Hannah, I'm sorry you have to deal with this stuff. We all think being on Prednisone and Remicade is scary. I don't have much to say to you. I wish I did. But I hope the best for you. I would say go for it, I mean is life really worth being sick all the time? I mean my sick is one thing- that's tolerable, but to the point of it being completely debilitating. I don't know. I just always tell myself, that there's no pain in heaven. Someday it will be better and I'll have a perfect body that won't have Crohn's..... It helps. I'll be praying for you.View Thread
Well, I'm still alive amazingly. I do have to say, that I don't think I've ever been this sick in my life. I've been off work since Thursday morning and have been in bed since. I tried to get up for awhile today and do some housework but ended up overdoing it and throwing up for awhile. Not fun. I feel so weak and wish food sounded good. I force myself to eat at least a little bit and have been drinking some gatorade. But man, it is hard. I'm pretty much just really frustrated right now. Sick of being sick. (Aren't we all?) I'm not in a hospital and am just at home, but have already been into the ER for fluids once. I'm still having diarrhea even though I've been on Flagyl for almost a week now.View Thread
Thanks for the reminder Bad part is I've been at work this entire time, in a hospital.. lol. Not the best place to be with an active C Diff infection. Oh well, I'm usually pretty careful about washing my hands anyway. I found out the bleach trick last time I had C Diff in Feb so I have these great bleach wipes. And thanks for the well wishes View Thread
Well all this yuckiness I've been feeling is actually C Diff. I went to my GI today and my stool sample finally was read and sure enough it was positive for C diff. So that definitely gives me justification for feeling so bad. Hopefully work is easy the next few days so I can take it easy.View Thread
Sorry to hear that. Stress is definitely a crappy thing to endure when you have Crohn's. I work for the ambulance too so I can understand dealing with stressful situations. My husband is actually a teacher for troubled teens too. I can't imagine having to deal with that everyday. I hope you get things under control soon View Thread
I felt much better after venting above. haha. Working and having Crohn's is really tough. Luckily I have a really understanding job. I'm an xray tech in a hospital. I usually try to tough out most days that I feel sick, but if it's a rough day they let me go lay down in the backroom for my breaks, which helps a lot. I also volunteer on the ambulance when I'm feeling better. I think I'm pretty fortunate to have the symptoms I have with Crohns because it's not really often that i feel this terrible. I feel crappy everyday, but it's stuff I can tough out.View Thread
So I'm still feeling like crap. I thought I was doing better for a couple of days then whammo, last night I had the worst diarrhea and stomach cramping. So this morning I called my GI right away- they didn't call back within 3 hours. So I decided I would make an appt with my family practice Dr. I had a flare up last week and had called my GI then too, but they said unless I came down for an appt they wouldn't help me. Well it's an hour and a half to my GI and I had diarrhea that kept me pretty close to the bathroom. So what am I supposed to do? Anyway, I saw my family practice dr, and as I'm sitting in the waiting room the GI calls me to schedule an appt. They wouldn't even do labs or anything in my hometown for some reason (i'm guessing it has to do with money) So I had my fam prac run my labs and I'm guessing it's not actually a flare up but C Diff again. Anyway, she's calling my GI now to discuss what they want to do..
I'm just so sick of feeling like a dollar sign instead of a patient. They need to try to be understanding of those patients that live far away from their office. I have a perfectly good hospital and lab in my hometown that is affiliated with their clinic. But they refuse to use it. GRRRR..View Thread
I was wondering if anyone had done any research on this(a liver detox program). Where Remicade can be really hard on your liver, I was wondering if this would be a beneficial thing. The one I found is a 10 fast where you take a supplement and basically eat only health food.View Thread
So I thought this might be an interesting topic. I'm not sure how most people are, but maybe we could talk about what a flare up is like for us, how long it usually lasts, and what we do about it....
So my flare ups- I had my last one on Wednesday, It started out with really bad abdominal cramping and then the diarrhea came. I was sick for quite a few hours. Then I took a pain pill and still had lots of cramping - Laying on my left side helps with that a lot for some reason.. I usually am pretty fatigued for a few days, I don't tend to want to eat anything. And then I get constipated for about a week. I did finally go today and didn't even have to take any Miralax or anything. My dr usually gives me a shot of Solumedrol and starts me on a Medrol Dose pack when I have a flare up.View Thread