Thank you! I feel better than I have in years! Can't believe it took me this long to see how unhappy I have really been. It really did take me getting so sick for so long to realize how life can be snatched away from you. I finally decided that I wanted more and FINALLY had the courage and strength to go after it.
I knew that I had to do something....I started to flare a little over a month ago and I knew it was because of my living situation and the stress that I was under. No way am I letting myself get that sick again! As soon as I started making major decisions, my symptoms cleared up and I have not had any problems since. I think that all of this will be the key to a long remission for me!
Welcome to the group, Lindsay! I'm sorry that you are feeling so alone. This disease can be so isolating at times....I'm so glad that you are reaching out to us! The very first thing I did when I got home from the hospital after being diagnosed was finding this group! They have saved me so many times. It is wonderful to have a place to come to where everyone understands all that you are going through. I've had Crohn's for almost 3 years now, and it is still hard for family and friends to realize that if I spend too much time out in the hot weather I can get in to trouble with dehydration. There are just so many things that we have to watch out for, but like I said....it's great to be able to come here and talk about it.
I was like you in the beginning with the Gatorade....I lived on that stuff for a good year. I can't tell you how many times I ended up in the hospital because I was dehydrated. I can barely drink the stuff now....it gags me. I've had to do too many preps using it and now I can't even stand the smell of it. I do drink lots of water and BOOST.
My only tips are for you right now are to pay attention to what your body is telling you. If you need to rest, then rest. Drink as much as you can force in you and be kind to yourself. We are always here when you want to vent,scream, cry.....whatever:)
Just checking in with everyone....hope you are all feeling well and enjoying your weekend.
Things have been crazy here, but the kids and I are finally settled in the apartment. Life is soooo much easier for me now! They seem to be adjusting well. I have my first appointment with the attorney on Monday morning. Just ready to have this dissolution done already. So ready to get on with life....but, all in good time. I've waited this long....a few more weeks won't kill me.
Just wanted to check in real quick with you all and send you lots of love and big hugs! MindyView Thread
I was on Remicade for a little over a year. I never felt really wonderful while I was taking it, but it did close up a fistula that I had. It destroyed my immune system and I ended up spending a week in the hospital with pneumonia and a C. Diff infection. But, I guess that was still better than having yet another surgery to repair the fistula. The immediate side effects from the infusions for me were always extreme fatigue for a couple of days and a slight headache.
I've had this disease almost 3 years now. I've had 5 surgeries and have been on tons of meds. It wasn't until I had my colon and rectum removed in December 2010 that things finally turned around for me. I have been in remission for a couple of months now:) Feels so good to be back at work part-time and just living again. Currently, I am taking Pentasa 3000 mg daily and am trying to taper off of Prednisone. I have been on the steroids for about 18 months now. Hoping that I don't crash when I go off of them. My bones are already showing signs of thinning from being on them so long, so I just gotta get off of them!
I'm so glad that you are here with us....please keep posting to let us know how you are doing.
Hello everyone:) I saw my GI yesterday for a follow-up. For the first time in 3 years I didn't have to go for lab work or start a new med! The only things he wants me to concentrate on are gaining a little weight (about 10 lbs) and getting off of these darn steroids. I will be seeing him at the end of September to see how things are going. In the meantime, I will get a bone density scan done to check on my poor bones. Hopefully, I can get off of this prednisone before too much damage is done.
All in all....GREAT appointment. He told me that I look the best that he has seen me the entire 3 years that he has been treating me:)
Hello to all of my wonderful Crohnies/IBD ers! I've missed you all...things have been hectic for me. My biggest news is that my husband and I have separated...so the past 1-2 weeks have been spent getting an apartment and getting me and the kids moved in and settled. It's been such a shock to everyone, but really this has been in the works for a long time. Things were not the greatest before I got sick and well...it just completely fell apart from there. It has basically been my decision.....I started to flare a couple of weeks ago and it scared me to death. I've only been in remission for a couple of months and am not ready to give it up yet. I knew it was because of my living situation....as soon as I talked to my husband and started making some major decisions, the flare quieted down. I am truly a much happier person and mommy now. I think I will be healthier, too:) Of course, I am watching the kids closely and making sure that we talk about everything....but they know how we have been living for the past several years.
Other than that major change....work is going great and things are moving along. I have an appointment with my GI this week....I'm probably gonna get yelled at because of my weight....down to 108, but that is just because of the stress of the move. I'll get it back....
Hope everyone is doing well...I think of you all often. Now that things are calming down a bit I hope to be on here a little more. I've missed you guys!
Please get to a doctor. They isn't a cure for Diabetes either, but you wouldn't go without insulin under a doctors orders, would you? This can be a fatal disease if you don't get proper care....by the time I was diagnosed, I was severely dehydrated and already had a blockage. For 2 1/2 years I struggled with meds and had 5 different surgeries. I now have a permanent ileostomy....but make no mistake....I would be dead without it. Please, please, please get to a health care professional. At least to have some blood work done and possibly a CT scan. You really need to know what you are dealing with. I commend you for compiling all the information, but until you know what your diagnosis is, that information is not going to be of much help. I am finally in remission and living a wonderful, busy life again. It takes time, but the longer you go untreated, the worse it will be. Please take care and keep us informed. MindyView Thread
I am sooooo sorry for your loss:( What a devastating thing to go through:( You will be in my thoughts and prayers. You are right about being off of the Remicade for a while before surgery (usually 4-6 weeks), but if the benefits outweigh the risks, they will go ahead and do it. I'm sure that there are other precautions that they will use....like, extra antibiotics and such. I think postponing the D & C for that long would be a greater risk at this point. (But that is just my thought, I have never had to go through it so I don't know all that is involved.) Wish I had some concrete answers for you; you must be so scared. I will continue to pray for you and know that I will be thinking of you and your family.
I had a proctocolectomy in December 2010. For the first time since I was diagnosed (Crohn's) in Sept 2008 I am finally in remission:) It was an extremely hard surgery and I was very tired for several months after. He will just need to take it slow and listen to his body when it is time to rest. He will also need to increase his fluid intake so that he does not get dehydrated. It is very easy to do without a colon to help absorb the fluids you are putting in to your body. I hope that he has good results like I did.....it saved my life! I was down for 2 1/2 years....on disability and really not able to anything at all. I was miserable. I spent months thinking about the surgery and the finality of it, but now that I am back to work part-time and able to spend time with my kids and husband....it has been worth it:)