feel much better.
As for what to do about work. Get to the doc and have everything documented. Everything, your pain in your hips and your anxiety. If you truly can not return back to work in the next 2 weeks, you need to find out if your employer has any long term disablity benefits, usually its only 50% of your pay. But you will find, without traveling to and from work, buying coffee, lunch, the stress of working, etc. that 50% of what your were making and being home to "recover" or at least try to is worth it. Its also before taxes, so make sure you have your taxes takes out, however its not taxed by most states and citys. So you will have some tax breaks there.
If you think you can not return in the next few month start the SS filing immediately... If you get better great! You can always tell them and SS will be thrilled for you! But, if you are not better, then at least you have a start in the system before your Long term disabilty runs out. If you need more information feel free to email me at firstname.lastname@example.org ...
If your company has Long term disabilty, here is my most important piece of advice to you.. and it sound cynical but..
Companies need someone to show up at work, they need employees who can do the job and are reliable. If you are too sick to be reliable no matter how much they like you, sooner or later they will let you go. If you are on long term disablity you are protected until your doctor says your well enough to work a full time job or the long term disablity time runs out (dependant on each company - some range 2 years or longer).