As everyone else has said, you need to try to relax. Nerves and UC are a bad combination. Since I had my abdominal surgeries, I sleep on my side or on my back. When I sleep on my stomach, I have trouble breathing. You may try propping yourself up with an extra pillow because that can give your lungs room to expand and help you breathe more easily. You may also have some sort of sleep apnea, or your shortness of breath could be related to a medication side effect if you are taking something new. One of the possible side effects of Xanax is difficulty breathing, but it is not very common. It could very likely just be nerves, or it could just be gas, since you said you are bloated, pushing on your diaphragm and not allowing it to move freely. It could be a lot of things. You should talk to your doctor and discuss your concerns.View Thread
I hope you called your doctor or took your father to the emergency room. Any time hives are present and an allergy is suspected, you should not take that medication again and get seen by a doctor as soon as you can. Allergic reactions progress with each exposure to medication, so every time he takes it, he is likely to have a worse reaction. Hives are bad news, as are high fever and coughing.View Thread
I am not sure if the two are reacting or not. I will do some research and try to find you answers but unfortunately, I don't know that it will do any good. All medications affect each person differently, as I'm sure you've heard a thousand times. Is there a reason your doctor opted to go with enemas instead of oral medications? Or were they just thinking that since it was farther down in your GI tract, you would respond better to enemas? I've never had any experience with those.
From doing a quick Google search, I can't seem to really find anything that would indicate there is a known interaction. I'm away from home so I don't have any of my drug books with me. The drug.com page does indicate that Lialda can cause nervousness, dizziness, and fatigue.
I would say that it could certainly be from the anemia- it can take a while for iron supplements to kick in and get your blood counts back to normal, especially if you are still losing blood. I would suggest calling your doc, obviously, because I'm a nurse and that's what I've been trained to say when I don't have a definitive answer.
I'm on a multitude of meds and I struggle with fatigue and weakness on a daily basis. I know mine is from malnutrition and dehydration, a long with not getting a restful night of sleep. I also have issues with anemia. How recently were you diagnosed?
I apologize that it's taken me a while to respond to your post- I recently reformatted my desktop and couldn't find this page again until I broke out the laptop, lol. Hope you've found some answers by now.View Thread
I don't really know what to tell you. I was on Cimzia for roughly six months after having been on Remicade for nearly four years and then having my colon removed. It did nothing for me. I also tried Humira for around the same length of time, and again, had no luck whatsoever. Have you tried the Humira and methotrexate combo? Methotrexate is scarier to me than Remicade, but it's usually just a shot once a week so it might not bother you as much as a four hour infusion.
I was on Remicade, like I said, for nearly four years. I never had any kind of negative reaction or side effect from it, aside from flu-like symptoms for roughly a week after the infusion.
I'm now on Tysabri because nothing else has worked, and to me, it is also much scarier than Remicade.
You can always try to improve your diet but you probably already know how to do that so I'm not sure that it is really what you are wanting to do. If there is anything in specific that you have questions about, I can try to answer them. But other than that, Remicade is not so bad and it has been a miracle drug for a lot of people. Try to look past the potential side effects and focus on the positive.View Thread
It sounds like you are doing all the right things. Extra fluids and moving around are the first step in treating constipation. Instead of just drinking the prune juice, have you tried warming it a little? Warm liquids can also stimulate the bowels. And maybe eating actual prunes would help too because of the extra fiber in the skin of the fruit.
Other than that, maybe some stool softeners (I wouldn't recommend laxatives yet) or trying other high fiber foods. Metamucil makes little wafers that have a ton of fiber in them and the apple cinnamon flavor aren't too bad, but they didn't irritate my intestine like fibrous breads or cereals usually do. Also, things like beans (especially hummus) have a ton of fiber in them.
If you can tolerate it, you can also kind of massage the bowel and sometimes that will stimulate it as well. Before I had my colon removed, I would lie flat on my bed and use my hands to kind of push around on my gut and sometimes that can help move the gas and bowel content around some and facilitate a bowel movement.
Hello, sickofhurting. For your rectal pain, I would recommend sending someone to a pharmacy and getting calmoseptine (or some other kind of zinc oxide ointment) for your bum. If you can't find any of that, diaper rash cream (like A&D) will help some, too. Also, when it gets to the point where it hurts to wipe, you can try dabbing with the toilet paper or even a damp wash cloth to help clean yourself without more trauma to your bum. Some people have more luck using baby wipes, but be careful to get the sensitive ones because regular ones sometimes have chemicals that can actually make it hurt worse.
They should be able to tell some from the CT scan, but I think you need to see about having a colonoscopy to make sure you don't have some kind of inflammatory bowel disease.
Until you get some answers, I recommend trying to rest your bowel some. Try to stay away from any harsh foods (raw fruits and vegetables, whole wheat bread products, anything with a lot of fiber, anything crunchy, anything extra spicy) and drink lots of fluids. Try to get something with some electrolytes in it- Gatorade or Pedialyte. Stay away from juices that have a lot of added sugar because they will give you some nutrition but sugar makes diarrhea worse. Foods I do okay with during a flare are like, mashed or baked potatoes, white rice, white pastas, yogurt, cottage cheese, white bread. Maybe try some of those and see if that will help with the weight loss.
Let us know if you have any more questions, and welcome to the board. View Thread
Yeah, raw fruit and vegetables wreak havoc on me. I ate a hand full of grapes and two baby carrots today and I've been in the bathroom every ten minutes ever since. You'd think I'd have learned by now, but it's just too yummy.
They generally recommend during a flare to eat what is called a low residue or low fiber diet. To help with diarrhea, they recommend things like white bread, white pastas and rice, and bland foods. Bland as in not a lot of fat or seasoning, and also not a lot of crunchy. I do well with dairy but most patients don't, but I tolerate milk and cottage cheese and yogurt just fine. They are safe foods for me. I can also eat a lot of cereals that don't have a particularly high fiber content. I do okay with Rice Chex, Honey Nut Cheerios, Corn Flakes, Fruity or Cocoa Pebbles... You know, mostly the real sugary crap that is terrible for you.
I do well with potatoes- baked potatoes and mashed potatoes are some of my safe foods. Macaroni and cheese. Chicken. Most of the stuff that is low fiber is actually bad for you, so it's kind of a balancing act. You can Google low fiber or low residue diets if you wish. The goal is to eat those while you are flaring and then when you are in remission, you should be able to eat a diet closer to what you are used to now.
One food that I absolutely cannot eat is Lays potato chips. I can eat the ruffled kind, but not normal Lays. My dad (similar to my history) has the same issue. I bleed for days.
I do tolerate bananas well, and my doctor has recommended several times to make a sandwich out of white bread, peanut butter, and Fluff brand marshmallow cream and to put not quite ripe bananas on it. It's supposed to help stop the diarrhea. I don't like peanut butter and the idea of eating a marshmallow sandwich was not one I could stomach, so I don't know if it actually works or not.
I'm only 23 but I was diagnosed probably 8 years ago now and I've been having trouble since before that, so I'm sort of adjusted to it. I've been through a lot of surgeries and medications, and I know exactly what you mean about how it shouldn't be an issue because you are so young. You should be able to eat healthy, and it shouldn't make you feel sick. You shouldn't have to worry about having accidents. You shouldn't spend most of the day on the toilet. But unfortunately, it doesn't work that way for us, and we have to have time to adjust to that.
Once you find a diet and medications that work well for you, things will return to a semi-normal state that you will get used to. It just takes a while. And there are a lot of knowledgeable people here more than willing to offer advice. View Thread
I don't know if you've read any of the other posts, but there is a post titled UC (not the most recent one, this one was started about two weeks ago) and I posted a lengthy explanation of ostomy care to a person who was going to have a permanent ostomy. You may find some of that information useful. If you can't find the thread, please let me know and I will copy and paste it to you. As always, if you have any other questions, feel free!View Thread