I'm hoping we still have enough members here that I'll get some sort of response to this. I'm doing so well that I've managed to find myself overweight! Kidding, of course, but I do take it as a good sign, even if it's just a side effect of some wonderful/terrible medications. I've got about 20 pounds to lose to get back to my goal weight. I'm 25 now, and I'm starting to look at getting married and having babies! Hopefully. Before that happens, I need to get myself into healthier habits and that starts with food.
I was hoping this post could be a source of encouragement where we share ideas about what our safe foods are, flaring or not, and what we've found we absolutely cannot eat. While everybody's case is different, I'm stuck in a rut where there are very few healthy foods I eat. For instance, I haven't eaten a vegetable in four days. No good!
So what can you eat? What can't you eat? I'm particularly interested in fruits and vegetables, but all responses are welcome. View Thread
I recovered well and easily from both surgeries. I had a couple of complications, but it all came out in the wash. To be fair, I am still young, so I did have that to my advantage. How old are you? Unfortunately, the older you get, the more difficult it is to recover from illness or surgery. But even if you are old, don't despair. My grandpa recently had his knee replaced and he recovered remarkably well, and he is in his 80s. A lot of it depends on your attitude and your determination, as well as the skill of your doctors.
I was 20 when I had my colectomy in 2010 and I was 21 when I got my J-pouch. Mine was series of three surgeries, so be prepared that it may be the case with yours as well. The first surgery was removal of the colon and rectal tissues with ileostomy. Three months later I had my J-pouch constructed and got a new stoma through the same ostomy site. Three months after that, I had my ileostomy reversed and started using my J-pouch.
Prior to these surgeries, I was unable to work- I had to quit two jobs because I was calling in more than I was working. I was unable to go to school- I did the last two years of high school through a homebound program and the only college I had at that point was online. I didn't go out because I was in so much pain and even just the thought of eating made me sick. I was very underweight and very malnourished.
I had my surgeries. It took a while to recover. I had issues with infection and perforation during surgery and ended up having my incision ripped back open and I had to clean it and pack it multiple times a day. I have a couple pretty gnarly scars, but it's nothing like my dad's. He had the surgery nearly 20 years ago, and it's remarkable how far they came between his surgery and mine. I'm sure there have been advancements even since I had mine.
Since my surgery, I've gone through an associate degree nursing program, which was incredibly intense. I did not miss a single day of nursing school, but I was sent home one clinical day because I was barfing everywhere. After I got my license, I entered into a bachelor's degree program (this one was online but I did have assigned clinicals) and I got a job. I've been working as an RN for over a year now, even though I am only able to work part time. I do miss work more often than I would like, but that is because my Crohn's is back to being a jerk.
Basically what I'm saying is that these surgeries and my J-pouch gave me my life back. I am not a normal person. I do not have a normal life. I have to modify things so that I can do them, but at least I can do them. Prior to surgery, I could not. There is a member on these boards who posts from time to time and I believe his screen name is "miserableSOB." He will give you a different side of the story, should he decide to respond. I'm not saying that his story is any less valuable than mine- I respect his opinion and I am grateful to have had the exposure to his side. But you have to keep in mind that life is what you make it. Colon cancer spreads quick and it is deadly. I see people dying from what started as colon cancer on a regular basis at work. I'm not trying to scare you, but please weigh your options carefully. Do not fear this surgery.
If you have any questions in particular, please feel free to ask them. Please feel free to discuss your concerns and fears in this group. That's what we're here for. Hopefully you will find someone here who can help you and be a shoulder to lean on.View Thread
You goob, I'm a nurse and I have Crohn's and had ulcerative colitis prior to total colectomy and J-pouch. And I am not "righteous," but yes, during my course of disease, I have done loads of research.View Thread
I honestly do not care if you "fall for it" or not, but telling people to ignore the advise of their physician and that a disease like Crohn's is completely dietary is not safe. I'm glad that your Crohn's was minor enough that a simple dietary change could fix it for you. I'm glad that you feel healthy. But that is not the case for everybody with Crohn's and you pretending to understand everything there is to know about the disease and portraying healthcare professionals as villains is not what this site is for.View Thread
Please continue to follow the advise of your son's physician. Sometimes dietary changes are beneficial and sometimes patients with Crohn's disease do suffer from Celiac's or lactose intolerance as well, but they are not one in the same. I have trouble with some wheat products but not gluten in particular and I have no trouble with dairy or lactose. Everybody's Crohn's is different.View Thread