I've had ulcerative colitis since I quit smoking in 2001. I went through asacol, prednisone- which I could not get off of until my insurance company finally accepted remicade as a reimbursable treatmwent for colitis and not just Crohn's.
I am currently in remission, but still on remicade once every two months. My blood is consistently monitored, and I am also on Lialda, which replaced Asacol and Colazal. I've also been able to get off the 6-MP. The main benefit of the remicade is that I'm off prednisone, which I despised. I find that stress, Chinese food, large portions, too much dairy can contribute to flares. Coffee in moderation is OK- I wouldn't give it up anyway. Pizza is a safe food, but huge helpings of pasta are not. Sometimes I can eat almost anything, and sometimes I can be very good but stress or the colitis itself will cause a flare.
Remicade is a very powerful drug, but much, much safer than prednisone, and i trust my doctor. I also have to take vitamin D supplements- the prednisone in particular had caused deficiency and reversable oseopenia. I also take Culturelle probiotics.-, 1 a day.
Relatively speaking, I am doing well, although I am aware every single day that I have colitis.
I highly recommend the remicade. I have tested negative for lactose intolerance and celiac disease- and also find most carbs- bread, pizza, bagels, safe foods. White rice, not so safe in large doses. Too much fiber or vegetables, less safe than pizza!
Something also interesting- my colitis tends to really calm down when I'm on vacation and near the ocean. I can handle a breakfast buffet and be fine. I'm retired (or in between jobs) right now, but something about being on vacation and away from it all has a healing effect on me. Especially the ocean.
At home though, summer heat and humidity is worse than a ton of fried foods. No ocean!View Thread
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